Not looking good for me but I'm not done fighting!

jamiegww said:

Debbie: I do blame my neuropathy on the Ixempra.

If it gets worse with the Halaven I will definitely let them know because I don't think I can handle it getting worse.  Thank you for sharing your experience with the drug.  So far the worse side effect is constipation.  I hope Ixempra works for you.  I thought it was almost as difficult as Adriamycin (maybe worse).  I remember breaking out in bumps all over my head and it took them a long time to heal.  I also got a bad case of oral thrush in my mouth.  My onc lowered the dose once or twice and it got a little easier to tolerate.  I was only on it for about five months because my cancer got worse while on it.  Unfortunately it was while on Xeloda alone that it spread to my liver.

I had another Thorcentesis this afternoon.  They drained 1700 ml this time.  I felt like a pin cushion.  They couldn't use the port because of the leak in the tube so it took four people trying two times each before they finally got an IV to work.  At least I was able to convince them to let me go home after just two hours in recovery instead of the usual four hours.  I hope I can do as Doris has suggested and get something put in that I can drain myself because I can't keep doing this.  I don't understand how I went from never having this done before to suddenly I've had it done three times in less than one month.  I told the radiologist who did the procedure that I should have a "frequent fluid card".  He promised to check into that.  Those people are so nice which at least makes it bearable.  I sure hope I can sleep tonight.  I had steroids before chemo yesterday and I didn't get much sleep.  I'm sure you know what I mean.

I wish you the very best and hope you have a wonderful Mother's Day! 

HUGS!!!

Jamie  

hi Jamie
Hope the Halaven works well for you. That was a hard one for me from the beginning. I was on it for aboutn6 months but it was causing neuological issue, like falling over and losing days at a time. Had to get a wheel chair. Kept telling him something was wrong so they dod an mri on my brain which showed changes in the white matter in my brain and increased non cancerous lesonswhichnwere consistant with parkinsons which my endocrinologist suggested about 2 years prior and ran some tests right befor the mets diagnosis, and this was the start of my neuropothy. But after being back on this Adiamycin I dont know which is worse. I agree This is my second time on it and it isnt any better the second time around.
Amazing how well some do on one chemo and the next cant to
I ony hope it gets better for you.
Hugs and prayers,
Carollerate it all