Sometimes the Doc just has to listen....

I'm so sorry to hear about your sister. Does she live near? Sometimes it just seems like too much, doesn't it.

I am glad that your onc realized and admitted that she had not been listening. So many doctors don't. My poor hubby would be much further along in treatment if only the first doctor had listened and read all the medical history I provided, and it would have saved 2 hospitalizations and a medical error created surgery if only someone had listened. This is so odd and was a "red flag", I know, but our first ENT visit was on Election Day. The very first words out of this ENT's mouth when we met for the first time were "We need to get this Muslim out of office." We were not there to discuss his political beliefs, so if his head was up his a$$ over the election, perhaps he should have closed for the day.

I'm sorry about your side effects. I know JBG had a really rough time with various chemos. I sure don't understand how some people can work through these treatments.

My hubby hasn't been able to eat properly for quite some time and now has a G-tube, but remains quite weak, despite sporadic nourishment. He's finished 7 of 10 lung rads. No big side effects yet, but I'm sure they'll come later. Home Health visits once a week. Still quite pleased with MD Anderson.

Where and when is your surgery?

My best to you , your lovely wife, and sister and family.

Luv,

Wolfen

wolfen said:

Oh, Mike

I'm so sorry to hear about your sister. Does she live near? Sometimes it just seems like too much, doesn't it.

I am glad that your onc realized and admitted that she had not been listening. So many doctors don't. My poor hubby would be much further along in treatment if only the first doctor had listened and read all the medical history I provided, and it would have saved 2 hospitalizations and a medical error created surgery if only someone had listened. This is so odd and was a "red flag", I know, but our first ENT visit was on Election Day. The very first words out of this ENT's mouth when we met for the first time were "We need to get this Muslim out of office." We were not there to discuss his political beliefs, so if his head was up his a$$ over the election, perhaps he should have closed for the day.

I'm sorry about your side effects. I know JBG had a really rough time with various chemos. I sure don't understand how some people can work through these treatments.

My hubby hasn't been able to eat properly for quite some time and now has a G-tube, but remains quite weak, despite sporadic nourishment. He's finished 7 of 10 lung rads. No big side effects yet, but I'm sure they'll come later. Home Health visits once a week. Still quite pleased with MD Anderson.

Where and when is your surgery?

My best to you , your lovely wife, and sister and family.

Luv,

Wolfen

we have never spoke before i am wolfens daughter.i have had alot of times when my onc did not listen,sometimes i feel i am the doc but not getting paid for the job.i am sorry about your sis maybe she can join our forum.i have fond childhood memories of the Arizona mountains near Flagstaff we spent alot of time up there.its great you are almost done with chemo just another step closer to surgery.good luck and nice to meet you....Godbless...johnnybegood

thxmiker said:

The side affects were worse

The side affects were worse for me with FOLFOX.  I still can not feel my toes.

 

The Nausea is really severe with FOLFIRI for me.  I use steel cut oats in my rice maker to make oatmeal poridge, and add a dash of maple.  My wife whom professes to hate oatmeal, now likes this mix also. (Sanyo and Panasonic make a very reasonable rice maker that does a grate job for around $100, or found on eBay for around $50.) My Onc liked the oatmeal, stating it is better then more chemicals.

 

Juicing when I feel depeleted, is a real help. (12 Carrots, a clove of garlic, and a stick of celery - Juicing for Life is a great read.)  I also make Peanut Butter, Oatmeal, honey cookies. (Alton Brown recipe)   Bananas are a must!

 

My surgery will be in San Diego at UCSD Moore's Cancer Institute, Andrew Lowey, MD, PhD, etc...  A 1/2 mile (1 Km) from the beach, a beautiful campus, and Lowey's team has incredible results. Most likely I will get HIPEC and surgery, a 14-18 hour procedure.  We have friends whom have offered a beach condo for us to use. I am blessed with many generous friends. We also may stay in Ventura for another of week to enjoy the beach and let me have additional recovery.

 

Carol, my sister is a School teacher in Houston. She teaches computer science in the hood and loves it!  She started a breakfast program, and a tutoring program at her school. She hates the politics, but loves teaching.  The Kids stole her car (with her husband's approval.), reupholstered and painted it in a week.  Like me she went to see the Doc for stomach pains, had a CT that showed a tumor.  She will have surgery in a month. 

 

Wolfen, I am sorry that you and your husband are having a difficult time. If only the Docs would listen. I completed my Paramedic in 1987, for my own knowledge and zero desire to work in the field. With this little knowledge it allowed me to question my Docs over the years. 

 

Best Always, mike

Hi Mike,

I live in San Diego....please PM me if I can be of any help to you and your family.

Sorry about your sister

Tommycat

oops

thxmiker said:

The side affects were worse

The side affects were worse for me with FOLFOX.  I still can not feel my toes.

 

The Nausea is really severe with FOLFIRI for me.  I use steel cut oats in my rice maker to make oatmeal poridge, and add a dash of maple.  My wife whom professes to hate oatmeal, now likes this mix also. (Sanyo and Panasonic make a very reasonable rice maker that does a grate job for around $100, or found on eBay for around $50.) My Onc liked the oatmeal, stating it is better then more chemicals.

 

Juicing when I feel depeleted, is a real help. (12 Carrots, a clove of garlic, and a stick of celery - Juicing for Life is a great read.)  I also make Peanut Butter, Oatmeal, honey cookies. (Alton Brown recipe)   Bananas are a must!

 

My surgery will be in San Diego at UCSD Moore's Cancer Institute, Andrew Lowey, MD, PhD, etc...  A 1/2 mile (1 Km) from the beach, a beautiful campus, and Lowey's team has incredible results. Most likely I will get HIPEC and surgery, a 14-18 hour procedure.  We have friends whom have offered a beach condo for us to use. I am blessed with many generous friends. We also may stay in Ventura for another of week to enjoy the beach and let me have additional recovery.

 

Carol, my sister is a School teacher in Houston. She teaches computer science in the hood and loves it!  She started a breakfast program, and a tutoring program at her school. She hates the politics, but loves teaching.  The Kids stole her car (with her husband's approval.), reupholstered and painted it in a week.  Like me she went to see the Doc for stomach pains, had a CT that showed a tumor.  She will have surgery in a month. 

 

Wolfen, I am sorry that you and your husband are having a difficult time. If only the Docs would listen. I completed my Paramedic in 1987, for my own knowledge and zero desire to work in the field. With this little knowledge it allowed me to question my Docs over the years. 

 

Best Always, mike