Starting out to destroy this anal cancer!!

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  • Marynb
    Marynb Member Posts: 1,118
    #62
    SisterPretty said:

    Feeling Better
    Hi everyone,
    Thanks for all your advice, I really value everyone's input and experiences.
    I did speak with my oncologists nurse and she didn't think any of my symptoms , blood in mucous and stomach pains were connected with my treatments. After speaking with her I made an appt with my family Doctor with was very lucky because the day of my appt I went to the bathroom stood up and was dripping blood. He diagnosised me with a urinary tract infection ( I did not have any pain on urination and still don't, just a burning vaginal pain which matches my burning anal pain) I am on antibiotic but have been lying in bed for three days, feeling exhausted and in pain. Today, feeling much better up and dressed and cleaned the house. Hopefully, I am on the road to recovery and nothing else will come up.
    I asked to see dietician but nurse said no, I will see a naturopath myself as I agree knowing what to eat and drink is very confusing!

    Sister

    I am glad you are feeling a bit better. Maybe you should call your health insurance company and ask about the dietician. Sounds very, very odd that your cancer hospital didn't refer you to the dietician assigned to oncology. Very strange. Also, what did they say about you spitting up blood?

    Take good care of yourself now! You will remain in my prayers.

    Mary
  • SisterPretty
    SisterPretty Member Posts: 32
    #63
    Marynb said:

    Sister

    I am glad you are feeling a bit better. Maybe you should call your health insurance company and ask about the dietician. Sounds very, very odd that your cancer hospital didn't refer you to the dietician assigned to oncology. Very strange. Also, what did they say about you spitting up blood?

    Take good care of yourself now! You will remain in my prayers.

    Mary

    Dietician
    Hi Mary,
    My family doctor is monitoring the blood I am spitting up. My medical insurance does cover a natural path doctor and dietician so I will go through them to see these professionals. I don't understand why my oncologist won't refer me to the dietician in the hospital the nurse told me she was relying my messages to him. When I see him in April I will be asking him why they would not refer me to the dietician, it seems to me they don't want to see me unless my problems are chemo related. Actually, there is a number at the hospital where you can express your concerns and complaints, I should leave a message with my concerns.
    My appetite is very poor and I can only eat small portions and suffer terrible stomach pains if I eat dairy and fruits. I am just feeling like myself today, I have been suffering from a bladder infection and been in bed for three days.
    Thank-you for your thoughts and prayers.
  • LisaMMiles
    LisaMMiles Member Posts: 38
    #64
    eihtak said:

    Just to clarify.....

    Although it is someimes "described as brutal and barbaric" this was also NOT the case for me. I did have some compications that arose from my ostomy surgery made worse by radiation, but was spared any painful bowel issues that so many suffer such horrific pain from.

    Thats whats soooo great about this site: a variety of experiences and paths all with the same goal!

    Praying that the terms brutal and barbaric don't apply!

    I hate to say it, but brutal

    I hate to say it, but brutal and barbaric is how I would describe my side effects. It has been horrible for me :( I just finished my 6 weeks of treatment and still in lots of pain! Need to talk to someone about how long I will have to live with these side effects :(

  • mp327
    mp327 Member Posts: 4,440 Member
    #65
    LisaMMiles said:

    I hate to say it, but brutal

    I hate to say it, but brutal and barbaric is how I would describe my side effects. It has been horrible for me :( I just finished my 6 weeks of treatment and still in lots of pain! Need to talk to someone about how long I will have to live with these side effects :(

    Lisa

    I think most people on this board will agree with me that most side effects diminish rather quickly after treatment ends.  I felt much better in about 10 days.  Some side effects do linger and occasionally some can be long-term, but most of us have learned to cope with any such issues and live pretty normal lives.  This is my hope for you.  Just give yourself some time to heal, as your body has been through a lot in the last few weeks.  No one can tell you how long it will be before things improve, as everyone is different, but in most cases, healing happens fairly quickly.  Don't get discouraged and just be patient.  Stay well-hydrated and eat lots of good protein to promote healing.  A little light exercise every day will also help to boost your energy.  I wish you all the best and hope you'll keep us posted on how things are going. 

  • Marynb
    Marynb Member Posts: 1,118
    #66
    SisterPretty said:

    Dietician
    Hi Mary,
    My family doctor is monitoring the blood I am spitting up. My medical insurance does cover a natural path doctor and dietician so I will go through them to see these professionals. I don't understand why my oncologist won't refer me to the dietician in the hospital the nurse told me she was relying my messages to him. When I see him in April I will be asking him why they would not refer me to the dietician, it seems to me they don't want to see me unless my problems are chemo related. Actually, there is a number at the hospital where you can express your concerns and complaints, I should leave a message with my concerns.
    My appetite is very poor and I can only eat small portions and suffer terrible stomach pains if I eat dairy and fruits. I am just feeling like myself today, I have been suffering from a bladder infection and been in bed for three days.
    Thank-you for your thoughts and prayers.

    Sister
    The dietician that I saw in the hospital recommended a plant based diet when possible. Safe food for me were potatoes, green beans, peanut butter on rice crackers, eggs, greek yogurt, applesauce, rice, soups. Stay away from fatty foods for awhile. Chicken and fish are ok if you eat them.

    I hope you feel better very soon!

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