If you have triple negative questions....

Tnbc_survivor
Tnbc_survivor Member Posts: 2
in Breast Cancer #1

If you have questions about triple negative breast cancer or genetic testing just message me and ask.

I can help with questions regarding treatment, surgeries, general fears or concerns. 

Wether you have it, concerned you have it, or want to help someone else who does.

Prayers and Positive thoughts for all!!!

Comments

  • Ligia Almeida
    Ligia Almeida Member Posts: 1
    #2
    fears doubts...

    I am from Brazil, i´m not that proficient in english, i´m sorry if i don´t understand quite well how to use this space... but i will present my doubts...

    I am 49 years old, was diagnosed with early-stage TNBC (6mm), no node involved in october 2012. My mother had breast cancer at the same age but it was hormonal healed.

    Should i believe my case to be hereditary? Is it worth having BRCA testing for me? I'm afraid to have another lump in the breast or ovaries.

    I had a quadrantectomy and after the surgery 4 benign cysts appeared in the same breast. I have never had cysts befor. I'm afraid of them becoming malignant.  Would it be better  to have the cysts removed,   or the whole breast?

    Thank you

  • Rague
    Rague Member Posts: 3,653 Member
    #3
    There are many TNBC Survivors here!

    There are many TNBC Survivors at this site - many with years 'under their belts'.  One needs to remember that TN is only part of the DX - The type  (IBC, DCIS, IDC, LCIS, ILC) is important as the different types of BC have different prognosis.

    Certainly you have learned much on your journey but as with all of us - no matter what our individual DX is there is no way that any of us have learned 'everything' or can tell anyone else exactly what their journey will be or how to handle it as we are each wonderfully unique individuals.  There is no "One Size Fits All" when it comes to these Monsters who are all called Breast Cancer.

    Winyan - The Power Within

    Susan

  • Tnbc_survivor
    Tnbc_survivor Member Posts: 2
    #4
    Ligia Almeida said:

    fears doubts...

    I am from Brazil, i´m not that proficient in english, i´m sorry if i don´t understand quite well how to use this space... but i will present my doubts...

    I am 49 years old, was diagnosed with early-stage TNBC (6mm), no node involved in october 2012. My mother had breast cancer at the same age but it was hormonal healed.

    Should i believe my case to be hereditary? Is it worth having BRCA testing for me? I'm afraid to have another lump in the breast or ovaries.

    I had a quadrantectomy and after the surgery 4 benign cysts appeared in the same breast. I have never had cysts befor. I'm afraid of them becoming malignant.  Would it be better  to have the cysts removed,   or the whole breast?

    Thank you

    yes you will want to have

    yes you will want to have your BRCA status checked. Even though your mother was hormone positive and you are negative. BRCA related breast cancer can be either one. Triple negative breast cancers are about 15% of breast cancer and 80% of that 15% are triple negative. If you are BRCA positive Its a good idea to have a double mastectomy and an oophorectomy (ovary removal)... Hope this helps.

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