Recent diagnosis of DCIS Grade 3 with microinvasion -

SWFLWriter said:

Same Diagnosis

I had this exact diagnosis DCIS with microinvasion, as did two friends of mine.  We all had an excision and then radiation. Mine in 2008 and the two friends in 2009. We were all in our early 50s. You should be fine but I'm wondering why the double mastectomy? Is the DCIS in both breasts? Are you really young or do you have the BRCA mutation? How big is the DCIS? Did you get a second opinion? This is a really big surgery and there is no turning back once it's done. Also, you know that DCIS is not life threatening, right? Scary yes, but it's not going to kill you. In some cases it won't even become invasive cancer. Why not do the sentinel node biopsy and a lumpectomy and then make a decision about a mastectomy based on those results? I know you may have made up your mind already but I'm really curious why you are taking this course of action.

I was diagnosed with infiltrating ductal carcinoma and ductal carcinoma in situ and had a lumpectomy with radiation treatments.  Was a mastectomy the recommendation of your breast surgeon and oncologist?  I hope that with whatever you choose to do, that it is successful and that you have a lifetime of clear test results.

Megan M said:

Checking on you to see if you

Checking on you to see if you might have posted an update.  Hoping you're healing fast and feeling good.

 

How did your surgery go? 

I had DCIS with a 2mm invasive ductal carcinoma, also high grade like yours.  I was put in Stage 1 (T1a).  I had a lumpectomy and sentinal node biopsy.  The node was clear.  I will not be getting any chemotherapy, but I will be doing radiation starting next month.  Then I will be on Tamoxifen for 5 years at least.  In my case, the DCIS was localized to a small area in one breast, so it didn't make sense for me to have a total mastectomy.  Your treatment will depend mostly on whether the nodes are involved or not.  I wish you the best in whatever treatment you end up doing.