Any news from hiccup?

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Comments

  • lianadw
    lianadw Member Posts: 72
    #42
    unknown said:

    I'm getting a kick outta these replies :)

    You guys are something else. I'm not sure I'm really flying, it feels closer to floating like a low hanging balloon missing half its helium.

     

    These have been some strange days, and sometimes the hardest part is just giving up your privacy and letting the hospital just do its thing. Today my ANC hit 0 and WBCs are at .1. So, they have brought on the big guns.. Cipro, Ketokonazole, and all of these other long-winded pharmaceuticals to keep me from turing inside out (ha!)

     

    Tomorrow, they're going to start Neupogen shots again to see if my re-ingrafting cells can get shaken into action! Oh please let this do the trick!!!! I just can't wait to spring from this joint :)

    Hugs all around!!

     

    -Nathan

    you're an inspiration

    Hi Nathan,

    I'm happy to hear your weathering this so well. It helps me to keep my courage up. I'm in the hospital getting my second round of R-ICE. If the next pet scan looks good I will be starting mobilization. The Transplant is tentatively scheduled for May 20th. I'm eager to get this all behind me.

    Hope your numbers come up quickly and that you can go home to your kittens soon!

    love and light,

    Liana

     

     

     

  • forme
    forme Member Posts: 1,161 Member
    #43
    lianadw said:

    you're an inspiration

    Hi Nathan,

    I'm happy to hear your weathering this so well. It helps me to keep my courage up. I'm in the hospital getting my second round of R-ICE. If the next pet scan looks good I will be starting mobilization. The Transplant is tentatively scheduled for May 20th. I'm eager to get this all behind me.

    Hope your numbers come up quickly and that you can go home to your kittens soon!

    love and light,

    Liana

     

     

     

    Thinking of you

    Hi Liana

     

    I just wanted to say that I was thinking of you and sending you lots of support and tons of gentle hugs.

    Hopefully your room has a nice view, everything is so green right now. You're at Stanford if I remember correctly, I know that place inside and out.

    I'm just right down the road.

    We are all here for you, day and night.

    Lisha

  • lianadw
    lianadw Member Posts: 72
    #44
    forme said:

    Thinking of you

    Hi Liana

     

    I just wanted to say that I was thinking of you and sending you lots of support and tons of gentle hugs.

    Hopefully your room has a nice view, everything is so green right now. You're at Stanford if I remember correctly, I know that place inside and out.

    I'm just right down the road.

    We are all here for you, day and night.

    Lisha

    Thanks for thinking of me!

    Hi Lisha,

    I'm in Kaiser right now for the R-ICE. My next Pet is the 20th, and if that shows enough improvement I will start doing out patient treatment at Stanford in April. May I do the inpatient at Stanford. I got my calendar from them just today. So keep sending those good thoughts for a good pet scan on the 20th. I am so ready to move forward with the final stages of treatment!

    I was jus looking at the your daughter's wedding pictures. What a lovely family you have!

    Love and light,

    Liana

  • illead
    illead Member Posts: 884 Member
    #45
    unknown said:

    I'm getting a kick outta these replies :)

    You guys are something else. I'm not sure I'm really flying, it feels closer to floating like a low hanging balloon missing half its helium.

     

    These have been some strange days, and sometimes the hardest part is just giving up your privacy and letting the hospital just do its thing. Today my ANC hit 0 and WBCs are at .1. So, they have brought on the big guns.. Cipro, Ketokonazole, and all of these other long-winded pharmaceuticals to keep me from turing inside out (ha!)

     

    Tomorrow, they're going to start Neupogen shots again to see if my re-ingrafting cells can get shaken into action! Oh please let this do the trick!!!! I just can't wait to spring from this joint :)

    Hugs all around!!

     

    -Nathan

    Nathan and Liana

    Our thoughts are totally with you, you are going through so much.  Nathan we cannot believe you are actually posting.  That shows you have what it takes to get thru this, we have no doubts!  Hang in there....you too Liana.  Bill and Becky

  • anliperez915
    anliperez915 Member Posts: 770
    #46
    illead said:

    Nathan and Liana

    Our thoughts are totally with you, you are going through so much.  Nathan we cannot believe you are actually posting.  That shows you have what it takes to get thru this, we have no doubts!  Hang in there....you too Liana.  Bill and Becky

    Hi Nathan

    Hi Nathan,

    Hope you're doing well, sending lots of positive energy your way. Take care and keep us updated when you feel up to it. (((HUGS)))

    Sincerely,

    Liz

  • lianadw
    lianadw Member Posts: 72
    #47
    illead said:

    Nathan and Liana

    Our thoughts are totally with you, you are going through so much.  Nathan we cannot believe you are actually posting.  That shows you have what it takes to get thru this, we have no doubts!  Hang in there....you too Liana.  Bill and Becky

    Bill, Becky, and Nathan

    Bill and Becky, thank you for your well wishes! And thanks for sharing your whale adventures. It sounds like you're having a lovely vacation. Yay!

    Nathan, I'm continuing to send healing thoughts and good vibes your way.

    Hugs to all!

    Liana

  • illead
    illead Member Posts: 884 Member
    #48
    lianadw said:

    Bill, Becky, and Nathan

    Bill and Becky, thank you for your well wishes! And thanks for sharing your whale adventures. It sounds like you're having a lovely vacation. Yay!

    Nathan, I'm continuing to send healing thoughts and good vibes your way.

    Hugs to all!

    Liana

    Thinking about you

    We don't know what you are going through but do know it is not fun.  Please know you are in our thoughts.  With your wonderful attitude, we know you will do great,  Thanks for your thoughts too.  Tonite we went to dinner with our neighbors here and we walked our dogs to the restaurant (both little white fluffys)  They brought a chair for each of them.  Can you imagine that in the states?  It was so cute.  Hang in there, we all care. B&B

  • Unknown
    Unknown
    #49
    lianadw said:

    Bill, Becky, and Nathan

    Bill and Becky, thank you for your well wishes! And thanks for sharing your whale adventures. It sounds like you're having a lovely vacation. Yay!

    Nathan, I'm continuing to send healing thoughts and good vibes your way.

    Hugs to all!

    Liana

    An update!

    Boy!

    This has been quite a ride.... I'm still here in the "big house" as Jim would call it. Yesterday was a bittersweet, confusing & strange day... and it looks like engraftment has taken place!

    My WBCs went from .3 to 1.9, and now today they are 3.6 or so. A lot of this has been pushed forth thanks to many Neulasta shots to the belly. The pain from those shots this time was much more intense than I'd experienced before.

    I'm still on a pitiful leukopenic diet... but right now, things are alright. I underestimated the effects this would have on me mentally, and that has led to a few days of simple disconnection from reality. This is a pretty tough regimen, and I'm hoping it nips this in the bud. I cannot wait to get home and see my cats!

    For now, I just have to mend. They are allowing me to actually go outside for a walk today. I think that may help calm my nerves. I still can't believe I've been in here for nearly 20 days-- that's been one of the hardest parts, being so out of control of life.

    I've been thinking about you all and sending you my extra good vibes... my mind is all mushy, so feel free to ask any questions if you had one.

     

    -Nathan

  • jimwins
    jimwins Member Posts: 2,107
    #50
    unknown said:

    An update!

    Boy!

    This has been quite a ride.... I'm still here in the "big house" as Jim would call it. Yesterday was a bittersweet, confusing & strange day... and it looks like engraftment has taken place!

    My WBCs went from .3 to 1.9, and now today they are 3.6 or so. A lot of this has been pushed forth thanks to many Neulasta shots to the belly. The pain from those shots this time was much more intense than I'd experienced before.

    I'm still on a pitiful leukopenic diet... but right now, things are alright. I underestimated the effects this would have on me mentally, and that has led to a few days of simple disconnection from reality. This is a pretty tough regimen, and I'm hoping it nips this in the bud. I cannot wait to get home and see my cats!

    For now, I just have to mend. They are allowing me to actually go outside for a walk today. I think that may help calm my nerves. I still can't believe I've been in here for nearly 20 days-- that's been one of the hardest parts, being so out of control of life.

    I've been thinking about you all and sending you my extra good vibes... my mind is all mushy, so feel free to ask any questions if you had one.

     

    -Nathan

    Hi Nathan

    Hi Nathan.  I hope you get to go outside today - hopefully that will ease the confinement a little bit.  I think you're doing great!

    Well, I'm visiting my niece and her SIX kids this weekend.  Right now I'm surrounded by noise, confusion and the little ones fighting for my attention. They range in age from 2 to 16.  Also, there are two big dogs jumping on me when they get the chance - they know I'm a sucker ;).  Karianne (5 years) wants me to open a lemonade stand with her.  Justine wants me to play a video game with her.  Benjamin wants me to play video game too.  Now one  of them is bawling like crazy.  Now where is that Ativan?  ;).  Maybe I should make magaritas for everyone so siesta time will come sooner?  Obviously I'm kidding - I won't need the Ativan for another couple hours...

    Hang in there - you're definitely over the hump and your numbers are coming up - that's wonderful news!  Thanks so much for updating us.  Sending hugs and margaritas across the Internet :).  Gotta go.  Karianne and I are going walking to scope out some real estate for that citrus business she wants to start....Tongue Out

    Jim

  • onlytoday
    onlytoday Member Posts: 609 Member
    #51
    unknown said:

    An update!

    Boy!

    This has been quite a ride.... I'm still here in the "big house" as Jim would call it. Yesterday was a bittersweet, confusing & strange day... and it looks like engraftment has taken place!

    My WBCs went from .3 to 1.9, and now today they are 3.6 or so. A lot of this has been pushed forth thanks to many Neulasta shots to the belly. The pain from those shots this time was much more intense than I'd experienced before.

    I'm still on a pitiful leukopenic diet... but right now, things are alright. I underestimated the effects this would have on me mentally, and that has led to a few days of simple disconnection from reality. This is a pretty tough regimen, and I'm hoping it nips this in the bud. I cannot wait to get home and see my cats!

    For now, I just have to mend. They are allowing me to actually go outside for a walk today. I think that may help calm my nerves. I still can't believe I've been in here for nearly 20 days-- that's been one of the hardest parts, being so out of control of life.

    I've been thinking about you all and sending you my extra good vibes... my mind is all mushy, so feel free to ask any questions if you had one.

     

    -Nathan

    You

    Hi Nathan,

     

    Thanks so much for your post!  So good to hear from you as always.  Sounds like you are on the mend - but not without the pin-cushion effect on your belly.  Ugh.  What is your diet like?  Sounds like it's not a hit!

    I live in New Jersey and was so exited by a pathetic 3 inches of snow the other day.  My family gave me cross country skiis 2 years ago and I haven't been able to use them -due to no snow-  until now!!  I went out on Friday (very excited) with my skiis and all my gear over to the park.  Found a perfect spot- geared up- and off I went.  For about six feet.  Dead  stop.  What???!!!  Looked under my skiis and had 4 inches of clumped snow stuck under there!  Now mind you, these are WAXLESS skiis.  Tried again same thing.

    Turns out that if the snow is wet and heavy (which is was) I DO need wax on the skiis.  WHO KNEW??  So with the no snow thing going on I guess I'll pack them up for another 2 years.  GEESH... 

    I truly hope you get outside and get some fresh air.  Being cooped up for that long would get to anyone.  This whole process that you are going thru is truly a roller coaster.  Hand on tight!!  You're almost there!

    Can't wait to hear of the day that you are sprung and go and play with the kittens.  I'm certain they miss you too.

    Best wishes- thinking of you every day,

    Donna

     

     

  • Lucky_Horseshoe
    Lucky_Horseshoe Member Posts: 15
    #52
    unknown said:

    An update!

    Boy!

    This has been quite a ride.... I'm still here in the "big house" as Jim would call it. Yesterday was a bittersweet, confusing & strange day... and it looks like engraftment has taken place!

    My WBCs went from .3 to 1.9, and now today they are 3.6 or so. A lot of this has been pushed forth thanks to many Neulasta shots to the belly. The pain from those shots this time was much more intense than I'd experienced before.

    I'm still on a pitiful leukopenic diet... but right now, things are alright. I underestimated the effects this would have on me mentally, and that has led to a few days of simple disconnection from reality. This is a pretty tough regimen, and I'm hoping it nips this in the bud. I cannot wait to get home and see my cats!

    For now, I just have to mend. They are allowing me to actually go outside for a walk today. I think that may help calm my nerves. I still can't believe I've been in here for nearly 20 days-- that's been one of the hardest parts, being so out of control of life.

    I've been thinking about you all and sending you my extra good vibes... my mind is all mushy, so feel free to ask any questions if you had one.

     

    -Nathan

    Extra Good Vibes

    Nathan,

    I have been reading your posts and am new here.  I have Stage 4 NHL.  My allogenic stem cell transplant was on July 1, 2011.  I know what you are going through.  They kept me for 40 days in the hospital.  For some reason, I didn't want to eat.  They tried to convince me that hospital food was delicious.  Unfortunately for me, I didn't believe them and they kept me longer.  I suggest you do what they say.  It is your key to getting out of there. 

    I am still struggling with Graft Versus Host Disease.  I have had 3 clean scans in a row and am now in remission.

    They didn't let me outside until I was discharged so you are a very lucky man.  And, I too was kept pretty doped up and don't remember a lot of the first couple of weeks.  You are such a strong person for what hell you have been through so far.  I am rooting for you to get out soon and to see your cats and to take a walk in the sunshine and fresh air!!!

    Thanks for the updates.  They are nice to hear.

    Traci

     

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #53
    Lucky_Horseshoe said:

    Extra Good Vibes

    Nathan,

    I have been reading your posts and am new here.  I have Stage 4 NHL.  My allogenic stem cell transplant was on July 1, 2011.  I know what you are going through.  They kept me for 40 days in the hospital.  For some reason, I didn't want to eat.  They tried to convince me that hospital food was delicious.  Unfortunately for me, I didn't believe them and they kept me longer.  I suggest you do what they say.  It is your key to getting out of there. 

    I am still struggling with Graft Versus Host Disease.  I have had 3 clean scans in a row and am now in remission.

    They didn't let me outside until I was discharged so you are a very lucky man.  And, I too was kept pretty doped up and don't remember a lot of the first couple of weeks.  You are such a strong person for what hell you have been through so far.  I am rooting for you to get out soon and to see your cats and to take a walk in the sunshine and fresh air!!!

    Thanks for the updates.  They are nice to hear.

    Traci

     

    Hang in there..

    Hang in there Nathan...You are going to make it through this and come out just fine...I have faith!  Love...Sue (FNHL-2-3A-6/10)

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #54
    Lucky_Horseshoe said:

    Extra Good Vibes

    Nathan,

    I have been reading your posts and am new here.  I have Stage 4 NHL.  My allogenic stem cell transplant was on July 1, 2011.  I know what you are going through.  They kept me for 40 days in the hospital.  For some reason, I didn't want to eat.  They tried to convince me that hospital food was delicious.  Unfortunately for me, I didn't believe them and they kept me longer.  I suggest you do what they say.  It is your key to getting out of there. 

    I am still struggling with Graft Versus Host Disease.  I have had 3 clean scans in a row and am now in remission.

    They didn't let me outside until I was discharged so you are a very lucky man.  And, I too was kept pretty doped up and don't remember a lot of the first couple of weeks.  You are such a strong person for what hell you have been through so far.  I am rooting for you to get out soon and to see your cats and to take a walk in the sunshine and fresh air!!!

    Thanks for the updates.  They are nice to hear.

    Traci

     

    Welcome Traci...

    Hi Traci,

     I looked all over and didn't see a message from me welcoming you to the group! OOPS...dropped the ball...sorry! Anyways..."WELCOME"! I haven't had a SCT, so I'm very little help for those going through it. I hope all is going well for you since your SCT. Best wishes...Sue  (FNHL-2-3A-6/10-age 62)

  • lianadw
    lianadw Member Posts: 72
    #55
    unknown said:

    An update!

    Boy!

    This has been quite a ride.... I'm still here in the "big house" as Jim would call it. Yesterday was a bittersweet, confusing & strange day... and it looks like engraftment has taken place!

    My WBCs went from .3 to 1.9, and now today they are 3.6 or so. A lot of this has been pushed forth thanks to many Neulasta shots to the belly. The pain from those shots this time was much more intense than I'd experienced before.

    I'm still on a pitiful leukopenic diet... but right now, things are alright. I underestimated the effects this would have on me mentally, and that has led to a few days of simple disconnection from reality. This is a pretty tough regimen, and I'm hoping it nips this in the bud. I cannot wait to get home and see my cats!

    For now, I just have to mend. They are allowing me to actually go outside for a walk today. I think that may help calm my nerves. I still can't believe I've been in here for nearly 20 days-- that's been one of the hardest parts, being so out of control of life.

    I've been thinking about you all and sending you my extra good vibes... my mind is all mushy, so feel free to ask any questions if you had one.

     

    -Nathan

    congrats on the engraftment!

    Hi Nathan,

    It's so good to hear that you've gotten through what is probably the hardest of all of this, and that you're on the mend! Hope your getting more time outside, and get to see your kittens soon.

    I have two cats and two children, and being away from them will be so hard when I go through my procedure. 20+ days is just so long. At least the family can visit, but that won't work for the cats. Need to get them certified as therapy cats.

    Sending good thoughts and healing vibes your way.

    Warmly,

    Liana

     

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