people are not so nice
Hi, I am up in the middle of the night.... my sleep had gotten so much better, but now I find myself slipping back into my old bad habits of not sleeping through the nite and getting up at 4 am. I am almost 5 mos out of treatment, and was making good progress. People from my past seem to be haunting me alittle.
It is when I must face them that I get discouraged. Here I am fresh out of recovery, having fought hard for 2 years, and now getting back to the pulse of life, I am somewhat dissappointed. The guy that I was dating appeared on Valentines Day only to dissappear after a nice one day visit. It seems poeple are scared of me, not really wanting to hang out for more than one day. I am getting the same treatment from my cousin and his family, and it makes me feel like I am never going to be back to myself again. I live in a tourist destination, cousin emailed my mom to get a good 'deal' on their lodging and have proceeded to come to the island and stay for a week without calling. I sent an email inquiring if they were coming out, and my bloodcousin did not even write back, it was his wife who answered my email. THEY ARE STAYING NOT EVEN TWO MILES FROM MY HOME< and yet have not found the time to get intouch because they have frineds in town and have been 'busy'.
So, the email came in yesterday inviting us down for dinner. I am so dissappointed, I thought they were going to spend some time with me and my mom. they are 'religious' people, and I could use some spiritual guidance right now. I am having a hard time fiinding myself after this bc ordeal and am also having a hard time fitting in. With my cousins, t feels very awkward, like they really don't even want to see me. They know I have had a double mastectomy with reconstruction, and I thought I might get some support from them. I do not get this vibe from them at all, it is as if my illness has never happened, everyone just wants to forget that it even happen and just enjoy their luxury vacations.
So, I will try to keep my inner peace, but part of me is angry for being cast aside; I almost want to tell them that their lack of communication is very immature.
It is nice having this new insight, but hard to find people to share it with.I think that now, I have a new tolerance and respect for me, and am no longer willing to put up with crap from others. But it is a lonely place, this part is hard.
I have to go meet them tonite, and face them as a single person and be strong, any advice? My cousin has always been extremely competetive and materialistic, exactly what I am not.
Comments
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Hi There,
I'm sorry for theHi There,
I'm sorry for the feelings that you are having. My wife is going through treatment for BC and we have experianced the same things as you many times. Good friends who we used to hang out with we do not see anymore. Our next door neighbors who used to come over quite often now stop by on a very limited basis. I thik the reason is because they do not know what to expect or how to react. I was in the same boat about 7 years ago, my best friends wife was diagnosed with Stage 4 BC and I did not know what to do or say so basically I just distanced myself because I THOUGHT this is what they would want. Only after they both told me that they want their lives to remain as normal as possible and keep friends around did I start hanging out with them again. Now that I am experiancing the same thing, we have reached out to our friends and told them to come over and just act like they did before she was diagnosed. This has helped alot. But in my two experiances until YOU reach out and tell people you want them to be back in your life and that you do not have some sort of contagious disease most people will keep their distance because they just don't know how to react to someone with cancer. God Bless
Dennis
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I've decided many people are simply self centereddthompson said:Hi There,
I'm sorry for theHi There,
I'm sorry for the feelings that you are having. My wife is going through treatment for BC and we have experianced the same things as you many times. Good friends who we used to hang out with we do not see anymore. Our next door neighbors who used to come over quite often now stop by on a very limited basis. I thik the reason is because they do not know what to expect or how to react. I was in the same boat about 7 years ago, my best friends wife was diagnosed with Stage 4 BC and I did not know what to do or say so basically I just distanced myself because I THOUGHT this is what they would want. Only after they both told me that they want their lives to remain as normal as possible and keep friends around did I start hanging out with them again. Now that I am experiancing the same thing, we have reached out to our friends and told them to come over and just act like they did before she was diagnosed. This has helped alot. But in my two experiances until YOU reach out and tell people you want them to be back in your life and that you do not have some sort of contagious disease most people will keep their distance because they just don't know how to react to someone with cancer. God Bless
Dennis
and don't want to hear about you, and if they do, they try and one-up you with a personal experience or the personal experience of someone they know. It seems like so many people want to go out and talk ABOUT you but they don't want to listen to you or try to understand what you really need or feel. They'd rather tell you how they think you should feel if they have anything at all to say. It's all about them - "I know so and so who has cancer and s/he is so brave, having aggressive treatments, blah, blah". . . Being in the know is more important than just being there for you because listening is not about them. You may be allowed to be their friend with cancer, and they may indeed be concerned about you, but it's still how you having cancer effects them.
I'm rather of bitter about this because I had some disappointments from friends and family when I was going through treatment, too. I'm sorry you're experiencing this. I had to adjust my expectations of some people in order to make peace with this and to forgive them for their insensitivities. It wasn't easy.
Suzanne
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This is one of the roughestDouble Whammy said:I've decided many people are simply self centered
and don't want to hear about you, and if they do, they try and one-up you with a personal experience or the personal experience of someone they know. It seems like so many people want to go out and talk ABOUT you but they don't want to listen to you or try to understand what you really need or feel. They'd rather tell you how they think you should feel if they have anything at all to say. It's all about them - "I know so and so who has cancer and s/he is so brave, having aggressive treatments, blah, blah". . . Being in the know is more important than just being there for you because listening is not about them. You may be allowed to be their friend with cancer, and they may indeed be concerned about you, but it's still how you having cancer effects them.
I'm rather of bitter about this because I had some disappointments from friends and family when I was going through treatment, too. I'm sorry you're experiencing this. I had to adjust my expectations of some people in order to make peace with this and to forgive them for their insensitivities. It wasn't easy.
Suzanne
This is one of the roughest parts of having breast cancer that I have dealt with. I am so sorry that you have to go through this. It is so dishearting to have people especially family just walk away. The only thing that I hang on to is that it has made me a much stronger person but I know sometimes we just don't want to be strong. So God and my poor husband sometimes get the brunt of my sadness and anger. When I was first diagnoised at 33, people were so good, brought food, etc. But I did have two really good friends just walk out of my life. They did not want to deal with me and all that encompassed. I became very active in Reach to Recovery and living in a small area, people would be sent to me as I became known at the cancer lady that overcome as my remission years counted up to 23 years. When I relapsed 3 years ago basically everybody walked away. No food, no flowers, no nothing!! I live in a very small town and everyone knows each other and like Suzanne said they would rather talk about me downtown and that I am dyiing than really listen to me and what is going on. I am doing okay. A complete stranger gave me a devtional called Jesus Calling by Sarah Young. It has saved my life and sanity. You can get it in bookstores, Amazon Books, etc.
Take good care of yourself. WE are our own best friends. WE have to belive in ourselves and love ourselves. My prayers and thoughts are with you.
Jan
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Yes my pink sister you aresurvivor87 said:This is one of the roughest
This is one of the roughest parts of having breast cancer that I have dealt with. I am so sorry that you have to go through this. It is so dishearting to have people especially family just walk away. The only thing that I hang on to is that it has made me a much stronger person but I know sometimes we just don't want to be strong. So God and my poor husband sometimes get the brunt of my sadness and anger. When I was first diagnoised at 33, people were so good, brought food, etc. But I did have two really good friends just walk out of my life. They did not want to deal with me and all that encompassed. I became very active in Reach to Recovery and living in a small area, people would be sent to me as I became known at the cancer lady that overcome as my remission years counted up to 23 years. When I relapsed 3 years ago basically everybody walked away. No food, no flowers, no nothing!! I live in a very small town and everyone knows each other and like Suzanne said they would rather talk about me downtown and that I am dyiing than really listen to me and what is going on. I am doing okay. A complete stranger gave me a devtional called Jesus Calling by Sarah Young. It has saved my life and sanity. You can get it in bookstores, Amazon Books, etc.
Take good care of yourself. WE are our own best friends. WE have to belive in ourselves and love ourselves. My prayers and thoughts are with you.
Jan
Yes my pink sister you are not alone, even though I know from experience it feels that way a lot. All of you are so right about how others love to make us their topic of conversation but never stop to listen to us or care. My mother in law who I adore works in a grade school, all of her co-workers who I barley know have been just wonderful. My mother in law barely comes over anymore, not sure if its because I scare her or what. She calls, me not to chat anymore but to say this "I had to call cause you know the girls at school ask about you everyday, they asked me today how you were doing and I said I haven't talked to her. So I am calling now so I don't get in trouble tomorrow morning, then a laugh". I swear every times she calls I hear the same thing. It hurts, its like she is telling me "hey I am only calling because they make me feel like I have to."
Or I heard, when I just found about a month ago about my head and neck, cancer by my husband "I am not in the mood to deal with another cancer." Ouch. I hear him now when people ask how I am doing, he always "oh shes great, doing just fine" I just found out I may have mets to my lungs, having a biopsy next week. I just had surgery on my lower lip and chin and look like frankenstien, I don't think I am doing great. It's like everyone gets "tired" of the whole cancer deal, well hell so am I.
I don't feel alone here though and I thank all of you for that and know I am always here for all of you!
Patti
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Hi Hope....
Well as you can see we have all experienced the same thing.....but the best way to feel better about it is to let them see you SHINE!!!
People I loved so much weren't there for me...and I was going through a divorce at the same time as cancer treatment. I too had a BMX. Get yourself together and realize you my friend are a survivor and those who turn their backs or who act like nothing is wrong are the ones who cannot handle cancer itself. Don't take it personal!!!
All human beings will go through things in life, They too will have their turn. Life has a funny way of teaching people lessons and rest assure they will learn just as we did.
SO celebrate you and your life! Pray and thank God for every breathing moment and instead of focusing on those who upset you focus on people who can benefit by your experience through BC and offer your help.
ALways remember you are never alone!!!
(((HUGS)))
Patrice
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Yes,
Agree with a lot of what said. I did in fact have a lot of kindness sent my way. My husband wanted no help even though I could have done with some frankly. He meant no harm, just who he is. My son and daughter never mentioned it, again I know they were worried and upset but couldn't talk about it. Now all treatment well finished I do feel asome people just think all is well, others do listen. So I choose to share more with those who listen and try to understand. They all cringe when they see the countless hot flashes I get, out comes the fan, now they are asking to borrow it when their flashes happen. I think it is the same as you only tell certain people your worries and concerns when other people you don't feel comfortable sharing personal things so much. I do wish I had had a sister at the time. But then she may not have been able to cope with it either who knows. Please don't get down. Stick to the people you trust, I pray there is so done like that for you.
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