I wish

Billie67
Billie67 Member Posts: 898
in Head and Neck Cancer #1

that this was the home for esophogeal cancer too. My friends father in law was just diagnosed and I told them all about CSN but then when I went to check out that forum it wasnt nearly as helpful, friendly and resourceful as ours.

Frown

Billie

Comments

  • Patti1967
    Patti1967 Member Posts: 186
    #2
    Sorry to hear about your

    Sorry to hear about your friends father-in-law:(  Shame tbe other board isnt as supportive.

    Patti

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #3
    Patti1967 said:

    Sorry to hear about your

    Sorry to hear about your friends father-in-law:(  Shame tbe other board isnt as supportive.

    Patti

    I agree

    I tried out the Multiple Myeloma and Leukemia sites as well.  Neither were very active and hardly anyone would respond.  This site is the place to be for friendship and lots of information.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #4
    Esophageal Forum...

    Yep, that's a pretty rough crowd over there...

    It's went through some very rough times... Several months ago, they had a member that was pretty high up in their echelon get booted. Not entriely sure of all of the specifics, but a few.

    Many members on that forum got really ugly with Greta over it..., really ugly.

    If you remember a few even came on to our board slamming me. I had even helped a few figure out how to get some of the old posts back from the member that originally got booted.

    A lot of negativity and ugliness got many others booted eventually (nothing to do with the post concerning me)...

    But eventually they formed their own site...

    Sorry about your friends FIL..., prayers.

    JG

  • phrannie51
    phrannie51 Member Posts: 4,716
    #5
    I know....

    There are only a couple of forums as active as ours.....and that's too bad....This board saved me during treatment, and it's hard not to want that for everybody out there, for every form of cancer.  Did you do a search to see if there's another forum on the net that might be active?

    p

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #6
    wishes

    Billie,

     

    Maybe she caught them on an off day?

     

    I remember when the girl came gunning for Skiffin, she was brutal, very uncalled for.  Now if it was one of us, I could understand, you know, radiation on  the head (close to the brain).

     

    I stopped by their and there were a few good guys I could see.  Your friend could PM individuals, kind of pick and chose the best of the best or she could talk to you Billie, you are as smart as they come.

     

    Matt

  • cureitall66
    cureitall66 Member Posts: 913
    #7
    Sorry to hear this...

    Sorry to hear about your friend and also about the forum here on CSN. That sounds rather disappointing to me. Afterall, cancer is still cancer and we're all in this together. Why get so mean and nasty on there? I guess I've never understood why some human beings feel the need to be that way. Was this guy just angry with the world? Surely someone will come along there and feel the need to "help" one another. Or are we the only ones?

    Prayers for your friend to find some comfort in getting some support in his dx.

    ~C

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    #8
    Billie,
    I checked out breast
    Billie,

    I checked out breast cancer for a friend and found a lot post were just technical and not personal like ours. I hate to sound cynical but maybe because a lot of the other cancer have so much support everywhere, and ours is rarely discussed outside of us and our docs. Till I came here, in Jan, I didn't even know we had a ribbon. I am not resentful of the others, but I do feel more public attention should be paid to ours since so many don't have any telltale signs till late stage.


    Thanks fo sharing and thanks to H/N forum for being a supportive and comedic outlet for us all!

    Love you all,

    Rachel
  • Billie67
    Billie67 Member Posts: 898
    #9
    rachel12yrsuv said:

    Billie,
    I checked out breast
    Billie,

    I checked out breast cancer for a friend and found a lot post were just technical and not personal like ours. I hate to sound cynical but maybe because a lot of the other cancer have so much support everywhere, and ours is rarely discussed outside of us and our docs. Till I came here, in Jan, I didn't even know we had a ribbon. I am not resentful of the others, but I do feel more public attention should be paid to ours since so many don't have any telltale signs till late stage.


    Thanks fo sharing and thanks to H/N forum for being a supportive and comedic outlet for us all!

    Love you all,

    Rachel

    Thanks guys,
    I just love this place so much and I wish every cancer patient could have the same support we all have for each other. I did get a couple of PM's directing me to a couple of sites so I am going to check those out. Maybe I can direct my friends father in law to those. Or maybe he can just come here and we can all support him the best we can.
    You guys are all so great!
    Billie
  • VanessaSLO
    VanessaSLO Member Posts: 283
    #10
    Billie67 said:

    Thanks guys,
    I just love this place so much and I wish every cancer patient could have the same support we all have for each other. I did get a couple of PM's directing me to a couple of sites so I am going to check those out. Maybe I can direct my friends father in law to those. Or maybe he can just come here and we can all support him the best we can.
    You guys are all so great!
    Billie

    So sorry for this

    I hate to hear when somebody is newly diagnosed for any kind of cancer... But the truth is that some cancers are more easy to treat or at least side effects of treatment are not so horrible like in H&N cancers...

    Maybe you can share info here on this board... Maybe I can help too, because my friends father was diagnosed with esophageal cancer last year and had just finished treatment last week!

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #11
    PMA

    your friends father is so welcome here also.... going thru cancer is such a huge mental war. here they can find a huge support of Positive Mental Attitude. some of the side effects are the same and might be helpful. 

    john 

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