OMG Brain mets!

2

Comments

  • Stabler
    Stabler Member Posts: 51
    #22
    So sorry to hear the news. 

    So sorry to hear the news.  My thoughts and prayers are with you. 

  • Sara Zipora
    Sara Zipora Member Posts: 231
    #23
    Special thoughts and prayers from afar

    We are in South Africa for r&R after clean PET, but could not stay away from OUR site!

    So sad to hear your traumatic day, but so glad to hear you are dusting yourself off and starting all over again!

    All the best, Warmest ((((hugs)))) to you and Rudy, good ole Sherrif is sending Chester alimping home!

    Sara

  • minniejan
    minniejan Member Posts: 88
    #24
    thinking of you

    I too am thinking of you and praying.  I lurk on this site, sometimes more often than others, and try to keep up with everyone from the last couple of years, and remember some of the cyber help you gave me and others in the past, wish there were more we could do.  Please know we are all pulling for you!  MinnieJan

     

  • nempark
    nempark Member Posts: 681
    #25
    BEILA

    WOW !!!!!!!!!Never thought I would hear you mention something from the Scriptures, Quoting Obama's opening speech, " RUNNING THE RACE WITH ENDURANCE, since you mentioned before that you do not believe.  Anyway, It is commendable that you can reiterate this for Daisy.  Hope you are doing better.

  • nempark
    nempark Member Posts: 681
    #26
    My chest hurts

    My chest hurts just thinking of this ugly disease. Continue the race of endurance.

     

  • survivingsu
    survivingsu Member Posts: 134 Member
    #27
    daisy366 said:

    1st treatment down

    It was not as bad as radiation I had on my neck in 2010. I was on open table with my Darth Vader mask on. Machine flashed blue light from above and rotated to each side. Done within 10 min.

    another experience I never wished I had!

     

    Thinking of you today

    Hi brave one,

    How kind you are to share your story & adventures with others.  I am sending all good wishes that our current times with new technology will pay off big time for you!  The Darth Vader mask must have been a bit scary.  I bet those 10 minutes were the longest 10 minutes ever!

    Keep up kicking Chester,

    Susan

  • daisy366
    daisy366 Member Posts: 1,458 Member
    #28
    nempark said:

    My chest hurts

    My chest hurts just thinking of this ugly disease. Continue the race of endurance.

     

    30% done with RT

    Continue to get daily radiation. I will see rad onc this week. Just read scary stuff on brain cancer site.

    i'm preparing to die. do you ladies want to hear the journey? 

    Thanks for you continuing love & concern.

    mary Ann

  • NorahS
    NorahS Member Posts: 92
    #29
    daisy366 said:

    30% done with RT

    Continue to get daily radiation. I will see rad onc this week. Just read scary stuff on brain cancer site.

    i'm preparing to die. do you ladies want to hear the journey? 

    Thanks for you continuing love & concern.

    mary Ann

    Very sad to read your post...

    ...but it is your journey and they are your feelings. 

    I'm holding out hope that your rad onc has some good news for you this week.

    And yes, we want to hear from you as much as you are able to get here to tell us. On this site, we support each other always.

    Sending much hope and love your way....  

     

     

     

     

  • jazzy1
    jazzy1 Member Posts: 1,379
    #30
    daisy366 said:

    30% done with RT

    Continue to get daily radiation. I will see rad onc this week. Just read scary stuff on brain cancer site.

    i'm preparing to die. do you ladies want to hear the journey? 

    Thanks for you continuing love & concern.

    mary Ann

    Mary Ann

    So much about life is scary.  I'm right with you thru this crap and hoping you can keep up the positive thoughts and endurance.  I'd love to suggest you don't read things about the cancer, but then  again I know I'd be doing the same things....humans are so curious.

    What are you thinking about your journey????  Unload .... we're all here for you.

    Love always,

    Jan

     

  • survivingsu
    survivingsu Member Posts: 134 Member
    #31
    daisy366 said:

    30% done with RT

    Continue to get daily radiation. I will see rad onc this week. Just read scary stuff on brain cancer site.

    i'm preparing to die. do you ladies want to hear the journey? 

    Thanks for you continuing love & concern.

    mary Ann

    You have buddies...

    I echoe what NoraS and Jan wrote.  I'm thinking of you & have my very best wishes for you.  Please know you are not alone, you have a whole lot of friends here.  And yes, I'd stop looking up info on the Internet - it's out-dated and doesn't reflect latest technology or individuality. 

    Keep kicking chester,

    Susan

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #32
    survivingsu said:

    You have buddies...

    I echoe what NoraS and Jan wrote.  I'm thinking of you & have my very best wishes for you.  Please know you are not alone, you have a whole lot of friends here.  And yes, I'd stop looking up info on the Internet - it's out-dated and doesn't reflect latest technology or individuality. 

    Keep kicking chester,

    Susan

    Time

    Maryanne, I hope the radiation buys you more quality time but no matter what, do not even think about not keeping us as part of your journey.  You have given so much of yourself to others now you must allow us to help support you.  Obviously from all the responses your posts generate, you must know how loved you are.  I think about you so much.  I hope you can feel it.

  • sunflash
    sunflash Member Posts: 197 Member
    #33
    My dear Mary Ann,
    I'm so sad

    My dear Mary Ann,

    I'm so sad to read your post. You always have and will always remain a role model of mine since starting on this journey.

    I know life isn't fair, I get that, but somehow this brings the unfairness home to me even more. I hope you know and feel all the love and support we have for you here.

    Please continue to come here and let us help you through this.......we want to share our love for you in any way we can. I wish I could reach through this computer screen and give you a big hug and physically be there for you. But since I can't, I want you to know I'm here the best and only way I can.

    You're in my prayers and will continue to be so. Please let us know how we can help.

    Sending all my love...........

  • daisy366
    daisy366 Member Posts: 1,458 Member
    #34
    sunflash said:

    My dear Mary Ann,
    I'm so sad

    My dear Mary Ann,

    I'm so sad to read your post. You always have and will always remain a role model of mine since starting on this journey.

    I know life isn't fair, I get that, but somehow this brings the unfairness home to me even more. I hope you know and feel all the love and support we have for you here.

    Please continue to come here and let us help you through this.......we want to share our love for you in any way we can. I wish I could reach through this computer screen and give you a big hug and physically be there for you. But since I can't, I want you to know I'm here the best and only way I can.

    You're in my prayers and will continue to be so. Please let us know how we can help.

    Sending all my love...........

    Blessed

    I'm blessed to have each of you. Thank you so much. I will continue the journey and pray God gives me some relief. Good news is such a welcome gift for all of us.

    I see palliative care team tomorrow and will find out why they made me PRN at last visit- after I decided to discontinue antidepressant that has fatigue as side effect. I wonder if I pissed someone off. But Onc said "no way" and I'll discuss tomorrow. What a way to treat a terminally ill patient! I was too shocked to address at the time.

    then Wed I see rad Onc with more questions. Why 20 treatments vs. 15. Etc.

    Mary Ann

  • Sisters three
    Sisters three Member Posts: 165 Member
    #35
    daisy366 said:

    Blessed

    I'm blessed to have each of you. Thank you so much. I will continue the journey and pray God gives me some relief. Good news is such a welcome gift for all of us.

    I see palliative care team tomorrow and will find out why they made me PRN at last visit- after I decided to discontinue antidepressant that has fatigue as side effect. I wonder if I pissed someone off. But Onc said "no way" and I'll discuss tomorrow. What a way to treat a terminally ill patient! I was too shocked to address at the time.

    then Wed I see rad Onc with more questions. Why 20 treatments vs. 15. Etc.

    Mary Ann

    Your an encredible lady....

    I wish I had all the right words that could possibly help this situation but find myself falling way short.

    Your loved and have so many people who wish they could take this from you. Hang in there and keep reaching out to the team. 

    I just looked up PRN and it means take as needed, maybe there isn't an issue there.

    I hope you get your walk in today, maybe Rudy can go with you.

     

    Lisa

  • Sisters three
    Sisters three Member Posts: 165 Member
    #36
    Sisters three said:

    Your an encredible lady....

    I wish I had all the right words that could possibly help this situation but find myself falling way short.

    Your loved and have so many people who wish they could take this from you. Hang in there and keep reaching out to the team. 

    I just looked up PRN and it means take as needed, maybe there isn't an issue there.

    I hope you get your walk in today, maybe Rudy can go with you.

     

    Lisa

    Mary Ann!!!! New nurse for you!

    imageShe comes with a sterling recommendation!

  • Cindy Bear
    Cindy Bear Member Posts: 569
    #37
    Thinking of you

    and hoping and sending big cyber hugs your way. Yes we want to be with you on this journey , every step of the way. 

  • laura25
    laura25 Member Posts: 181 Member
    #38
    daisy366 said:

    Blessed

    I'm blessed to have each of you. Thank you so much. I will continue the journey and pray God gives me some relief. Good news is such a welcome gift for all of us.

    I see palliative care team tomorrow and will find out why they made me PRN at last visit- after I decided to discontinue antidepressant that has fatigue as side effect. I wonder if I pissed someone off. But Onc said "no way" and I'll discuss tomorrow. What a way to treat a terminally ill patient! I was too shocked to address at the time.

    then Wed I see rad Onc with more questions. Why 20 treatments vs. 15. Etc.

    Mary Ann

    Mary Ann

    Please after all you have done for me and the other women on this site, don't stop writing because you don't think we want to hear.  If I could come through the screen and hug you I would.  

    Stay strong Mary Ann,  we all love you so much!

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #39
    daisy366 said:

    30% done with RT

    Continue to get daily radiation. I will see rad onc this week. Just read scary stuff on brain cancer site.

    i'm preparing to die. do you ladies want to hear the journey? 

    Thanks for you continuing love & concern.

    mary Ann

    I have not posted in a while

    I have not posted in a while but had too.  This so hurts to hear your news.  Praying for you and Rudy to get through this time. Hopefully the onc drs will find something to stop Chester for good.  This site is for all news and journeys the great, the good and the not so good.  The ladies on here are fantasic for all news.  We are our on little family and weep for joy and cry the tears of sadness when we need to.  This is a journey that we all have to take sometime but I pray that yours takes a longer one so that you can remain with us.  Praying for the right treatment and for continued strength for you.  May God Bless you. trish

  • Ro10
    Ro10 Member Posts: 1,561 Member
    #40
    daisy366 said:

    30% done with RT

    Continue to get daily radiation. I will see rad onc this week. Just read scary stuff on brain cancer site.

    i'm preparing to die. do you ladies want to hear the journey? 

    Thanks for you continuing love & concern.

    mary Ann

    Mary Ann, thinking of you

    Glad you are 30% done with your radiation.  Glad you are tolerating them okay.  I continue to pray that they are reducing your tumors.

    i am so sorry that you are preparing "to die".  That really saddens me.  I pray that you will live each day to the fullest and enjoy the time you have With Rudy.  Of course we want to hear about your journey.  I hope we can encourage you along your journey.  You continue to be an inspiration for us.   Please share your feelings with us, too.  I know this has to be very difficult for you.

    i hope the radiation onocologist has some encouraging news for you.  Hang in there.  In peace and caring.

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #41
    Cindy Bear said:

    Thinking of you

    and hoping and sending big cyber hugs your way. Yes we want to be with you on this journey , every step of the way. 

    We're all blessed to be with you

    through whatever you have ahead of you.  So yes, plese keep us updated on your journey, through all of the trials and tribulations, good news and bad news.  Thank you for considering us.

    Suzanne

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