NED!! after 4 rounds of Chemo (MMMT)

ConnieSW said:

Wonderful

Give your mom a hug of congratulations from me.  Pat yourself on the back while you are at it.  I know your support was as invaluable to her as my daughter's was to me.

Thanks a lot Connie for your support...I am sure that your daughter's support was invaluable because she knows that nothing in this life replace the mother

jazzy1 said:

I believe

Wonderful news for your dear mom!!  I as well was diagnosd with MMMT, stage 3C, as found in 1 pelvic node.  Had chemo (carbo/taxol) and sandwiched between was 33 rounds of external radiation.  What stage is your mom?

Definitely agree this cancer is very aggressive, as to why we have to hit it hard, especially at the beginning.  

Enjoy dancing with NED and hope and pray for many more years in this club~

Jan

 

 

 

 

Thanks Jan...The doctor informed us that its early stages of MMMT (I or II) since it was confined in the uterus (1/3 wall invasion and lymphnodes were clean)

I read your story and its really encouraging to know about your 3.5 years journey and I wish you dance with NED all your life

I believe said:

Thanks a lot Jan

Jan - Thanks a lot for the great support. I feel much better....We will wait for the CT scan results, trust the Dr and plan the way forward.

My mom is 73 years old she's overweight,  has cholesterol, pressure, and diabetes but she is very active and always working at home..

I will keep you updated about the results.

Thanks

 

 

Jan - You were right I jumped into false conclusions Yesterday we received the CT scan results and it turned out that everything is normal...Its really a great feeling and I thank GOD for this...

keeping you in my prayers and wish you all a life full of NED

jazzy1 said:

YAHOO!

You know cancer is sneeky and we as cancer patients tend to think "it's back" with every ache and pain.  Part of the deal I'm sure!!  

Did doc say why the pains and sleepless nights?  Possibly due to her other health issues, but tend to go back to the cancer having recured.

Happy for you and your mom...keep the faith this soon shall pass

Hugs,

Jan

Hi Jan,

The Doc said that the results are very good and the pain could be a muscle strain especially that she's feeling much better now after 2 week. In the first 2 to 3 days she used to feel severe pain by only breathing and couldn't sleep well at night.

The next MRI is in July and I will keep you updated.

Thanks a lot for your great assistance

jazzy1 said:

Opinion

Great to hear it's nothing really...probably just gettin' old, as that's the response my docs always tell me if NOT CANCER.

Hang in there,

Jan

  

Today, I recieved my mother's MRI report and the result is a lesion of 4,5 cm on the liver...Tommorow we have an appointment to show the report to the doctor..It seems the beast is back again and the pain she felt in the liver back in April is because of the lesion although the CT scan results were clean back then.

It's a huge cross to handle and don't have the energy to continue living with this fear and  thinking that my will mom will have to suffer more and more

ConnieSW said:

Wait

Don't give up yet.  You need to get the whole picture.  There is much to take pleasure in.  Your baby is due very soon?  New life brings such joy.

 

Does your mom come to this site?  Maybe reading our stories of the continuing fight to beat Chester, as one of our beloved members called her cancer,will help bolster her courage.

Thank you Connie, My wife started the 9th month a week ago so the baby is due anytime now

My mom doesnt use the computer but I will make sure to tell her about encouraging stories here.

Pray for us.

Thank you

RoseyR said:

So Sorry but Don't Give up Hope!

 

Like Jan, I too was diagnosed with MMMT uterine cancer three years ago (stage IB, 60 percent invasion of uterine lining but clean lymph nodes), yet I was prescribed six rounds of carboplatin with taxol and 25 pelvic radiation treatments which is pretty standard for MMMT uterine cancer; in fact, many women have additional treatment (vaginal radiation, called "brachytherapy").

Because I saw in "integrative doctor" during treatment (an M.D. who prescribes supplements to protect the body and immune system during treatment), I suffered not a day from treatment beyond my lost hair; I never lost appetite or developed neuropathy.  However, my hemoglobin did of course fall low enough toward the end of treatment to warrant a transfusion (not unusual), since which time I have felt increasingly well.

Because, however, uterine carcinosarcoma is an aggressive tumor, I did all the research I could on the disease and became friends iwth a few women on this web site, some of whom consulted naturopaths after finishing conventional cancer treatment.  One is doing so well four years after a diagnosis of stage 3C ovarian serous cancer (very aggressive) that I asked who her naturopath was and became increasingly impressed with the treatment she was gettting from this naturopath--herself a longterm survivor of serous ovarian cancer, diagnosed when she was in medical school.  (She refused chemo and radiation, taking herbs and natural supplements, earned a master's degree in Chinese medicine and degree in naturopathy and, married to a biochemist, is treating women all over the world with serious and recurrent uterine and ovarian cancers.)

If this were my mother, I would do two things:

First, allow her to make her own decisions.  It IS her decision, not anyone else's, whether to pursue more conventional treatment.  Being "forced" or pressured into already stressful treatment cannot be good for her immune system.  

Secondly, do my own research on alternative (or at least, complementary) treatments.  Alernative treatment would take her to a naturopath specialiing in cancer, such as Nasha Winters (namastehealthcenter.com), who would order many bloood tests and analyze her blood chemistry, prescribing dietary moves and supplements to get her body chemistry ("terrain") back into order to resist a growing tumor.

Complementary therapy would consult an integrative doctor who, if your mother goes ahead with grueling conventional treatment (chemo and radiation) would prescribe supplements to help her body resist its ravages.

I would not have flown all the way from Phila to Colorado last summer had I not been so impressed with Dr. Winters' approach to the disease, her intelligence and articulacy, and glowing reports from two women wealthy enough to have had treatment at the "best" centers such as Sloan Kettering who concluded that Nasha's treatment was far better.

I would contact the Namaste Health Center ASAP and email a report of your mother's current status (73 is NOT very old; she should be able to fight this disease IF she has enough nutritional and other support!).  Once it is in the liver, of course it is quite serious.  But if anyone can help to reverse that course, it is Nasha Winters.

In the meantime, have your mother fortify her intestinal flora by taking a scoop of ProGreens in a glass of water before breakfast each morning and take 500 mgs of curcumin, with meals, three itmes a day.  A good brand is Life Extension's BioCurcumin; another is Pure, availabe online. I migth also start her on three drops of Vitamin D a day ("Liqui-D" available online) until her blood levels are measured; most cancer patients are norribly deficient in this vital vitamin.   She should take the D right after dinner.

Dr. Winters is so swamped with new patients that she now sees them at weekend retreats and is hosting one in October in NOrth Carolina.  Yes, it's expensive--about fifteen hundred dollars for new patients for the entire weekend.  But she will cover a huge amount of information on diet, body chemistry, and how to get the blood tests they need; lovely meals and lodging are included for the weekend.

I would first call her office and explain the urgency of your mother's situation, however.

Another medication that could help your mother but must be prescribed by an integrative doctor is LDN (low-dose Naltrexone), which has nearly no side effects and has helped to slow the growth of several major kinds of cancer.  The ideal dose is 1.5 mgs a night to start, gradually increased to 4.5 milligrams a night before bed.  I've been on it for a year and feel great.

Please get Dr. David Schreiber's book Anti-Cancer, in the meantime, for nutirional guidelines.

 

Best,

Rosey R

 

 

 

 

 

 

 

 

Thanks a lot Rosy for the valuable and detailed information.

When the doctor saw the results of the MRI (lesion of 4.5 cm in segments VII and VIII of the liver) he was very surprised and he said that something is not normal because in May the results of the CT scan were clean and the MRI report was vague because it mentioned that the liver size is normal and a lesion of suspicious nature is on the liver. In addition, the recurrence of the MMMT in the liver is not very common

THe doctor asked us to do an echo for the liver before doing a biopsy and we did. The results were that the liver size is normal and they are not in a position to be able to clearly see or comment on the lesion.

After discussing the results of MRI and Echo with different doctors, they reahed a desicion that a biopsy is not needed at this point of time especially that there are no strong signs and symptomps that it is a liver cancer and it could be anything.

We asked the doctor if he want us to repeat the MRI again and he said no it want give him further details and its better to do it after 2 months period or do a PET scan now.

We are hesitated now as we don't want to stay worried for 2 months period to wait for the next MRI and at the same time I am worried about exposing my mother to the PET scan radiation especially that in the last year she has done 2 CT scan, 1 Echo and 2 MRIs.

I am not sure if someone on this site had similar case..

Thanks in advance for any thoughts or guidance

I believe said:

Thank you

Thanks a lot Alexandra and Jan for your comments.

I will try to convince my mother to do the PET scan now to avoid any surprises in the future. I will keep you updated about the results of the PET scan.

Following the 4.5 cm lesion found on my mom's liver in the last MRI done 3 weeks ago, we recieved today the whole body PET scan results and it is NED!!!!! and the liver is normal.

God answered to my prayers !! and this week was full of great news, first that my wife gave birth to a wonderful healthy baby boy and my mom's NED results of the PET scan.

I dunno how this lesion appeared suddenly on the liver in the MRI and disappeared in the PET scan but what I know is that my mom is healthy and enjoying NED after 1 year of being diagnosed with MMMT.

keeping you all in my prayers!!