Tongue Cancer - Stage 1

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Comments

  • dalapathys
    dalapathys Member Posts: 20
    #42
    RubyRuby said:

    Congratulations
    Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

    Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

    Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

    I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

    Please let your friend know that only a few more weeks, she will be back to herself again.

    Ruby

    Thanks
    Thanks Ruby. She is in ICU now and would be transferred to room tomorow or day after tomorrow. I'll keep in touch.
  • jreyes
    jreyes Member Posts: 1
    #43
    I had Stage 1 squamous cell carcinoma on my tongue
    Hi Dalapathy,

    I was diagnosed with Stage 1 squamous cell carcinoma on my tongue. I had a tumor the size of a nickel towards the middle rear on the right side of my tongue. I also had a white "milky cloud" cancerous growth on the same side further to the front. My ENT referred my to a few University hospitals in norther California where we live. I research the three major cancer centers and chose Stanford because of Dr. John Sunwoo. I am now 3 months past my surgery in July 2012. They had a pathologist in the OR working with my surgeon Dr. Sunwoo biopsying and helping him get EVERYTHING eradicated from my tongue. They also did a neck dissection because they found enlarged lymph-nodes during my PET scan. They removed all the lymph-nodes on my right side and biopsied everything in my neck region. I am happy to report that they removed all of the cancer cells in my tongue and my lymph-nodes and neck region biopsies all came back negative! The team at Stanford has a tumor board they call it. They met and discussed all of my results and determined that I will not need radiation or chemo. I was very luck, but I also credit the staff at Stanford for their team work and aggressive educated approach.

    Post surgery I woke up and was highly determined to not lay down and take this. I started walking around the unit the next day. I truly believe a key to you healing is your attitude. It is very easy to get down, but you have to stay positive!
  • bmansell16
    bmansell16 Member Posts: 2
    #44
    jreyes said:

    I had Stage 1 squamous cell carcinoma on my tongue
    Hi Dalapathy,

    I was diagnosed with Stage 1 squamous cell carcinoma on my tongue. I had a tumor the size of a nickel towards the middle rear on the right side of my tongue. I also had a white "milky cloud" cancerous growth on the same side further to the front. My ENT referred my to a few University hospitals in norther California where we live. I research the three major cancer centers and chose Stanford because of Dr. John Sunwoo. I am now 3 months past my surgery in July 2012. They had a pathologist in the OR working with my surgeon Dr. Sunwoo biopsying and helping him get EVERYTHING eradicated from my tongue. They also did a neck dissection because they found enlarged lymph-nodes during my PET scan. They removed all the lymph-nodes on my right side and biopsied everything in my neck region. I am happy to report that they removed all of the cancer cells in my tongue and my lymph-nodes and neck region biopsies all came back negative! The team at Stanford has a tumor board they call it. They met and discussed all of my results and determined that I will not need radiation or chemo. I was very luck, but I also credit the staff at Stanford for their team work and aggressive educated approach.

    Post surgery I woke up and was highly determined to not lay down and take this. I started walking around the unit the next day. I truly believe a key to you healing is your attitude. It is very easy to get down, but you have to stay positive!

    JReyes,
     
    Congrats on the

    JReyes,

     

    Congrats on the outcome. I am one month out and my story is very similar to yours. My tumor was Stage 1/2 and I had the big juicy lymph nodes as well. Because of my insurance, I couldn't do Stanford or UCSF, but the Oakland Kaiser with Dr. G is considered one of the finest for this type of cancer. My Lymph Nodes were clear as well. I was back to work two weeks after surgery and I am 100% back to normal. No radiation, no chemo...we are the lucky ones.

    Dalapathy,

    I hope everything turned out well. From the date of this, it looks like about the same time I was diagnosed, so I hope your friend rushed in and got the surgery. It wasn't so bad. A little scary, but I have had a few surgeries before and I think that makes it easier.

     

  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #45
    bmansell16 said:

    JReyes,
     
    Congrats on the

    JReyes,

     

    Congrats on the outcome. I am one month out and my story is very similar to yours. My tumor was Stage 1/2 and I had the big juicy lymph nodes as well. Because of my insurance, I couldn't do Stanford or UCSF, but the Oakland Kaiser with Dr. G is considered one of the finest for this type of cancer. My Lymph Nodes were clear as well. I was back to work two weeks after surgery and I am 100% back to normal. No radiation, no chemo...we are the lucky ones.

    Dalapathy,

    I hope everything turned out well. From the date of this, it looks like about the same time I was diagnosed, so I hope your friend rushed in and got the surgery. It wasn't so bad. A little scary, but I have had a few surgeries before and I think that makes it easier.

     

    Hey b.....

    Welcome to the board. The poster you responded to only posted once, and that was back in October of last year.  Sometimes these older threads get dragged back to the top, but they don't get as much attention as the newer threads do.  I have no  idea what happened to the poster you responded to.  Hopefully they continue to do well and decided they didn't need this forum.  Anyway, welcome to the board.  Hope you continue to post.

     

    Pat

  • bmansell16
    bmansell16 Member Posts: 2
    #46
    longtermsurvivor said:

    Hey b.....

    Welcome to the board. The poster you responded to only posted once, and that was back in October of last year.  Sometimes these older threads get dragged back to the top, but they don't get as much attention as the newer threads do.  I have no  idea what happened to the poster you responded to.  Hopefully they continue to do well and decided they didn't need this forum.  Anyway, welcome to the board.  Hope you continue to post.

     

    Pat

    Thanks, I noticed all of that

    Thanks, I noticed all of that after I posted...Embarassed

  • mss3
    mss3 Member Posts: 2
    #47
    bmansell16 said:

    JReyes,
     
    Congrats on the

    JReyes,

     

    Congrats on the outcome. I am one month out and my story is very similar to yours. My tumor was Stage 1/2 and I had the big juicy lymph nodes as well. Because of my insurance, I couldn't do Stanford or UCSF, but the Oakland Kaiser with Dr. G is considered one of the finest for this type of cancer. My Lymph Nodes were clear as well. I was back to work two weeks after surgery and I am 100% back to normal. No radiation, no chemo...we are the lucky ones.

    Dalapathy,

    I hope everything turned out well. From the date of this, it looks like about the same time I was diagnosed, so I hope your friend rushed in and got the surgery. It wasn't so bad. A little scary, but I have had a few surgeries before and I think that makes it easier.

     

    Congrats!!! May i know how

    Congrats!!! May i know how long you were hospitialized. Is it 100% curable. How long it took for you to talk and to eat. 

    Please provide your comments.. Waiting for you reply

  • mss3
    mss3 Member Posts: 2
    #48
    NitaNita said:

    If..
    If it is not in the nodes then they say it's a 95% chance it wont come back. I will have my pet scans done every year and I have my 6 wk check ups to make sure if it does it is caught early. We all know its never a guarentee that it wont come back. If its caught early I really think she will be okay but she needs to have it taken care of so it doesnt spread! Good luck!

    Hi Nita,

    Hi Nita,

     

    How are you? 

    Is it 100% curable. 

  • Sabrina23
    Sabrina23 Member Posts: 103 Member
    #49
    Well Differentiated Squamous Cell Carcinoma

    Hi I am new to the board, but reading all the posts.  I recently have been diagnosed with Well Differentiated Squamous Cell Carcinoma Stage 1.  I have a glossectomy scheduled on June 3 with a neck dissection.  I am scared out of my mind.  I am a 57 year old women and this diagnosis came out of no where.  I had a little spot on bottom of tongue that worried me but I let it go and did not go to Doctor right away.  I am afraid of life expectancy being only less than 5 years is that true?  Will I be 100% cured.  So, far my CT scan of my neck came back clear not sure what that means.  I will have feeding tube and neck tube and need speech therapist they said after surgery as part of my recovery.  How long does the tubes stay in?  Is there a chance of reoccurence - what are my chances for living a normal life?  Please if you can tell my anything I would appreciate it all feedback is welcome.  Please keep me in your prayers.  My name is Kathy T.  

  • ERomanO
    ERomanO Member Posts: 323 Member
    #50
    Kathy, this discussion topic

    Kathy, this discussion topic is from 2013.  This happens quite often on here where people will reply to dscussions that are old and often get very few if any replies.

    Please start a new thread so that you will get some replies.  Go to the main page and click on "Add new forum topic".  If you need help send me a private message and I will help you. This forum software can be a little tricky to navigate, but with a little patience you can do it.

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