Husband diagnosed with Anaplastic oligoastrocytoma grade III, scared and confused....

Hi I am so sorry to hear about this..I can understand the shock and pain you must be going through right now...Just remember to be strong...do not read statistics everyone is different and reacts differently...My Brother In law has Grade 3 Oligodendroglioma...he died a few weeks ago and he was 29. He battled cancer for 6 years...

That does not necessarily mean that it is the life span..I have seen many people have a good and long life...

I will pray for you and your husband and hope you have the courage and the strength to get through this..Please keep us posted on how things go for you

Luv and blessings

D

JNGK12 said:

Oh, I am so sorry for your

Oh, I am so sorry for your loss!!! Thanks for the response and prayers, I have read some things on the internet even with his Dr. giving us a good report and all but it is still very scary, we have already reached our first obstacle.  He was suppose to start radiation 5 days a week for 6 weeks with 42 days straight on the chemo pills, but had a build up of spinal fluid around his surgical site, so we had to put the radiation and chemo off until the swelling goes down or it is drained...

Hi JNGK....make sure you ask questions to the doctor...hope they were able to drain out the spinal fluid...whats the protein level in the spinal fluid...it has to come to a certain level before they proceed further...I hope you have the strength and courage to beat this disease...stay strong...

Luv - D

JNGK12 said:

Thanks for the response...They havent drained it yet, the doctor acted like it was not a big deal right now, just said the site wasnt ready to put radiation on with it there, and they havent said anything about testing  any protein levels or anything, should they? Im really not sure what all to ask or do at this point... He feels bad alot of the time now, we thought it was from one of the meds but he has been off of it for a few days now and still feels bad most of the day, he has some moments where he feels good for a little bit, but then just starts feeling bad all over again...

I am not an expert and every person may be different...but for my brother in law...they had to drain the spinal fluid...but this happened to him when he was really in the final stages....the doctors were not able to get his protein levels under control..for a long time they did not even know what to do...they just kept him in the hospital thinking he had TB....his spinal fluid kept increasing and then they finally decided to start draining it out...after almost 30 days of being in the hospital they did a biopsy and then realized his tumor had spread to the spine...This cancer is unique and behaves differently on different people...I would suggest just read about your husbands tumor and ask the doctors whats the next step and when they plan to start the Chemo and radiation

JNGK12 said:

Thanks so much for the words of encouragement... and contrats on your good diagnoses... He worries about a reoccurance and we have not finished his 6 weeks of radiation just yet, Monday should be his last day, as long as the machine stays up and running, but I just keep telling him, thats technology has already came so far, just think of how much further it will advance by the time it happens if it does... Good luck, and as I always say to my hubby.... KEEP THE FAITH

Hey, I read your story and felt I should reply. 

My husband had a seizure on March 21 and from that they did a CT scan and found a mass... To make a long story short. We were Canadians in Texas and got sent back to Canada by our insurance to do surgery. He had a surgery on May 2nd to remove the tumour, and was diagnosed as a grade 3 Anaplastic Oligoastrocytoma, he does not have the deletion so at this point they have no proof that chemo helps any (for his diagnosis), the only thing that they know works is radiation. We just had our BIG after surgery appointment today and have decided to do 7 weeks radiation. After that he will do regular MRI to keep an eye on it, while we try and make the most of life while we pray and believe it will not come back (at least for many many years, if ever). 

Taking one day at a time, believing that Gods ways are higher than ours or any statistics. 

We have a two year old daughter and the thought of my husband not being around to see her grow up is to much for me, but I have to remember that God loves my daugther and my husband more than I do and that ONE DAY WITH HIM is far better than any day on earth........ 

Praying for deep deep peace for each of you! 

Understanding your heart!

Hi, Sorry to know about your husband's disease. Since its Grade 111 the prognosis might be good but its very difficult to say when it will come back and at whcih stage. I am not very sure as to how much chemo or radiation will benefit. I am saying this on a personal experience. My uncle was diagnosed with GB stage 1V (higher stage than astrocytoma ) and he underwent surgery followed by chemo and radiation but it didnt help him much. He went for a new alternate treatment "SPMF" and really benefitted from it. He is doing well and going to office. He was given almost no hope by doctor's till he underwent the SPMF treatment. At this stage since it is grade 111 i think you should try out the SPMF treatment as it might control the disease. Yoy can visit the website and links for further information.

www.sbfhealthcare.com

links :

www.sbfhealthcare.com/research.html

www.sbfhealthcare.com/images/published/asno.pdf

www.sbfhealthcare.com/images/published/17.pdf

www.sbfhealthcare.com/images/published/Carcinogenesis.jpg

Hope it helps you.    Good Luck

JNGK12 said:

Thanks so much for the info... So glad it helped your uncle... I will definately check out the websites

Hi I am so sorry that you have to also battle this horrific disease. I was admitted to hospital last month (November 18th) with severe headaches and I was vomiting. I was actually on holiday with y wife when this started and I flew home as my condition was getting worse. An emergency craniotomy was performed and 2 weeks later my world fell apart: I was told I had a front right lobe Oligoastrocytoma Grade 3. My consultant explained that although some of the tumour had been removed, there was plenty left (it was huge: 8cm x 5cm) and I am booked in for further debulking surgery on 27 December. 

I wondered if anyone out there is following any particular diet? My wonderful wife is looking after me and has me on a strict fruit and veg diet with gallons of green tea. Has anyone read anything about the baking soda/maple syrup mix to help cancer as I am thinking about trying that?

jonmanc70 said:

Oligoastrocytoma Grade 3

Hi I am so sorry that you have to also battle this horrific disease. I was admitted to hospital last month (November 18th) with severe headaches and I was vomiting. I was actually on holiday with y wife when this started and I flew home as my condition was getting worse. An emergency craniotomy was performed and 2 weeks later my world fell apart: I was told I had a front right lobe Oligoastrocytoma Grade 3. My consultant explained that although some of the tumour had been removed, there was plenty left (it was huge: 8cm x 5cm) and I am booked in for further debulking surgery on 27 December. 

I wondered if anyone out there is following any particular diet? My wonderful wife is looking after me and has me on a strict fruit and veg diet with gallons of green tea. Has anyone read anything about the baking soda/maple syrup mix to help cancer as I am thinking about trying that?

the baking soda thing is not true.  Diet can help to some extent (avoiding large amounts of sugar is a good idea) but most consumables can't cross the blood-brain barrier and will not have an effect.  Be careful when using Dr. Google - there are a lot of websites that are just people speculating and that can contain false information.  You're better off sticking to legitimate medical websites and don't pay any attention to Wikipedia.