Update, both lungs are involved ugh!

SIROD said:

Full Plate

Hi,

Your plate is indeed full.  I am so sorry about the need for lower lip and chin radiation.  I hope that goes well.  Sounds like you have a great thoracic surgeon to do the VATS.

Keep us posted.

Doris

Saying how sorry I am doesn't even seem to touch how I am feeling about your post.  Just so sorry Patti that this has happened.

I'll be praying for your treatments to work for you.

Kristin N said:

Sorry

double post

 

You've got so many prayers here Patti and I am adding mine to the list of pink sisters that love you and are here for you.

Hugs, Kylez

SIROD said:

Full Plate

Hi,

Your plate is indeed full.  I am so sorry about the need for lower lip and chin radiation.  I hope that goes well.  Sounds like you have a great thoracic surgeon to do the VATS.

Keep us posted.

Doris

I am so sorry.  I feel so bad for you and will be praying.

VickiSam said:

My thoughts and prayers

are with you.  So many Sisters in PINK have provide such valuable information, insight and proof that life goes on.  Best of luck and well wishes.

Strength, Courage and HOPE for a Cure.

Vicki Sam

Can't even find the words right now to tell you how sorry I am Patti.  You know you've got me and all of the others in your corner supporting you and praying for you.

I wish I could erase all of this from you, I truly do.

Please continue to update us and to come here for support.  There's a lot of love on this board for you!

Lex

Patti1967 said:

Thanks Doris:)  I think what

Thanks Doris:)  I think what complicates matters with me is the fact that the "slight" emphysema I was told I had four years ago is now being called extensive....I am no longer a smoker and they cannot figure out why that has gotten so bad during these past 8 or 9 months as well. The scans in Sept showed just slight changes in that not enough to even warrent treatment of any kind.   This surgeon is the very top of the top at U of C center for advanced medicine in that area.  It's not only the numerous noduels, like that word better then tumors...its the fact that my lungs are in horrible shape now altogether.  I am ending up being a very strange case....

I saw my head and neck cancer surgeon today, and my rad onc next Wed to be fitted for my mask for my 36 rounds of radiation I will be having to my face )lower lip and chin).  I will be starting those treatments on May 28.  They are planning to just add the lung met treatment after they finish the VATS or whatever they end up doing. 

It does help me Doris to know how you have done:), cancer is hell on earth.

Hugs!!!!!!

Patti

I am sending lots of hugs your direction today! 

SIROD said:

Going on 5 years with both lungs, pleura, ribs.....

Dear Patti,

I was dx in 1994, cmf, then Tamoxifen, regional recurrence in '99, two rib lesions in 2000 - Arimidex kept me NED until 2008.  A dry cough led to a ct scan where both lungs were involved, along with the pleura (lining) and a pleura effusion.  I also had a PET scan that also found celiac nodes involvement and confirmed both lungs and pleura area.  I had a VATS and in the thoracic surgeons notes stated: "I was studded with tumors in both lungs, pleura.  The effusion was drained.  Tumors showed I was stil ER+ PR and HER2 negative, I began using Faslodex at 250 mg.  The next ct scan 7 months later showed progression so I went on Femara and for the next 2 years I was stable.  In 2011, progression and I decided to try a break in order to reboot.  This new theory was approved in the 2008 SABC Symposium.  I didn't use estradiol but my own estrogen to allow the cancer to grow.  The ct scan in the 7 month showed the cancer was very active again, so I went back on Femara (rebooting in hopes to use the drug longer), my next ct scan showed more progression so I went back to Faslodex now approved by the FDA for 500 mg.  My oncologist didn't think it would work but my next scan was stable, my next 3 months ct scan showed continued stable with some regression.  About 5 months later, I had the dry cough, shortness of breath and wheezing.  I asked for a ct scan that showed that my right lung, pleura and ribs were stable but my left lung showed increase in size and numbers.  I had used all the hormonal drug therapies except one.  To soon to use that one, it would have failed had I tried it now.  Might work later down the road.  After 18 years of using hormonal drug therapies, I went back to chemo.

I always stated I would never do it as I read that women like me do better with hormonal but.... I could do nothhing or do chemo.  I am on Taxol since February.   When I say it is in both lungs, I mean they were everwhere including the lining (Pleura) that goes around the lungs and it will be 5 years next month since that awful ct scan.

I stayed overnight after the VATS and left the following day.  I was back to work 3 days later, 2 days were my days off.   They ran a series of tests on me too.  I passed them all and they are all the normal ones that are given prior to any type of surgery.  If this surgeon doesn't want to operate ask for someone in his practice that will.

I hope my story helps you.

Best to you,

Doris

Dorris Your story is so uplifting, you are real warrior

Alexis F said:

Enjoy your walk on the beach

Enjoy your walk on the beach today Patti! 

Lots of hugs,

Lex

I'm praying for a Miracle that you're able to have surgery.Throughout my life praying has got me through sickness, hard times and others lives have been saved. Prayer gets me through life.I had a out of body experience after the birth of my oldest son. Those  gates were opened and HE was asking me to Come.I said I can't die.I just had a baby boy that needs me.I woke up and was alive. It wasn't my time. i've lived 45 years since that and with other serious illnesses and trauma.I Prayed.

After the situation I had I was talking to a classmate.I told her about my experience.She said it was the drugs.No it wasn't I only was taking a antibiotic.No pain meds. A miracle happened.This is what I wish for you.And you see your grandson graduate.My experience was 45 years ago.I now have seen all but 1 grandchild graduate and have a new great grandson.

Believe in Miracles.I will pray for you that it happens.My prayers are usually answered.  

Lynn Smith