Dumb Question...

and what you're doing is very sensible.  You don't need to punish yourself but plenty of water is a good idea and so is going easy on alcohol and coffee.  It's wise to avoid all colas like the plague - no fizzy drinks, no sugary drinks, not too much in the way of fruit juices either (and only fresh fruit with no added sugar).  A glass of red wine a day is good for you but if you don't like it forget that.  Mostly plain old water is the best.

BLKJAK said:

I don't mind red wine.

I don't mind red wine. Perhaps as a treat now and then. I have never been a big drinker, so it's not much of a loss to me. I do miss the coffee though.

Red wine is on the menu then.  You don't need to lay off the coffee completely - I shouldn't talk about it since I guzzle the stuff all day and night, much more than is good for me!  I try to substitute other drinks for coffee to hold my consumption down - tea (though off green tea until we know more about its reaction with Votrient), lemon and ginger, camomile, peppermint, almond milk - there are many alternatives.

The really important thing is not to touch sodas.  The odd one once in a while won't wreck you but they shouldn't be part of your regular intake (and that includes 'diet colas').

Djinnie said:

This may sound strange but my

This may sound strange but my doctor has recommended drinking red wine in moderation, it is full of antioxidants.  Now I know living in France there is not a single French man who would consider drinking wine anything other than good for you. However when it comes from your health advisor how can I ignore it. 

All the best

Djinnie

Djinnie, this has been fairly standard medical advice for many years.

Texas_wedge said:

Coffee

Red wine is on the menu then.  You don't need to lay off the coffee completely - I shouldn't talk about it since I guzzle the stuff all day and night, much more than is good for me!  I try to substitute other drinks for coffee to hold my consumption down - tea (though off green tea until we know more about its reaction with Votrient), lemon and ginger, camomile, peppermint, almond milk - there are many alternatives.

The really important thing is not to touch sodas.  The odd one once in a while won't wreck you but they shouldn't be part of your regular intake (and that includes 'diet colas').

Two of my favorites! The problem I have with both of them, is what I eat and drink with them. I take my coffee with lots of cream and sugar. I just have never been able to stomach it without. I tried to switch to black coffee, but I just don't like it that way (which makes me wonder if it's the coffee I like, or the caffeine with sugar rush I'm getting!). Had to cut back on the coffee because of this. I still have it, but not every day and not twice a day like I used to.

Now the problem I had with red wine, was that I love to munch on cheese and nuts while I drink it. Salt and fat. The second problem I have with red wine, is that I'm rarely satisfied with 1 glass!

Both caffeine and alcohol do mess up your hydration, and alcohol screws around with your kidney's ability to manage the concentration of electrolytes in your blood. While thinking about this, I found this article and a few others helpful. http://pubs.niaaa.nih.gov/publications/arh21-1/84.pdf They describe there the effects of alcohol on blood levels of sodium, potassium, calcium, and phosphate, among others.

I don't completely abstain from them now, but I have drastically cut back. I have maybe a glass or two of wine a week at the most. Coffee, maybe 3-4 times a week. I have pretty much eliminated sodas, which wasn't hard for me. I used to be an iced tea fanatic. But I have had the same problem with tea that I have with coffee: I'm from the south and I like my tea Sweet. So, I've really pretty much stopped drinking iced sweet tea. I was taking in way too much sugar before.

I'm having to force myself to drink water. I hate the stuff. I link my avoidance of water and my diet to my kidney cancer (may not be accurate, but I know it wasn't good for me). So when I do drink a cup of coffee or a glass of wine, I make myself drink 2-3 glasses of water afterwards.

Oh, and I've eliminated salted nuts, salted chips, pretzels, and salted popcorn. I don't salt my food before I taste it either. In fact, I just keep my hand off the salt shaker these days. I used to salt everything. If I want to add something I add pepper or pepper sauces or other spices.

I agree with the advice to stay away from fruit juices, especially ones with added sugar. Also, dried fruits can be an issue. The problem with both is they are very high in calories for the small volume they take up. You can have them, if you have small amounts, but I have to be careful because I can't afford extra calories with my weight. Sugar is a problem for me.

Todd

todd121 said:

Coffee and Red Wine

Two of my favorites! The problem I have with both of them, is what I eat and drink with them. I take my coffee with lots of cream and sugar. I just have never been able to stomach it without. I tried to switch to black coffee, but I just don't like it that way (which makes me wonder if it's the coffee I like, or the caffeine with sugar rush I'm getting!). Had to cut back on the coffee because of this. I still have it, but not every day and not twice a day like I used to.

Now the problem I had with red wine, was that I love to munch on cheese and nuts while I drink it. Salt and fat. The second problem I have with red wine, is that I'm rarely satisfied with 1 glass!

Both caffeine and alcohol do mess up your hydration, and alcohol screws around with your kidney's ability to manage the concentration of electrolytes in your blood. While thinking about this, I found this article and a few others helpful. http://pubs.niaaa.nih.gov/publications/arh21-1/84.pdf They describe there the effects of alcohol on blood levels of sodium, potassium, calcium, and phosphate, among others.

I don't completely abstain from them now, but I have drastically cut back. I have maybe a glass or two of wine a week at the most. Coffee, maybe 3-4 times a week. I have pretty much eliminated sodas, which wasn't hard for me. I used to be an iced tea fanatic. But I have had the same problem with tea that I have with coffee: I'm from the south and I like my tea Sweet. So, I've really pretty much stopped drinking iced sweet tea. I was taking in way too much sugar before.

I'm having to force myself to drink water. I hate the stuff. I link my avoidance of water and my diet to my kidney cancer (may not be accurate, but I know it wasn't good for me). So when I do drink a cup of coffee or a glass of wine, I make myself drink 2-3 glasses of water afterwards.

Oh, and I've eliminated salted nuts, salted chips, pretzels, and salted popcorn. I don't salt my food before I taste it either. In fact, I just keep my hand off the salt shaker these days. I used to salt everything. If I want to add something I add pepper or pepper sauces or other spices.

I agree with the advice to stay away from fruit juices, especially ones with added sugar. Also, dried fruits can be an issue. The problem with both is they are very high in calories for the small volume they take up. You can have them, if you have small amounts, but I have to be careful because I can't afford extra calories with my weight. Sugar is a problem for me.

Todd

You can always substitute coconut milk half and half in your coffee for creamer.  It tastes almost the same.  Soy milk can work too - but to me it tastes awful.

BLKJAK said:

Crud....I was hoping for a

Crud....I was hoping for a more varied list of options. I really miss my coffee (with Splenda) and my Diet Mt. Dew. Oh well, maybe on my birthday to celebrate. I don't mind red wine, so I could slowly add that to my options. I am learning to like water more. What I find odd is that I used to like cold tap water. Now I find myself adding ice, which I never did. I guess everything is going to be different now. It beats dead though.

Beats Dead!

Haha. That's funny to hear you say it that way. I've been thinking that a lot since my diagnosis and surgery. It's what I tell myself all the time, and it works!

I've been learning that there are a lot of things worse than X (whatever X is, you name it).

So many things that beat being dead....having cancer, having one kidney, not being able to drink 3 glasses of iced tea a day, having to take pills every day, being tired, being nauseous, blah, blah...

Todd

todd121 said:

Coconut Milk

I tried coconut cream. Maybe I misunderstood you when you mentioned that before? I had trouble getting it to dissolve. You meant coconut milk?

I like soy milk, actually, but one problem with it is if the coffee is very hot, it cooks it and it curdles and separates from the coffee before I have a chance to drink it.

Sugar is the real problem. I really don't think artificial sweeteners are good for me, but neither is the sugar. I guess  I'm stubborn like a 3 year old, and if I can't get what I want, I just don't want anything!

Todd

Hi Todd,

Yes, I meant coconut milk - not creamer.  We just finished our last batch otherwise I would give you a brand name.

The problem with most creamers is that they usually contain carrageenan:

Carrageenan contributes to the reduction of certain liver enzymes (including the Cytochrome P450 complex which is critical for properly metabolizing most drugs including TKI's, etc.)

This is from nutritionist Ray Peat:

"When the bowel is inflamed, toxins are absorbed. The natural bacterial endotoxin produces many of the same inflammatory effects as the food additive, carrageenan.

Carrageenan produces inflammation and immunodeficiency, synergizing with estrogen, endotoxin and unsaturated fatty acids. Carrageenan has been found to cause colitis and anaphylaxis in humans, but it is often present in baby "formulas" and a wide range of milk products, with the result that many people have come to believe that it was the milk-product that was responsible for their allergic symptoms. Because the regulators claim that it is a safe natural substance, it is very likely that it sometimes appears in foods that don't list it on the label, for example when it is part of another ingredient.      

Carrageenan enters even the intact, un-inflamed gut, and damages both chemical defenses and immunological defenses. When it has produced inflammatory bowel damage, the amount absorbed will be greater, as will the absorption of bacterial endotoxin. Carrageenan and endotoxin synergize in many ways, including their effects on nitric oxide, prostaglandins, toxic free radicals, and the defensive enzyme systems. The continuing efficient production of energy is a basic aspect of metabolic defense, and this is interrupted by carrageenan and endotoxin. The energy failure becomes part of a vicious circle, in which permeability of the intestine is increased by the very factors that it should exclude.

Some other products that can contain carrageenan: apple cider; beer; hot dogs; prepared sauces; ice cream; baby formulas; chocolate milk; soy milk; sherbet; jam, jellies; cheese spreads; dressings; crackers; pastries; custard; evaporated milk; pressurized whipped cream; reduced fat meat products; processed meats; pates; diet sodas; toothpaste."

Djinnie's suggestion of using Stevia instead of sucrose (table sugar) is an excellent idea.  Still, it is always a good idea to try minimize adding sugar(s) to anything.  Most people have been "trained" to watch or limit their sodium (table salt) intake when they are concerned about their blood pressure. For cancer patients sugar can be a dangerous additive by virtue of its primary role in promoting inflammation and causing wide insulin spikes and the subsequent release of IGF1 (Insulin Growth Factor) and other tumor friendly hormones.  Not to mention its role in promoting metabolic syndrome (obesity, type II diabetes, non-alcoholic liver disease, etc.).

todd121 said:

Thanks

I'll try coconut milk. I shop in a Vietnamese/asian market so there are lots of coconut products available. I'll also try and avoid carrageenan, but you listed nearly everyone of my favorite foods. Lol. Well, not true. Occasional beer. Occasional processed meats. However, I'm certain it's in the Vietnamese ice coffee i drink 2-3 times a week which contains some imitation sweet cream that always upsets my stomach. Damn. I think I'm going to have to eliminate it.

I tried Stevia, but it doesn't dissolve easily and didn't seem to sweeten well. I do like the liquid sweetener Agave Nectar.

What do you think about the artificial sweetener aspartame? It contains phenylalanine, which is a natural amino acid, so I thought it might be a good sugar substitute. On the other hand, I thought it might be hard on the kidneys. However, I asked my nephrologist and he said it should be fine.

Todd

Hi Todd,

I should add that anytime I post information it should always be put in a larger context. I too often find that there are many foods that I have regularly enjoyed but now have to think twice about.  For example, I went out to purchase a new carton of coconut milk creamer for my coffe today. (The brand name turns out to be "So Delicious"). But to my chagrin I realized that I had not paid any attention to my own advice - as it contains carrrageenan too! Oh well. I do try my best to cut out this kind of stuff - but compromises can (and should) be made.  The goal is always to cut back - but it is not going to be a disaster if a small amount ultimately slips through.

Keeping that in mind I will now give you some information about aspartame.  Again, please understand that I am only a messenger.  Each person needs to decide for themselves just what to do with this knowledge.  The following comes from Dr. Terry Wahls, author of "Minding My Mitochondria":

"The artificial sweetener aspartame is also found in NutraSweet and Equal. For some people, monosodium glutamate (MSG) and aspartame can cause an increase in glutamate, which in turn can lead to excito-toxicity; damaging and eventually killing brain cells. Excess glutamate can also cause neurological symptoms like headache, fatigue, and unexplained, vague neurological symptoms."

MDCinSC said:

Belly up to the bar!

Its a full bodied Cabernet all around! One glass before retiring!

 

Sounds good to me ...always gives me a good nights sleep

Djinnie

MeMeJoy said:

What's a 'glass'?

I asked my doc about dietary restrictions having only one kidney and he gave me this long spiel about eating more naturally (like lean meat and fruits and nuts and berries and stuff) so I straight up asked if I could still drink wine (this girl loves her pinot noir) and he said it’s fine in moderation, 1-2 glasses p/week. But he never said how big a glass….

 

 The thing I’m going to miss the most is my sweet tea. I know I drink too much and cutting back would be good… but hey, I’m from the south, what are we without our sweet tea? lol

I gave up soda a few years ago, it was hard at first but honestly now I don't miss it. And when I do accidently have some I think it tastes awful.

 

I know what you mean, I can usually get about half the bottle in my wine glass. I bought them in Texas say no more....

All the best 

Djinnie