What a WONDERFUL day

foxhd said:

dose

The post dropped the rest of my reply. Angec, the dose is 10 mg/kg of body weight. It is the highest dosage. Other dosages are .3 or 2 mg/kg. I heard talk that down the road, a quarterly or semi annually dose may be given as a "maintainance" thingy. If there are side effects, I don't notice them anymore. Maybe dry skin and ?fatigue. Not worth being concerned over.

Thanks Fox.... So nothing like high blood pressure etc.  mom had her scan yesterday and from what my sister thinks her results are mixed.   Not sure yet as I didn't see the reports. 

so, do they think this is the sort of thing where eventually you will be off treatment and only have to take it quarterly?  if so that is great....why so long a wait to get it on the market.   Soon I hope!  Xxoo

Oh just saw this also

http://investorshub.advfn.com/boards/read_msg.aspx?message_id=85877266

one putt said:

Smiles

Fox, At the risk of one of Gary's famous responses, let me piggyback on Alice's congratulations on your excellent progress. As a fellow MDX patient I have closely followed your posts, and from day one have used your results as a goal for myself. Keep up the good work .

Piggyback and doggie...Hmmm, what the mind conjures up

(You did kinda ask for it)

I ALSO PASTED THIS ON THE "VOTRIENT SIDE EFFECTS LINK"

GOOD NEWS!!  GOOD NEWS!  GOOD NEWS!  I dont' know how long this news will hold but i am going to live in the moment!  As you know mom 80, has stage 4 rcc. She has some nodes, lungs and duoden wall.  She started Votrient 400 mgs (had to decrease due to bp and headaches) on December 21, 2012. She has had to come off of it several times since then. She is off for two weeks now also. Here is the good news! Everything is shrinking.. .only one node in the stomach is more prominent and one node is slightly enlarged or stable in the lung area. But since the last scan she didn't start the meds for two months so it could have been from that period on.  I cannot tell you what a sigh of releif this is. My sister had the report last night and told me it was worse because she didn't understand it. I was up crying and crying all night because i didn't know how to tell mom, she endured like a trooper with the side affects for 6 weeks.  But today she reread it and things are going the way we hope. Let's pray they continue in that direction.  I am about to pass out with relief!  I am so glad to add to the string of good news that has been happening on these boards. I pray for those others that they get some relief as well.

I AM GOING  TO HAVE A BEER! I HATE BEER!

angec said:

MORE GOOD NEWS!

I ALSO PASTED THIS ON THE "VOTRIENT SIDE EFFECTS LINK"

 

GOOD NEWS!!  GOOD NEWS!  GOOD NEWS!  I dont' know how long this news will hold but i am going to live in the moment!  As you know mom 80, has stage 4 rcc. She has some nodes, lungs and duoden wall.  She started Votrient 400 mgs (had to decrease due to bp and headaches) on December 21, 2012. She has had to come off of it several times since then. She is off for two weeks now also. Here is the good news! Everything is shrinking.. .only one node in the stomach is more prominent and one node is slightly enlarged or stable in the lung area. But since the last scan she didn't start the meds for two months so it could have been from that period on.  I cannot tell you what a sigh of releif this is. My sister had the report last night and told me it was worse because she didn't understand it. I was up crying and crying all night because i didn't know how to tell mom, she endured like a trooper with the side affects for 6 weeks.  But today she reread it and things are going the way we hope. Let's pray they continue in that direction.  I am about to pass out with relief!  I am so glad to add to the string of good news that has been happening on these boards. I pray for those others that they get some relief as well.

 

I AM GOING  TO HAVE A BEER! I HATE BEER!

THAT'S GREAT ANG!!!  Gotta love all the good news lately, tip of the ole iceberg and RCC is going down like the Titanic.

Really great news!!!  I have been reading your posts since my surgery on October 5 of last year.  11CM  T3a Grade 3  sinus fat invasion  muscular branch invasion etc.  While I am not really afraid of dying I am afriad of living sometimes......just waiting on my next scan.  Reading your posts really helps me understand that there is plenty of life and hope regardless of that next scan.   I want to say thank you.

foxhd said:

Hope

Don, it is all about hope. And follow through. And persistence. A crapload of luck. And believing in your doctors and facility. Ask yourself, If you had a week to live, would you sit and worry or be depressed, or enjoy the life you had left? Love your family, enjoy the beach, ride your motorcycle, golf with Wedgie at Carnoustie.  Life is for living. Rest when you are dead. And DON"T waste energy on worrying. I can't imagine any circumstance where it can be productive.

Fox, you give us all hope!  I'm so pleased for you!   I don't post much, but read up several times per week!

Angec, so glad to hear yr mom is getting great results as well.

my surgery was 3/28/12, Stage 3, Grade 4, 9cm.   On double blind study w Votrient.  In October, a CT revealed a spot on my remaining adrenal, but my CT in February showed shrinkage!  Female, 50 yrs old.

is anybody going to be at the Kidney Cancer Symposium in Houston 4/06/13?

Lorraine

angec said:

Thanks everyone!  Lorraine, I

Thanks everyone!  Lorraine, I am glad to see shrinkage for you.  It means you are getting th Votrient I assume.  Any side affects for you?  I hope you to continue to do well!  Xxoo

 

Fox, I like Margaritas....but if I have to save the beer for you or mom then I might as well have a pina colada!!   Love those! 

 

I hope to get a good nights sleep tonight!

You sure deserve it, and so does your Mom!

Nice to see that lovely smile again once in a while Raine.  Almost a year since your nephrectomy!  How are you getting on on Votrient - any bothersome side-effects?

foxhd said:

Hope

Don, it is all about hope. And follow through. And persistence. A crapload of luck. And believing in your doctors and facility. Ask yourself, If you had a week to live, would you sit and worry or be depressed, or enjoy the life you had left? Love your family, enjoy the beach, ride your motorcycle, golf with Wedgie at Carnoustie.  Life is for living. Rest when you are dead. And DON"T waste energy on worrying. I can't imagine any circumstance where it can be productive.

This is a quote I ran across and put on my computer screen at work and it reminds me of you:

"LIFE IS NOT A JOURNEY TO THE GRAVE WITH THE INTENTION OF ARRIVING SAFELY IN A PRETTY AND WELL PRESERVED BODY, BUT RATHER TO SKID IN BROADSIDE, THOROUGHLY USED UP, TOTALLY WORN OUT, AND LOUDLY PROCLAIMING, WOW! WHAT A RIDE!!!"

And this is a little list I put together myself as a reminder to have your attitude every day: (it's also on my screen)

*While your mind works...solve puzzles and riddles every day

*While your legs work...walk, run or skip every day

*While your eyes work...appreciate what you see every day

*While your ears work...appreciate beautiful sounds every day

*While you're alive...be sure you live!!

I'll also add:  While you have 1 good kidney drink good beer!!!

Eims said:

You are an inspiration to all

You are an inspiration to all x

Congrats Fox and may it continue to keep on getting even better for you.  You are such an inspiration to us all.