"It is better not to Shrink then to Survive" My personal thoughts & experiences with my Inoperable
I am a 29 year old, single mother, RN from Alabama & was "officially" diagnosed with a Low-grade Glioma on my brainstem on February 27, 2013.
However we have gone back and found evidence that the tumor was there in 2007, however much smaller... Anywho.
My tumor is inoperable, due to its size and location on my brainstem... i believe it is throughout my medulla, pons, and working really dang hard & spreading on down my Cervical spine.
I resigned from the hopsital I was working at as a floor nurse and now My full-time job is doing whatever I've gotta do to stay up & do whatever work & service I have left to to here.
Now... I say this & I don't feel sad or upset... not even disappointed, but I do not suffer myself by living based on what my "Prognosis" is... I've seen first hand in the hospital & in my life that you can't live your life based on statistics...
Life is life. there is no rationalizing or explaining why cancer, tumor, illness, death... happens and hits us... but it does... and it will continue to for every person on this earth...
As for me, I choose to enjoy my life... Love my son... Hold strong to my Faith... and do whatever is within my power to get myself healthy... mentally, physically, & spiritually.
I know that even as I am currently undergoing my radiation therapy & my chemo pill aka Temodar... that there's a chance that it'll come back, or won't go bc it's far to comfortable where it lies...
I'm really not trying to be all "preachy" so pardon me if that's how i'm coming off...
but as a Nurse & researching treatments and tumors... I've learned that the brain is a tricky tricky thing... brain tumors can or can't be cancerous. it can or can't be operable. Not all radiation therapy or chemotherapy works the same... and in order to know the MOST Effective treatment to kick that tumor's butt, would require a biopsy to know exactly what type of cells they're dealing with. Depending on the location, the grade aka aggressiveness of the tumor can enchance or limit your treatment options. It would be awesome if there was a simple one-size fits all cure/fix, but alas... there is not.
What is the point of my post... I can't rightly say... but I feel prompted to encourage you to research, but not to the point where it makes you crazy... Use only RELIABLE Resources.
Don't Live based on Your PROGNOSIS. I know mine, mine is simple straight & clear... *insert alabama twang here* "If this don't work... ain't nothing gonna work."
And even as I type that... I am filled with gratitude for all that I have been able to do in my life so far & whatever time I have left to here. My life may not extend out 50 + years as I had assumed, but heck, I would gladly and gratefully take any amount of time that is before me... Year, Years, a Decade? Fosho! If not, okay.
every person is different... all treatments and their effectiveness can and may be different, there is not way to know, and it's only natural to Need those answers... but there are times in life when all you can do is rely on your faith or find your faith.
It is my sincere hope & prayer that each person that comes across this will be blessed with a peace & comfort in there hearts & minds... There is nothing fair about why or how these things happen... but they do & I truly hope for the best for each of you & your loved ones who are enduring, or who have endured this fight.
if you'd like to follow my treatments & what's going on in my life as I get on through them, I've created a Tumblr page for my family & friends to follow... and I'm open to sharing it to anyone who may benefit from my experiences.
- 119.4K All Discussion Boards
- 5 CSN Information
- 5 Welcome to CSN
- 119.5K Cancer specific
- 2.8K Anal Cancer
- 427 Bladder Cancer
- 297 Bone Cancers
- 1.6K Brain Cancer
- 28.2K Breast Cancer
- 378 Childhood Cancers
- 27.7K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.1K Gynecological Cancers (other than ovarian and uterine)
- 12.6K Head and Neck Cancer
- 6.2K Kidney Cancer
- 643 Leukemia
- 767 Liver Cancer
- 4K Lung Cancer
- 5K Lymphoma (Hodgkin and Non-Hodgkin)
- 218 Multiple Myeloma
- 7.1K Ovarian Cancer
- 37 Pancreatic Cancer
- 477 Peritoneal Cancer
- 5K Prostate Cancer
- 1.1K Rare and Other Cancers
- 522 Sarcoma
- 693 Skin Cancer
- 633 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.7K Uterine Cancer
- 6.2K Other Discussion Boards