Started Taxol

Kristin N said:

You're in my prayers Cindy!

You're in my prayers Cindy!

Check in with us again Cindy when  you're feeling like it.  You're having such a hard time that it is worrying us.

Jan

Snowkitty said:

2nd taxol Tuesday

I am going to try this once more.  If it is too bad, I can do the rest in 6 weekly doses.

Onc gave me vicodin and said if pain gets really intollerable (where it hurts too much hard to take a full breath, again) to go to the ER and ask for morphine.  I said they're going to think I'm a druggie.  She said not to worry about that & put that note in my medical records.

Thanks for all your good wishes.

Cindy

 

So sorry Cindy.  Please do go to the ER and get the morphine if it gets too bad.  And, keep posting to let us know how you are feeling.

Hugs to you today,

Diane

SIROD said:

For Cindy

Hi Cindy,

I began Taxol on 2/27 and will have #4 on Wednesday.  I don't have pain but big time Fatigue and have been running a temperature.  I also take Methotrexate (chemo drug) for an eye condition so that is probably why my blood values are low.

I can see it hits us all different.  This is my first chemo in 18 years.  I ended the first chemo on March 17th, 1995.  It's all new again.   I did call my oncologist nurse when my temperature was rising.  Call your oncologist nurse about your leg pain.  

They gave me a prescription for Lorazeparm and that usually knocks me out, it is for nausea.  Acts like a sleeping pill for me.

Doris

How you doing Cindy?  You haven't posted in a few days.

Lex

Alexis F said:

Cindy, I am glad you found

Cindy, I am glad you found that by drinking more water that it helped you to get thru your chemo.  You can handle it!  You're a fighter, a survivor and you've got everyone cheering you on! 

Thanks for updating us!

Hugs, Lex

I am glad the nurse talked you into continuing Cindy and that it worked out for you.  You have 2 more to go? 

Hugs, Noel

DebbyM said:

I know I've always read on

I know I've always read on here about how important it is to drink LOTS of water during chemo.  I didn't realize myself that you should drink as much as you were told.  Glad you found that out and that it is helping.

Soon we will be celebrating the end of chemo for you.

 

Great news Cindy that you're feeling better! 

Hugs, Leeza

burcu123 said:

WAY to prevent neurpathy with TAxol

One of the most common and annoying side effects of Taxol is neuropathy. trought other breast cancer survivors I learned a medication called MetaNX. I took it while I am taking Taxol and Ihave not had the slightest of neuropathy. It is a strengthenned form of folic acid , b6 and B12 vitamins, you take 1 tablet twice a day. I started one week before starting tAxol and continued one month after I stopped.

It has no side effects it is active form of above mentioned vitamins. Most insurance companies will not pay for it as it is vitamin supplement. Approximately costs $50/month. It prevents neuropathy. All other medications they may give you after you develop neuropathy just numbs the nerves so you do not feel pain. Also tehy have many side effects.

 

I will highly recommend you talk with your oncologist and ask for a prescribtion for MetaNX.

It worked for me and several others , not a hint of neuropathy which is rare with Taxol

Checking in on you Cindy.  How are you feeling?

Leeza

desertgirl947 said:

Did Four Rounds of Taxol

I did four rounds of taxol last June/July.  The thing I had the most problem with was taking deep breaths.  After the second and third rounds I had short bouts of challenges for two days or so a few days before the next round.  I would get to coughing, which was challenging because of my breathing issues.  (I had clear lungs.)

My onc had me take an OTC allergy pill , and that helped within less than 24 hours.  The second time I had problems, he had me switch to a different allergy pill plus take musinex and one benadryl (nightly -- to be sure I got to sleep, I think).  Again, I was feeling much better within about 24 hours.  The next time this could have happened, it didn't.  I had decided to be pro-active with the allergy pills because my husband and I were out of town on a mini-vacation.  [I had finished chemo about 10 days earlier.]  I had no more problems with nasty coughing.

The pesky cough I had all the while I was doing taxol disappeared within two weeks or so of my finishing the taxol.

Although I had discomfort in my hips/legs for a few days the same week I'd have the chemo, my med people thought it had more to do with my shot (Neulasta).  Interestingly, I did not have to take the shot the day after chemo the last time I did chemo.  I did not have that discomfort that week.  So, I don't know quite what to say about the bone pain.

I did have a reaction to my taxol treatments the final two rounds.  But both times we were able to resume the taxol the same day and I did not have to delay or change my treatment.  I had really wanted to finish on schedule -- I did.

As others have said, we can share our experiences; but we are individuals who may have the same disease and treatment yet react differently.  I found that I rarely matched up with anyone else I knew (pre-boards), but I was glad to have the input to give me some idea of what I might be able to expect.

Best wishes for you.

e

I'm thinking of you and sending more hugs and prayers.

Lex

DebbyM said:

I know I've always read on

I know I've always read on here about how important it is to drink LOTS of water during chemo.  I didn't realize myself that you should drink as much as you were told.  Glad you found that out and that it is helping.

Soon we will be celebrating the end of chemo for you.

 

Make sure to drink soemthing that has nutrition in it as well (gatoraide, O.J. apple juice etc) as drinking too much water can flush too many electrolytes out of your system and increase the effects of chemo. Our Onc recommended for every two glasses of water drink one glass of a sports drink or 100% fruit juice. God Bless.

Dennis

Snowkitty said:

3 down, 1 to go

Have some leg pain, but nothing that a couple vicodin can't take care of. For neuropathy, I'm taking Vit B-6 & neurontin, which hasn't helped yet.  Does neuropathy go away, or have any of you had it stay well past chemo.

As far as hydration goes, can't yet do water.  Pineapple juice, fruit punch, gatoraide, flavored ice tea and lemonaide.

Onco nurse told me 2-3 liters a day; that's the ticket.  Think I'm gonna start wearing a diaper, though (jk).

Thanks for your good thoughts,

Cindy

I'm not much for plain water either... I like the Crystal Light flavors though... maybe you could try those.  Hang in there, stay strong... God Bless!... Kathy