Anyone here dealing with Triple Negative?

loyama said:

nutrition

THanks for you post Patrice.  I am curious to read your book.  What is it called?  How can I access it?  Thanks for your help.

Leslie

How did your oncologist appointment go?  Hoping you can update us soon.

Hugs, Debby

aligrace726 said:

TNBC

Just general information about your experience, treatment and how you are doing now. After my stereotactic I was diagnosed with DCIS and. I've had a lumpectomy and got clear margins and was told all I needed was radiation, but because my doctor said it was aggressive and could come  back I chose to have a mastectomy. After all my results came back it turned out to be Triple Negative. I was diagnosed March 22nd.

I go to my first Oncologist appt. tomorrow and I'm scared to death.  When I found out my diagnosis I came home and googled it and after reading the first few things I got really scared and quit.

So I would rather hear from real people that experienced it and what their thoughts are.

Thanks I appreciate the reply.

Did you have the BRCA test done?

Hi Aligrace,

I was diagnosed in June 2010 with Stage IIB TNBC.  I am 46 now.  I had a lumpectomy and then a second for clear margins.  I had 2 rounds of chemo.  No radiation.  For me, and everyone is different, I found it best to completely ignore the numbers and percentages.  I listened to my doctors but made the decisions I felt were right for me. 

I did interview oncs though.  I think you had asked that question. You are going to be dealing with your onc for a long time.  Be sure it's someone you feel comfortable with and trust. 

I also had the BRCA test done because I have a daughter.  I have no history of breast cancer in my family.  The test was negative.  I guess that means I was just lucky, huh?

Don't let the names (TNBC) or numbers freak you out.  Just do what you feel you need to and take care of you!

Hugs,

Michele