It's been an uphill battle

Diagnosed in 2008

Double Mastectomy with lymph node involvement

Had Chemo

Had Radiation

Mets to lung in 2013

Had lung biopsy

Accepted in Study

On weekly chemo drugs for over one year now

had sterotactic procedure

Last CT scan showed tumor is now a shell and scar tissue that I am told that over time will resolve.  There was no uptake in my CT scan, and the last Pet scan showed no uptake on the scan.

This has been a very hard battle.  The first time on Chemo/Radiation put me in a wheelchair I didn't have the strength to walk from one room to another.  But I survived this.

After the first chemo and radiation was stopped I appeared to do well but of course that crazy tnbc raised it's ugly head and I was then stage 4 tnbc with lung mets.

Everything I read seemed to say the same thing tnbc is hard to treat, tnbc gives you a few months to live, tnbc recurrent rate is very high, no one survives  tnbc.

I found this very scary BUT then I started hearing that Many Many people were surviving tnbc with mets (stage 4) with chemo and other procedures including alternative  treatments being used with chemo.

I did finally agree to have a port. I thank each of you for the information that you sent.  That information really helped me make a decision that I didn't want to make.

Now, here I am five years later from my first diagnosis and one year from my mets diagnosis.  I find it a little hard to do long walks but I can walk and I can drive without any problems.  I am having fewer side effects with the chemo this time and my labs seem to be staying up.  The only lab that they are concerned with is the one that shows that I am starving.  I really try to eat but I have lost lots of weight and I am told that the swelling I have is from low protein in my diet. 

I can sincerely tell you that if I can survive the last 5 years . . . So can you!  I never thought that I would be here 5 years after my first diagnosis

BUT HERE I AM! 

I turned into a fighter for myself.  If I feel that I should do something I do research and decide if that is what will (or might) help me.  Of course I know that not all treatment will work for me just like not all antibiotics work for everyone.  But you will not know unless you try so I try and I try and if something doesn't work I will try something else.  My Friend who is the chief of a cancer medical center told me not to do more than three kinds of treatment at a time and I agreed with him and have followed those instructions.

The treatment that I am on now "seems" to be keeping  the tnbc away.  If I had any recurrance of the tnbc then I would be taken out of the study but I am still in it. 

I am now one year past the tnbc stage 4 lung mets diagnosis.   Many of you have been inspiration for me . . .Double Whammy, Sirod, MsGebby and Gabe N Abby Mom.  I thought my battle was rough but yours sounds really hard but you gave me a reason to live.  Thank you for sharing your treatment and journey it really helped me . . . more than you will know.