How many chances for chemo and radiation

I'm not familiar with anything especially specific to your scenario.

But from what I have gathered on here...

There are more than a few on here that have had concer return, chemo and even rads more than once, a few more than twice..., and some of those have been kicking around for 12-15 years or more...

I would go get a second opinion, preferably from a different facility.

Geeez, talk about giving a guy hope and psotive vibes... I might even run to another facility for that second opinion.

Best ~ John

Git thee to another cancer center.....there are other chemo drugs, and different types of radiation machines at the bigger centers....

p

Hi,

Join Oral cancer foundation forum. There are many who have had treatments for recurrence. Some have been around the block 3 or 4 times with the beast. best. don

I clearly can't know exactly what is happening with you nor do I want to play doctor.  Still I very specifficaly asked that question of the doctors at the Cleveland Clinic and they said yes that while second radiation and chemo is very rough and has to be done with great care it is doable, at least for the type of cancer I "had" - neck, stage IV Unknown Primary, HPV+ two lymph nodes involved. 

Surgery in addition might make perfect sense. 

Again I could be very off track and each case is different, but no way I would leave it at no chance without getting a lot of input.

Hope you find out something good and very soon.  Best to you.

hawk711 said:

Talk with HONDO

Pieter

 

Try to PM some of the folks who have had recurrence, like HONDO.  He had 2 rads that I know of.....

Good luck with this,

Steve

..and he too can possibly help.  I will add that I think a MAJOR CANCER CARE CENTER is the way to go.  When I got a "weird" scan that showed some issues in the lungs 8 months after my last rad I went to Seattle Cancer Care Allinance (ranked number 8 in the nation for cancer treatment). My team of docs who treatmed me I felt were very good, but when I asked what would the next step be if indded my "weird" lung scan turned out to be cancerous, it was as if they implied "you die" ...I knew then that though they meant well, I needed a back up team at a major treatment center. I now see both. In fact in July I go back for a routine exam to Seattle. 

My lung scan turned out to be infection related....but I will also add now that my current team knows I am being checked on and seen by SCCA in Seattle, they are much more attentive and a bit more probing. I think professional ego has something to do with that bc one of my current team docs (not with SCCA) asked me "why did you go to SCCA?"  I told him bc I did not like the resopnse your team gave me.  He said "well, I guess that is fair".

Keep us posted and go elsewhere!

Tim

I hear the Davinci Robot is a great tool.  And if your cancer of tongue is back and you are stage I or II that would seem to bode well for surgery, but I also hear now they have "radiation seeds" they can plant right in where they do surgery and it's a form of radiation direclty to a spot.  However Longterm or someone else more qualified than me might can add as to whether that is a true and better idea than traditional rads.