update: disease progression

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Comments

  • YoVita
    YoVita Member Posts: 590 Member
    #22
    Thank you

    for your update and your many years of sharing your story with us.  You sound very grounded.  Good luck with the TMZ.  Best wishes for reaching your next beacon.  

  • Varmint5
    Varmint5 Member Posts: 384 Member
    #23
    Tara

    I admire your grace and courage as you deal with this. You have been such a trouper. I hope this TMZ will be an option for you. You are amazing and it is good to hear from you. You sound good. I'm sorry about the progression and wish things could be different for you. Thinking of you.

    Sandy

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #24
    starring into the sun

    is book i could not put down.

    my prayers.

    hugs,

    pete

  • taraHK
    taraHK Member Posts: 1,952 Member
    #25
    Thank you!

    Thank you for the many, many warm comments and words of thanks. Special thanks to LesvanB for the book recommendations (and advice on not squinting!) and to Pete lost-at-sea too for book recommendation.

    They weren't able to do the biopsy (elusive little sucker!). I'm going to go ahead with the drug anyway...Will let you know how it goes. 

    Meanwhile, making plans to go to Hawaii for Easter holiday!!

  • steved
    steved Member Posts: 834 Member
    #26
    Thank you

    Thank you for taking the time to update us all. I agree about your sentiments on 'keeping on fighting' and admire your robust and healthy thoughts about your own sitUation. I have always thought that the battle for acceptance about our plights is one of the hardest but seems to be something you have won. Adapting to having cancer and being incurable is a huge challenge and one I can identify with having been there and being given a timeframe. Accepting one is dying is fighting and winning that battle and certainly isn't giving up. 

    Letting go of work is a huge step too but sounds well timed as you move to focus on the quality of the time you have and not the quantity. Having children as we do helps focus your thoughts on what is important in this world and they will remember this time you spend with them. 

    I continue to hope for a good response to your new treatment but more than that I hope you continue to keep strong within yourself and eNjoy every day. As another approaching ten years of this illness I know we havetruly won this battle no matter what the final outcome is.

    With all respect,

    Steve

  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    #27
    tara
    I know we do not talk but i have always followed you since i joined in 2009. You were and still are an inspiration to me and others. Sending you prayers and hugs
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #28
    Tara

    Tara,

    Your post shares the peace you are living in right now.  I love that your boys are now men and that your son will be graduating from college this summer.  My prayer is that you will make it to this beacon.  I'm praying for continued peace.

    Aloha,

    Kathleen

  • Moesimo
    Moesimo Member Posts: 1,072 Member
    #29
    You are my hero!!!!!!

    Tara,

    You are my hero.  I dont post or check like I used too.   Sorry i missed this post. I have been on vacation. 

    As you know,  we were diagnosed around the same time.  Yesterday was the 10th anniversary of my diagnosis. 

    I am sorry that your disease is progressing.  You have been my hero through off of this.  I would not be where I am if it werent for you.  You helped me through some difficult days in the beginning.  You were always just ahead of me in your treatment. You will never know how thankful I am for all your rallying.

    You have carried yourself with such grace and dignity even when you have been dealt such a difficult hand.  I am so happy that you have seen your boys turn into such fine young men.  You have yourself to thank for that.  You have offered such good advice on this board. 

    I really dont know what to say.  I am thinking of you and know that you will be ok.  You are such a wonderful woman.

    Continue to follow your beacon.  You have been my beacon and my shining star.

    My thoughts are with you as you prepare for the next phase of your journey.

    Sending hugs and love,

    Your soul sister Maureen

     

     

  • renw
    renw Member Posts: 282 Member
    #30
    TAS-102
    TAS-102 originally out of Japan is running trials currently.
    Its another option for third line chemo. Regorafenib also a possibility.
  • k44454445
    k44454445 Member Posts: 494
    #31
    Tara

    thank you for the post. prayers for you

    hugs

    judy

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