Early stage but high grade

flatpikr
flatpikr Member Posts: 11
in Breast Cancer #1

I had a lumpectomy two weeks ago, lymph node biopsy negative.  Just got the post-surgery pathology report and it was stage 1a (very small) invasive ductal carcinoma with high nuclear grade DCIS.  ER positive, PR negative, HER2 positive.  I'd like to hear from anyone out there who also has both ER+ and HER2+ about what adjuvant treatment you have chosen.  On one hand, it was so small that all the invasive part was removed in the original core biopsy before surgery.  After surgery all they found was DCIS.  Margins were between 2 and 5 mm.  But with high grade and both ER+ and HER2+, should I expect to need chemo AND hormone therapy AND Herceptin AND radiation??  I know the oncologist and I will have to thrash this out when I meet her, but I want to hear what others with similar dx have done.

Comments

  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
    #2
    I had DCIS but no invasive

    I had DCIS but no invasive cancer. I just wanted to tell you that breastcancer.org has a special forum called Micro Invasive DCIS That Is HER2 Positive. I am sure you will find a lot of help there,too.

  • flatpikr
    flatpikr Member Posts: 11
    #3
    cinnamonsmile said:

    I had DCIS but no invasive

    I had DCIS but no invasive cancer. I just wanted to tell you that breastcancer.org has a special forum called Micro Invasive DCIS That Is HER2 Positive. I am sure you will find a lot of help there,too.

    Thanks for the info.  That

    Thanks for the info.  That site had just what I was looking for and seems much more active than this one.

     

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #4
    flatpikr said:

    Thanks for the info.  That

    Thanks for the info.  That site had just what I was looking for and seems much more active than this one.

     

    I had infiltrating and ductal

    I had infiltrating and ductal bc and had a lumpectomy with radiation treatments.  I am doing great now!  Keep us updated and keep posting.

    Sue :)

  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #5
    Similar diagnosis here

    I was diagnosed at 44 with ER, PR, and Her2 positive, stage 1, grade 3.  I underwent two lumpectomies, chemo( carboplatin, taxotere, and herceptin), and radiation.  It was a challenge, but I got through it. 

    Side effects were countered with prescribed and over the counter meds.  I went with what the doctor recommended.  I wasn't going to take any chances.  It will be 4 years come June and I am doing very well, no looking back for me.  My best to you as you move forward with your recovery.  Hang in there and remember to breathe.

  • Megan M
    Megan M Member Posts: 3,000
    #6
    Bella Luna said:

    Similar diagnosis here

    I was diagnosed at 44 with ER, PR, and Her2 positive, stage 1, grade 3.  I underwent two lumpectomies, chemo( carboplatin, taxotere, and herceptin), and radiation.  It was a challenge, but I got through it. 

    Side effects were countered with prescribed and over the counter meds.  I went with what the doctor recommended.  I wasn't going to take any chances.  It will be 4 years come June and I am doing very well, no looking back for me.  My best to you as you move forward with your recovery.  Hang in there and remember to breathe.

    I was ER and PR positive, but

    I was ER and PR positive, but HER2 negative.  I had a lumpectomy with rads.  My oncologist wanted me to be in tamoxifen, but, I declined and do not regret that decision.

    Good luck to you and I hope you find the support and help here and with other cancer help groups also.

    Hugs, Megan

  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #7
    Hi.
    Sorry about your dx.
    I

    Hi.

    Sorry about your dx.

    I was dx at 32 with invasive ductal cacinoma, grade 3, stage 2a (ER+ and PR+). My nodes were clean (they took 10 out). I still needed chemo because of my grade and age. Also took radiation and currently taking tamoxifen (aver one year now, so far, no issues. Amen to that.).

    Sending prayers your way. You will be OK. We are here for you.

    XOXO

  • Pink Rose
    Pink Rose Member Posts: 493
    #8
    Bella Luna said:

    Similar diagnosis here

    I was diagnosed at 44 with ER, PR, and Her2 positive, stage 1, grade 3.  I underwent two lumpectomies, chemo( carboplatin, taxotere, and herceptin), and radiation.  It was a challenge, but I got through it. 

    Side effects were countered with prescribed and over the counter meds.  I went with what the doctor recommended.  I wasn't going to take any chances.  It will be 4 years come June and I am doing very well, no looking back for me.  My best to you as you move forward with your recovery.  Hang in there and remember to breathe.

    They got clear margins and my

    They got clear margins and my node was also clean, so, all I had was radiation after several weeks of healing from my lumpectomy.  Not everyone needs chemo, so, I hope you don't either.

    Hugs, Rose

  • flatpikr
    flatpikr Member Posts: 11
    #9
    Update

    My oncologist convinced me that I do not need chemo or Herceptin with my very small invasive cancer and a few microscopic foci of DCIS.  I will be doing radiation and Tamoxifen only. 

  • JJDS
    JJDS Member Posts: 258
    #10
    flatpikr said:

    Update

    My oncologist convinced me that I do not need chemo or Herceptin with my very small invasive cancer and a few microscopic foci of DCIS.  I will be doing radiation and Tamoxifen only. 

    Good luck with rads and tamox

    Good luck with rads and tamox and thanks for the update.

    JJ

  • jnl
    jnl Member Posts: 3,869 Member
    #11
    JJDS said:

    Good luck with rads and tamox

    Good luck with rads and tamox and thanks for the update.

    JJ

    I had rads if you have any

    I had rads if you have any questions.  I didn't do tamox.

    Good news!

    Leeza

  • Pink Rose
    Pink Rose Member Posts: 493
    #12
    flatpikr said:

    Update

    My oncologist convinced me that I do not need chemo or Herceptin with my very small invasive cancer and a few microscopic foci of DCIS.  I will be doing radiation and Tamoxifen only. 

    This is good news that you

    This is good news that you don't have to do chemo or Herceptin.  Thanks for updating us and good luck.

     

  • Whitedog52
    Whitedog52 Member Posts: 6
    #13
    Megan M said:

    I was ER and PR positive, but

    I was ER and PR positive, but HER2 negative.  I had a lumpectomy with rads.  My oncologist wanted me to be in tamoxifen, but, I declined and do not regret that decision.

    Good luck to you and I hope you find the support and help here and with other cancer help groups also.

    Hugs, Megan

    I too was ER and PR positive

    I too was ER and PR positive and HER2 negative, stage 2, Lumpectomy and radiation. My doctor wants me to take Tamoxifen and I HATE it. The side effects are awful and I cant stand it. What do I do??? My doctor says this will reduce my chances of reacurrance and I'm scared to death. My ordeal was kinda different in that I went through it alone, still am and I dont think I can do it again.

  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #14
    jnl said:

    I had rads if you have any

    I had rads if you have any questions.  I didn't do tamox.

    Good news!

    Leeza

    Excellent news! 

    Excellent news! 

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