Neupogen bone and muscle pain

bkelli2000
bkelli2000 Member Posts: 5
in Breast Cancer #1

Hi my name is Kellli I am 42 years old .I have Inflammatory breast cancer.Estrogen, Progesterone, nodal, and her2 positive. I did one round of AC chemo and then my white blood cells dropped to 0.3  I just finished 5 days of the shot Neupogen the pain in my body is head to toe and is horrific. Bone pain muscle pain at about an 8. I have a high pain tolerance and had few issues with chemo but it was toleraable. Has anyone else had this reaction to this shot? it is hard for me to even walk. If you have taken Neupogen also did you have to do it after every round of chemo? I don't know how to tolerate this pain any longer.

Comments

  • carkris
    carkris Member Posts: 4,553 Member
    #2
    I always got neulasta the day

    I always got neulasta the day after AC. I had minimal pain, but others have had sucess taking claritin for a few days. approved by their oncs. Can you take ibuprophen? ask your doc about pain meds. sorry you are in pain. hugs

  • bkelli2000
    bkelli2000 Member Posts: 5
    #3
    carkris said:

    I always got neulasta the day

    I always got neulasta the day after AC. I had minimal pain, but others have had sucess taking claritin for a few days. approved by their oncs. Can you take ibuprophen? ask your doc about pain meds. sorry you are in pain. hugs

    thank you

    I have tried the Claratin ibu ect. nothing is touching the pain. Not sure why my body is reacting like this. thanks

  • starynights
    starynights Member Posts: 2
    #4
    bkelli2000 said:

    thank you

    I have tried the Claratin ibu ect. nothing is touching the pain. Not sure why my body is reacting like this. thanks

    Bone pain

    I was told by my chemo nurse to take the Claritin the day before and five days after. I get mine on Monday so Ill let you know how it works for me. Pray I dont have to get it but once.

  • starynights
    starynights Member Posts: 2
    #5
    bkelli2000 said:

    thank you

    I have tried the Claratin ibu ect. nothing is touching the pain. Not sure why my body is reacting like this. thanks

    Bone pain

    I was told by my chemo nurse to take the Claritin the day before and five days after. I get mine on Monday so Ill let you know how it works for me. Pray I dont have to get it but once.

  • Snowkitty
    Snowkitty Member Posts: 295
    #6
    Neupogen

    Three years ago, I was supposed to take Neupogen for 10 days.  Quit at day 5 because of the pain.  Doc told me to take ibprophen and that did the trick.

    I remember from day one of the first shot, I felt achy; a little more with each daily shot. Didn't relate it to the shot till the pain got so bad at day 5, I couldn't even speak.  Just whimpered.

    I went thru the rest of chemo without the Neupogen.

     

    Take care, Cindy

     

  • Angie2U
    Angie2U Member Posts: 2,991
    #7
    bkelli2000 said:

    thank you

    I have tried the Claratin ibu ect. nothing is touching the pain. Not sure why my body is reacting like this. thanks

    Have you talked to your

    Have you talked to your oncologist about giving you something stronger for the pain?  Maybe a patch?  I hope you get some relief.

     

  • TeriWalters
    TeriWalters Member Posts: 1
    edited November 2021 #8
    Muscle spasms and pain

    I am new to this site and don't see any current discussions on this. I am 62yo and just had my first round of Taxotere and Cytoxan, followed by the Neulasta injection for Ductal Invasive Breast Cancer. This pain just started day 5 after that, and it is awful! Never had muscle spasms like this before and hurts to sit, stand, lie, or move. Tylenol isn't touching it. Any advice or comments are appreciated. 

  • Lynn1988
    Lynn1988 Member Posts: 2 Member
    edited November 2021 #9
    As difficult as it is, and

    As difficult as it is, and beleive me, I thought it would be difficult; just some short walks helped me with the knee pain, etc. etc. It seems the movement does ease the pain. Are you on any meds for the pain?

    Lynn

  • gmamac
    gmamac Member Posts: 19 Member
    #10

    I had Neulasta injections the day after chemo with my treatment 7 years ago. I know the pain was very disruptive and another devastating blow to a lousy year. I was offered to participate in a pain study through a teaching hospital in a nearby city and jumped at the chance. It was a double-blind study comparing Cymbalta with a placebo for off-label pain management. I was lucky enough to get the active medication and after a week or so I experienced a huge relief- not just with much of the pain but also with a depression I did not even realize I was battling. I remember telling the nurse who conducted surveys and special lab tests monthly on the study that I actually felt hope return when I hadn't realized I even lost it. I stayed on 60 mg of Duloxetine (generic for Cymbalta) for several years to help manage recovery pain and perhaps depression. This last year I was diagnosed with a recurrence of metastatic BC at stage4 and the first thing I asked for was Duloxetine...I believe it was a good decision. ty still helps with the cancer pain and the side effects of my new medication. Might be something you will talk to your doctor about. Best wishes.

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