Lost My Voice
Comments
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tackstrip - new thread would be helpful for finding earstackstrip said:Voice
Well its been almost 3 months since I last posted here. Made it through my Radiation Treatment. It got tough, voice did get a little better month back but now I am at whisper again. I feel like I can't catch my breath when I try to talk to some one. Like something not working right. Starting to get the mucous build up again to. But I am eating pretty good again. Go for PET scan next week just to see where were at. Then maybe start me on chemo for the spots they found on lung in November. Just looking for an ear.
Greetings, tackstrip The good people on this forum have wonderful ears and it would be easier to find them by starting a new thread. I am glad I scrolled all the way down on this old thread or I would have missed your post. It seems as though you have made some positive progress since you posted here 3 months ago. Sending wishes for the best of outcomes as you continue with treatment.
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Threadalligatorpointer said:tackstrip - new thread would be helpful for finding ears
Greetings, tackstrip The good people on this forum have wonderful ears and it would be easier to find them by starting a new thread. I am glad I scrolled all the way down on this old thread or I would have missed your post. It seems as though you have made some positive progress since you posted here 3 months ago. Sending wishes for the best of outcomes as you continue with treatment.
I know I wouldn't take care of a new thread like I should. As far as disscussing concerns with my MD's I really don't have anymore. I was 600 miles from home getting top notch care from University of Mich, cancer center. They diagnosed me, got me ready for radiation and gave me radiation treatments. Now I am back home in one horse town, Ironwood, MI. in the upper peninsula. I have to drive to Marquette for PET and have seen a new oncologist here in Ironwood. He is the one who ordered PET and said I should get chemo. I am only couple monthes out of RT but dont feel like I am getting any better anymore. I hope I am wrong. Just have to hang in there I guess. Not married, buried mother in November. Have daughter in Cincinnati but don't know how I could get everything transferred down there. She wants me to but I feel like burden. More later. Wayne
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Taking caretackstrip said:Thread
I know I wouldn't take care of a new thread like I should. As far as disscussing concerns with my MD's I really don't have anymore. I was 600 miles from home getting top notch care from University of Mich, cancer center. They diagnosed me, got me ready for radiation and gave me radiation treatments. Now I am back home in one horse town, Ironwood, MI. in the upper peninsula. I have to drive to Marquette for PET and have seen a new oncologist here in Ironwood. He is the one who ordered PET and said I should get chemo. I am only couple monthes out of RT but dont feel like I am getting any better anymore. I hope I am wrong. Just have to hang in there I guess. Not married, buried mother in November. Have daughter in Cincinnati but don't know how I could get everything transferred down there. She wants me to but I feel like burden. More later. Wayne
Wayne, new threads come and go fairly quickly on this forum ... you do not need to "take care" of a new thread. Infact, you can start a new thread each time you post something related to yourself. It just helps those who want to respond avoid having to scroll all the way to the bottom of an old thread that was started by someone else to find your latest comment about what is happening with you. Your current situation is one that forum members might be able to provide some words of experience and wisdom about if they can find your posts. I am aware of how isolated the upper peninsula of MI can be for having access to medical facilities. Staying home in a remote place like Ironwood is not a good thing if it means that you are all alone when dealing with a serious health crisis. Having family and friends nearby is something that can make undergoing cancer treatment so much easier to endure. If your daughter wants you to move closer to her in Cincinnati, then getting your medical records transferred to a major cancer center near her is something that should simply require sending a request to your current doctors. You have a computer, so look online for a major cancer center in Cincinati that is highly regarded and make some phone calls to the doctors in that center who have the credentials you need. Set up an appt. and call your current doctors to send your records to the new doctor. If I were your daughter, it would not seem like a burden to have you live near (or with) me during this time when you need to be close to those who love and care about you and within easy access of major medical facilities. Please consider giving your daughter the gift of close proximity to you at this time when she wants you near so that she can help tend to you. Then introduce her to this forum. The information and support provided by the good people who post here is a source of strength for caregivers, too.
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motivationalligatorpointer said:Taking care
Wayne, new threads come and go fairly quickly on this forum ... you do not need to "take care" of a new thread. Infact, you can start a new thread each time you post something related to yourself. It just helps those who want to respond avoid having to scroll all the way to the bottom of an old thread that was started by someone else to find your latest comment about what is happening with you. Your current situation is one that forum members might be able to provide some words of experience and wisdom about if they can find your posts. I am aware of how isolated the upper peninsula of MI can be for having access to medical facilities. Staying home in a remote place like Ironwood is not a good thing if it means that you are all alone when dealing with a serious health crisis. Having family and friends nearby is something that can make undergoing cancer treatment so much easier to endure. If your daughter wants you to move closer to her in Cincinnati, then getting your medical records transferred to a major cancer center near her is something that should simply require sending a request to your current doctors. You have a computer, so look online for a major cancer center in Cincinati that is highly regarded and make some phone calls to the doctors in that center who have the credentials you need. Set up an appt. and call your current doctors to send your records to the new doctor. If I were your daughter, it would not seem like a burden to have you live near (or with) me during this time when you need to be close to those who love and care about you and within easy access of major medical facilities. Please consider giving your daughter the gift of close proximity to you at this time when she wants you near so that she can help tend to you. Then introduce her to this forum. The information and support provided by the good people who post here is a source of strength for caregivers, too.
Thank you for your reply, very well said. And true. Sometimes I just got to hear it from somebody. Just need a good kick in the **** now and then.
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Tackstrip....tackstrip said:motivation
Thank you for your reply, very well said. And true. Sometimes I just got to hear it from somebody. Just need a good kick in the **** now and then.
If you go to the top of the topic threads where you see "HEAD and NECK" cancer, below that are blue letters that say "post new forum topic". Click on that and you could start your topic and tell us your story. You will get a lot more responses and help for yourself.
BTW....We're from Michigan and loved one was treated at U of M also.
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tackstrip ... a new thread has been started for youtackstrip said:motivation
Thank you for your reply, very well said. And true. Sometimes I just got to hear it from somebody. Just need a good kick in the **** now and then.
Wayne (tackstrip) One of the nice members of this forum (Pam M) started a new thread for you with the subject line "Say Hello to Tackstrip!". You have received several helpful comments on that new thread from other forum members. I just wanted to make this final post on here with the link to the new thread in case you look at this old thread again. Hopefully this old thread will not be used anymore ... but instead, you and others who want to communicate with you will go to the new thread at the following link:
http://csn.cancer.org/node/255752
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