Sadness of cancer

camul said:

Sorry for all the children's cancers.
Breast cancer is actual cancer, many of us who have it are stage 4, we are mothers and fathers of children. Believe me we are heartbroken for any child suffering with cancer. I saw what it did to my sister and bil watching their young son battle liver cancer. He is in remission, but was on a/c for over a year along with 2 major surgeries, radiation, and we watched my other nephew's battle with non- hodgkins lymphoma, and a couple of years later, saw what it was like for him to watch his father (my brother) die of bladder cancer. I am stage 4, and have a son who is batling ET, a form of blood cancer/disorder (it is normally only found in 55+ years, with a 25 yr life span, he is going into hos 13th year, and has been treated with some tough meds since), knowing he will most likely end up with a leukemia and the only cure is a bone marrow transplant. Now he has chosen to be one of my main caregivers as I edge closer to end stage.
Everyone has a life story, and it is not always what people think. Almost 40,000 women and men died in 2011 from bc alone with over 300,000 new cases reported. That is over 30% mainly womwn, most all mothers. Tha indicator t is why there is a lot of coverage,
But it is a real cancer, believe me 18 months of weekly chemo is no walk in he park.

I do not believe.that it is more important in any way, shape, or form. I just think that the Susan Komen Foundation was able to get the funding thru fundraising, mainly because 1 out of every 8 womwn will face bc in their lives.

My heart goes out to all children and their familes, It is so hard to watch your child suffer , knowing there is nothing you can do to change it. But, I think you would be amazed at the number of women on the bc board who have had children with childhood cancers and wish that there was more publicity for childhood cancers.

CA-survivor said:

Wilms tumor
Dear Friend, I am so sorry your son has been diagnosed with Wilm's Tumor. As a mother, I can understand your pain and sadness. I want to give you hope that your son will pull through this. I am a 28 year survivor of Adult Wilm's Tumor which is even more rare than childhood Wilms. I was 22 years old in 1984 when I was diagnosed. I had my left kidney removed and I had chemotherapy for 18 months and radiation. Today I am healthy-I have a family and I just celebrated my 50th birthday. There was no internet in 1984 to find information on Wilms and compare what other people were doing. I just followed the recommendation of my doctors. Be strong for your son- be sure he is eating healthy and tell him to fight-he can survive and look back on this as a bad nightmare. My best to you and your family.

nettecg said:

I totally agree. I am a childhood cancer survivor. I had (ALL) leukemia. I had a cousin who had Wilms tumor. It is an ugly cancer and no child should ever have to go through it. I hope your son is safe and healthy.

It's rather frustrating that childhood cancer doesn't seem to have an advocate like breast cancer. The kids can't speak for themselves on this. The whole thing of childhood cancer is too massive to take on alone. And yes who really knows what gold means. Most likely support for troops. Every cause deserves to be heard and yet somehow it seems the voice of childhood cancer is being snuffed out. Be proactive in your own life. Never be embarressed to talk about your son and his cancer. I've grown wiser in my 27 years as a childhood cancer survivor.

I have a facebook page childhood cancer survivors. Anyone with a common interest is welcome.

http://www.thetruth365.org/

this campaign is fully dedicated to childhood cancer!!! I think it came out last year

St. Jude's is also fully dedicated to childhood cancer

http://www.stjude.org/stjude/v/index.jsp?vgnextoid=f87d4c2a71fca210VgnVCM1000001e0215acRCRD

unfortunately, the $$ do go into what's famous or what appeals to customers/ fans and usually, it mean to what's famous... fame also seems to be proportion to the number of patients... (or a very famous person getting it and the disease getting famous) whether it was caused by life style or not,,, unfortunately,,, the other horrible thing about childhood cancer is that people aren't aware of it...

I see my friends living a life style much worse than mine,,, and sometimes think,,, why was it me? not them? there are so many ppl out there that seem like they would get it,,, but yeah... unfortunately, it seems like it's the ones that are excelling in life that get childhood cancer, least expectedly :S my dad used to say he'd changes places with me if only he could

there's some bright news though I heard that in UC Davis, was it?, they cured a girl with AML, I think, using genetherapy (with an HIV vector) the virus didn't contain the RNA that causes the disease, but in stead that of what they intended to introduce to the girl's body to fight/ cure the leukemia...