thinking about everyone

Hi Johnathan,

 So nice of you to check in and see how everyone is doing! I am dealing with a new outbreak of shingles...this time on the left side of my head near the temple. I got to the E.R immediately when the rash popped out, so hopefully getting on Acyclofir right away will nip this in the bud. The headache was off the hook painful for the first 3 days, but is now under control and on the mend. I swear...if it isn't one thing it's another!  I'm so happy you are down to only 3 treatments left. Keep in mind, the last few rounds seem to really knock us down with the fatigue. All we can do is rest and go with it, and listen to what our bodies are telling us. Escaping to the lake sounds like the perfect way to to rest between rounds. Keep in touch and let us know the results of your PET scan. Keeping you in my prayers with positive thoughts! Sue

(FNHL-stg3-grd2-typA-Dx 6/10-age 62) Remission since April 2013

allmost60 said:

Hi

Hi Johnathan,

 So nice of you to check in and see how everyone is doing! I am dealing with a new outbreak of shingles...this time on the left side of my head near the temple. I got to the E.R immediately when the rash popped out, so hopefully getting on Acyclofir right away will nip this in the bud. The headache was off the hook painful for the first 3 days, but is now under control and on the mend. I swear...if it isn't one thing it's another!  I'm so happy you are down to only 3 treatments left. Keep in mind, the last few rounds seem to really knock us down with the fatigue. All we can do is rest and go with it, and listen to what our bodies are telling us. Escaping to the lake sounds like the perfect way to to rest between rounds. Keep in touch and let us know the results of your PET scan. Keeping you in my prayers with positive thoughts! Sue

(FNHL-stg3-grd2-typA-Dx 6/10-age 62) Remission since April 2013

Momma Sue,

So sorry to hear those dastardly shingles got you again...I take acyclovair everyday to make certain that I won't have an outbreak ever again. My oncologist prescribed them to me at the beginning of my treatments. Thinking of you daily!!

xxxooo

Carie

jimwins said:

Hi Sue

Hi Sue.  I am so sorry to hear you are fighting the shingles again.  I hope they resolve soon. 

Hugs - Jim

Jim and Carrie,

  Thanks for asking and the concern. I'm doing much better. The patch on my forehead is drying up and didn't spread, so that is good. The darn headache however has been a challenge keeping ahead of, but so far the pain meds have done the trick. Just want to get better and work on getting my energy back up....hard to feel energetic while having to take pain meds. Ugh! I'll be on meds for another 5 days and hopefully by then be done with these darn things. Having a compromised immune system sure is a bummer...makes me wonder what else will pop up. Hope you two are having a good holiday weekend. We've had a bunch of rain with more on the way. Weird weather for the end of May. Love...Sue

(FNHL-2-3a-6/10-age 62)

allmost60 said:

Better..

Jim and Carrie,

  Thanks for asking and the concern. I'm doing much better. The patch on my forehead is drying up and didn't spread, so that is good. The darn headache however has been a challenge keeping ahead of, but so far the pain meds have done the trick. Just want to get better and work on getting my energy back up....hard to feel energetic while having to take pain meds. Ugh! I'll be on meds for another 5 days and hopefully by then be done with these darn things. Having a compromised immune system sure is a bummer...makes me wonder what else will pop up. Hope you two are having a good holiday weekend. We've had a bunch of rain with more on the way. Weird weather for the end of May. Love...Sue

(FNHL-2-3a-6/10-age 62)

I am so sorry you are having trouble with shingles. Can you take the shot? (I can't). I want my energy back too!! I am about over this Lymphoma business. Unfortunately, it doesn't seem to be over me yet. I keep reminding myself of the things I can do that I couldn't just 6 months ago. I cleaned my stove and oven today. Yuck, not fun, but at least I could do it.

Take care of yourself. Hugs, Rocquie

Rocquie said:

Jonathan

I sure know about the low blood counts after chemo--no fun at all! Camping at the lake sounds like a wonderful way to relax and recover--Just napping near the water even when you don't feel like getting outdoors.  I hope you have better luck with your last 3 rounds (only 3!!) of chemo and that your PET scan shows the results you are hoping for.

For chemo brain, my oncologist said vitamin E could help. You may want to ask your doc. Also, it is recommended that you wait until chemo is completed before beginning supplements.

Cheers!

Rocquie

 

Your thoughtfulness is very much appreciated.  We are glad you are on your way with your treatments etc.  A nice way to deal with the side effects, (all those negative ions can't hurt).  Bill is scheduled for a CT Scan in June and we aren't expecting any surprises.  Continued remission is our motto.  We will be taking our 5th wheel up to a trout creek in No.CA the end of June.  They stock it 3 times/wk from a nearby hatchery and you can practically walk across it on fish!  I know, I know, it's not really fishing, but what can I say? I'm a girl.  Thinking of you and hoping you get stronger everyday,  Bill & Becky