Iscador

2timothy1 7
2timothy1 7 Member Posts: 345
in Ovarian Cancer #1
Anyone try iscador injections(mistletoe) ? I've been giving these shot to myself 3 times per week. Just wondering if anyone else has tried these?

Comments

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #2
    Iscador
    Yes, I get Iscador injections. I didn't start them until I was NED but they seem to be keeping my CA-125 down. Before I started it, my CA-125 had crept up, from 2 to 4. Now it seems to stay at 2. It goes up to 3 between maintenance doses, but back down to 2, after my maintenance.
    Okay, not such an amazing story. There is another woman I know, however, who started it last summer, just after finishing chemo for a recurrance. Her CA-125 was going up, even with chemo. It started at 51.4 and had dropped to 39.1 after a month on Iscador. Today, she got her results back, and it is 11.4. She has been fighting this disease for 9 years, with 2 recurrances. She keeps saying that she knows she would have been back into surgery or chemo by now, but the Iscador has saved her from that.
  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #3
    Tethys41 said:

    Iscador
    Yes, I get Iscador injections. I didn't start them until I was NED but they seem to be keeping my CA-125 down. Before I started it, my CA-125 had crept up, from 2 to 4. Now it seems to stay at 2. It goes up to 3 between maintenance doses, but back down to 2, after my maintenance.
    Okay, not such an amazing story. There is another woman I know, however, who started it last summer, just after finishing chemo for a recurrance. Her CA-125 was going up, even with chemo. It started at 51.4 and had dropped to 39.1 after a month on Iscador. Today, she got her results back, and it is 11.4. She has been fighting this disease for 9 years, with 2 recurrances. She keeps saying that she knows she would have been back into surgery or chemo by now, but the Iscador has saved her from that.

    Sounds like it is worth my
    Sounds like it is worth my effort to continue with it. Thanks!
  • 3 wishes
    3 wishes Member Posts: 2
    #4
    Iscador

    2timothy1 7, What type of cancer do you have?  here did you get the Iscador?  I was thinking about taking but don't know where to go or if it works on all types of bc or just certain types?  I am in nj and have tnbc

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #5
    3 wishes said:

    Iscador

    2timothy1 7, What type of cancer do you have?  here did you get the Iscador?  I was thinking about taking but don't know where to go or if it works on all types of bc or just certain types?  I am in nj and have tnbc

    Iscador

    Hi 3 Wishes

    i quit taking iscador bc my numbers were rising. Ca 125 is now 240. I'm in a clinical PARzp trial. Hopefully this will begin too bring it down.  Yet he iscador was $100 a box, don't take insurance. I got it from Dr Johnston in Louisville Ky at the Evergreen Center. It's been a few month since I ordered any. Not even sure if it is sold anymore.

    i have 3c pappillary serous adeno carcinoma. What is tnbc?

    Shawnna

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #6
    3 wishes said:

    Iscador

    2timothy1 7, What type of cancer do you have?  here did you get the Iscador?  I was thinking about taking but don't know where to go or if it works on all types of bc or just certain types?  I am in nj and have tnbc

    Iscador

    Hi 3 Wishes

    i quit taking iscador bc my numbers were rising. Ca 125 is now 240. I'm in a clinical PARP trial. Hopefully this will begin too bring it down.  Yet he iscador was $100 a box, don't take insurance. I got it from Dr Johnston in Louisville Ky at the Evergreen Center. It's been a few month since I ordered any. Not even sure if it is sold anymore.

    i have 3c pappillary serous adeno carcinoma. What is tnbc?

    Shawnna

  • 3 wishes
    3 wishes Member Posts: 2
    #7
    Iscador

    Hi 2timothy1 7,

    TNBC Triple Negative Breast Cancer....so I guess it helped at some point and then it didn't.

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #8
    3 wishes said:

    Iscador

    Hi 2timothy1 7,

    TNBC Triple Negative Breast Cancer....so I guess it helped at some point and then it didn't.

    Iscador

    Hello again 3 wishes,

    When I started taking iscador, I was in remission. I was taking them as sort a maintenance thing. I was only in remission from the end of May till December, hard to say whether they helped me or not. 

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