UPSC - Any survivors greater than 5years?

I will be three years out from surgery next month.  I had stage IVB.  I had two normal CT scans in the first year and a half.  My CA 125 was 8 at the last visit.  I get another one done in about 3 weeks.  At diagnosis, it was 94.  You'll be happy to hear that I've been NED even though I had the advanced cancer.  I always expect a recurrence, but knock on wood, haven't had one yet.  Just lucky, I guess.  I must have had a very good surgeon and oncologist.

Rewriter said:

Officially a five-year survivor of UPSC Stage 1a

I got the all-clear at yesterday's appointment with my gyne-oncologist at Mt. Sinai Hospital in NYC. For those of you who will be uplifted by my news. I am now officially a five-year survivor. My treatment consisted of six rounds of carbo/taxol followed by three brachytherapy treatments.

When I was diagnosed, I read everything I could about diet and made some major shifts in the types of foods I eat. I consume lots of:

 

--Grains like quinoa, spelt, kasha, millet, oats

--Seeds: pumpkin, flax

--Vegetables, particularly kale, cucumbers, and other green and leafy plants

--Legumes: Beans are your friends

--Fruit: Berries, oranges, lemons and limes as seasoning...lots of GREAT fuit becoming available during the warmer months

--Fish: Wild caught

 

I avoid:

--Sugar; I sweeten my oatmeal with mashed bananas and add fresh fruit to plain, nonfat yogurt. If I have a craving, I make a banana and yogurt milkshake with just those two ingredients. DO NOT EAT SUGAR!

--Meat

--Highly acidic foods. Many charts are available online; and the foods listed as acidic or alkaline may surprise you. Acidic foods are inflammatory and are associated with various disease processes in the human body.

 

Blessings to all of you. Today, I am sending special love to Mary Ann.

 

 

What a wonderful accomplishment.  You have worked very hard to reach this milestone.  Blessings to you, too.  May you have many more years of being cancer free.

Rewriter said:

Thank you, Ro

I wish the same for you. I hope you are soon settled and enjoying being back in IL. Hope the weather warms up.

 

Best,

 

Jill

I am SO pleased for you, Jill.  You "took your medicine" in the form of all the established treatments and then set about making your body a hostile terrain for cancer.  It worked!  I cannot tell you how happy I am for you that you've reaped the rewards and reached this milestone.

With every good wish for the future

Helen

Rewriter said:

Officially a five-year survivor of UPSC Stage 1a

I got the all-clear at yesterday's appointment with my gyne-oncologist at Mt. Sinai Hospital in NYC. For those of you who will be uplifted by my news. I am now officially a five-year survivor. My treatment consisted of six rounds of carbo/taxol followed by three brachytherapy treatments.

When I was diagnosed, I read everything I could about diet and made some major shifts in the types of foods I eat. I consume lots of:

 

--Grains like quinoa, spelt, kasha, millet, oats

--Seeds: pumpkin, flax

--Vegetables, particularly kale, cucumbers, and other green and leafy plants

--Legumes: Beans are your friends

--Fruit: Berries, oranges, lemons and limes as seasoning...lots of GREAT fuit becoming available during the warmer months

--Fish: Wild caught

 

I avoid:

--Sugar; I sweeten my oatmeal with mashed bananas and add fresh fruit to plain, nonfat yogurt. If I have a craving, I make a banana and yogurt milkshake with just those two ingredients. DO NOT EAT SUGAR!

--Meat

--Highly acidic foods. Many charts are available online; and the foods listed as acidic or alkaline may surprise you. Acidic foods are inflammatory and are associated with various disease processes in the human body.

 

Blessings to all of you. Today, I am sending special love to Mary Ann.

 

 

Jill:

I am so happy for you!.   I do follow a lot of your advice when it comes to food.  My only vice is that I use honey, but it is better than using artificial sweetners.   Thank you for all your posts!  

Kathy

P.S.  How's your dog?   I remember seeing how cute (he/she) was!

jazzy1 said:

YAHOO JILL~~

I'm so happy for you and know you're on cloud 9!!!!  5 years NED...now that great news is worth yelling from the roof tops, ya think?

 

I know over the years we've exchanged emails and postings and you as well have given great support to others here....we thank you!!  

 

Few things I'd add to your list of diet changes --

.  Probiotics -- be it supplements, raw dairy, fermented foods or kefir (These repair the gut and the compromised villi)

.  Meat/poultry -- organic, hormone-free, antibiotic-free, only free-range, grass fed.  Commercially raised meats contain hormones and antibiotics and the animals are fed grains, results in meath that are high in Omega 6's which cause inflammation and  cancer growth.  

.  9-10 cups/day organic veggies (or follow the DIRTY DOZEN list for which MUST be organic)  Make a green smoothie and ingest 4-5 cups...easy!

.  Eat healthy fats from coconut oil, olive oil, avacado oil, and nuts (especially macadamia and hazelnuts) 

 

When in doubt remember our #1 seller --  THE ANTI CANCER book, by Dr, David Servan-Schreiber

 

I'd love to see more topics on keeping our terrains in healthy working order....

Hugs and best to you Jill~

Jan

 

 

 

It's hard to live on Cloud 9 when so many in our community are struggling, but I am feeling much more peaceful that I did even a week ago.

Still, I take nothing for granted and continue to watch my diet, stress level, and daily exercise. It's gorgeous where I live--in a community called Carroll Gardens, Brooklyn, which certainly lives up to its name with the magnolias, mimosas, cherry blossoms, and pear trees--and I enjoy walking and exploring.

Kathy, thank you SO much for remembering my dog. Trixie is such a wonderful dog and has been affectionately and attentively by my side through this whole process. She is so smart and playful and was always able to keep my spirits up when I was at my lowest point.

Jan, thank you so much for your suggested dietary changes; I am right there with you! I don't eat meat and always choose free-range, hormone-free chicken. I take a daily probiotic called PB8, eat a big bowl of homemade organic vegetable soup and a huge salad with lots of fresh vegetables and 1/2 avocado each day, use plenty of olive and coconut oil, snack on a handful of nuts and make a great kale salad with toasted hazelnuts, make either a fresh vegetable or a yogurt and banana smoothie each day...I have major OCD when it comes to eating healthy food, but I take GREAT pleasure in preparing my meals.

I, too, would love to hear how other women are keeping themselves healthy. BEST of health to everyone.

Love,

Jill

thank you for your uplifting note

I'm sure I am not the only one curious...who and where is this UPSC top researcher???

I am new to this site but I have been reading your comments for months. Thank you for contributing, I have learned so much from all of you.

I was diagnosed last fall with UPSC grade3 Stage 3A in a routine pap test. I had no symptoms. I am 67 years old but very active - aerobics, inline skating, curling, walk 4-5 miles a day. I am also a DES daughter, and strangely enough my brother also has a very rare form of cancer. I had surgery in October 2012 - the cancer was 1 out of 11 mm invasion into  the wall of the uterus but had gone into the right fallopian tube - all lymph nodes and washing were negative. I did not have any treatment after the surgery. My CA125 was 13.3 prior to the surgery, it was 8.9 four months after the surgery and two months later it is now 10.4. Prior to the last CA125 I pushed for a CT skan, which showed an enlarged lymph node in the pelvic area. I then had a PET skan which shows a 1.1 cm left external iliac lymph node that is intensely hypermetabolic. My doctor has recommended 6 rounds of dose dense chemotheraphy which I am scheduled to start next week.

In the province that I live in Canada they only do chemo for UPSC but yet in another province they do chemo and radiation. In all the studies that I have read it seems that the best chance for the least amount of recurrences is with chemo and radiation. It appears that most of you on this site had this type of treatment as well. I am hoping to go to the Mayo Clinic in Scottsdale for a second opinion.

I would like to know if those of you who did chemo and radiation did standard chemo or dose dense chemo and what type of radiation that you had.

I know that this type of cancer is closer to ovarian cancer than any other type of endrometrial cancer, and I think I am being treated as if it was ovarian cancer. I don't feel that my doctor gives me enough information and I often wonder if this is because they don't often see this type of cancer.

Cathy in Canada

Love23 said:

Thank you so much for the

Thank you so much for the encouragement hope u are well

I see that this is your first post. Welcome to the group, but sorry that you had a need to find us. I presume you've been diagnosed with UPSC since you chose this old thread for your first post? How are you doing?