My doctor seems crazy =/

Tanker2360
Tanker2360 Member Posts: 20
edited March 2013 in Lymphoma (Hodgkin and Non-Hodgkin) #1

Had a follow up today for my Fav Doctor and he examined my glands on neck and groin his words were ( the glands are too small to be lymphoma )

he gave me some sheet of paper and said he thinks i have Bornholm Disease, due to blood work chest xray and utrasound all coming back fine =/

 

im more confused then ever he said that the lumps in my groin are typical for someone who is skinny like me....... this has just made me more worried as i can find no mention of swollen glands being connected to Bornholm Disease =/ very confused and still worried!!! =[

 

No Biopsy for the time being i hope everything starts to settle down soon! =[

more blood tests!!

Comments

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #2
    Sounds more than Crazy !!!

    Not to be short or anything, but you need to seek a second opinion right away. You sound as if you have a God wanna be Dr. You rely on them because you know something is not right and they want to come across as they know your body better than you do. If they are wrong in their diagnosis all they say is, Oh well, win some lose some. In the meantime you may be wasting precious time. There is definitely something that is not right. Seek that 2nd or even 3rd opinion till you get your answers.  John

  • Tanker2360
    Tanker2360 Member Posts: 20
    #3
    COBRA666 said:

    Sounds more than Crazy !!!

    Not to be short or anything, but you need to seek a second opinion right away. You sound as if you have a God wanna be Dr. You rely on them because you know something is not right and they want to come across as they know your body better than you do. If they are wrong in their diagnosis all they say is, Oh well, win some lose some. In the meantime you may be wasting precious time. There is definitely something that is not right. Seek that 2nd or even 3rd opinion till you get your answers.  John

    I have decided to wait for

    I have decided to wait for the blood results to come back to see what they say my neck glands seem to be going up and down in size everyday =/ and the groin glands feel slightly smaller and more " rubbery " then hard...... i don't know anymore =/ 

     

    all these different diagnosis e.t.c none of my doctors i have talked to seem to worried about Lymphoma 

    x3 Doctors at the doctors office

    x3 Surgeons at A&E

    x3 Medical doctors at A&E

     

    out of all them doctors one of them should of been worried about lymphoma if it was right? =/ so many different doctors...

     

    has anyone heard of stress causing swollen glands? =/

     

  • jimwins
    jimwins Member Posts: 2,107
    #4
    hmmmm

    What are the symptoms?

    The main symptom of Bornholm disease is severe stabbing chest pain, which is often made worse by deep breathing, coughing, or sudden movements. The pain tends to come and go, with episodes lasting 15-30 minutes.

    Bornholm disease sometimes also causes tummy pain, fever, headache, sore throat, and muscle pain.

    These symptoms usually start suddenly and persist for several days before going away, without the need for treatment. However, they may return.

    ====

    Quick response - I'm at cancer center getting my scans today.  There is no mention of swollen glands with that disease though I suppose it's possible.  

    Scanxiously, Wink

    Jim

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #5
    Tanker2360 said:

    I have decided to wait for

    I have decided to wait for the blood results to come back to see what they say my neck glands seem to be going up and down in size everyday =/ and the groin glands feel slightly smaller and more " rubbery " then hard...... i don't know anymore =/ 

     

    all these different diagnosis e.t.c none of my doctors i have talked to seem to worried about Lymphoma 

    x3 Doctors at the doctors office

    x3 Surgeons at A&E

    x3 Medical doctors at A&E

     

    out of all them doctors one of them should of been worried about lymphoma if it was right? =/ so many different doctors...

     

    has anyone heard of stress causing swollen glands? =/

     

    ???????????????

    Ask one of the Drs. to refer you to an Oncologist to rule out Lymphoma for sure.  John

  • Tanker2360
    Tanker2360 Member Posts: 20
    #6
    jimwins said:

    hmmmm

    What are the symptoms?

    The main symptom of Bornholm disease is severe stabbing chest pain, which is often made worse by deep breathing, coughing, or sudden movements. The pain tends to come and go, with episodes lasting 15-30 minutes.

    Bornholm disease sometimes also causes tummy pain, fever, headache, sore throat, and muscle pain.

    These symptoms usually start suddenly and persist for several days before going away, without the need for treatment. However, they may return.

    ====

    Quick response - I'm at cancer center getting my scans today.  There is no mention of swollen glands with that disease though I suppose it's possible.  

    Scanxiously, Wink

    Jim

    Also keep getting a naggy

    Also keep getting a naggy pain / Discomfort under my right rib cage =/ 

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #7
    jimwins said:

    hmmmm

    What are the symptoms?

    The main symptom of Bornholm disease is severe stabbing chest pain, which is often made worse by deep breathing, coughing, or sudden movements. The pain tends to come and go, with episodes lasting 15-30 minutes.

    Bornholm disease sometimes also causes tummy pain, fever, headache, sore throat, and muscle pain.

    These symptoms usually start suddenly and persist for several days before going away, without the need for treatment. However, they may return.

    ====

    Quick response - I'm at cancer center getting my scans today.  There is no mention of swollen glands with that disease though I suppose it's possible.  

    Scanxiously, Wink

    Jim

    Good luck Jim...

    Hi Jim,

     Good luck today with your scan! I hope you find out your results in a timely fashion. I still haven't received a call yet to schedule mine, so my anxiety level is low right now. Let us know what you find out.  Sue (FNHL-2-3A-6/10-age62)

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #8
    Tanker2360 said:

    Also keep getting a naggy

    Also keep getting a naggy pain / Discomfort under my right rib cage =/ 

    Stress...

    Hi,

    Your stress level is so high right now that I think you might be overthinking everything. I'm in favor of a second opinion at a clinic that is NOT afilliated with the multiple doctors you have already seen. Are you on medication for anxiety? If not, you might want to ask about getting on a low dose to give your brain a little rest. Hang in there.

    Best wishes...Sue  (FNHL-2-3A-6/10-age62)

  • jimwins
    jimwins Member Posts: 2,107
    #9
    allmost60 said:

    Good luck Jim...

    Hi Jim,

     Good luck today with your scan! I hope you find out your results in a timely fashion. I still haven't received a call yet to schedule mine, so my anxiety level is low right now. Let us know what you find out.  Sue (FNHL-2-3A-6/10-age62)

    I'm having "fun" (eyes rolling)

    Thanks, Sue!  Just had my "margaritas" about 20 minutes ago.  Should do the CT scan in about another 20-30 minutes.

    Hugs

     

  • jimwins
    jimwins Member Posts: 2,107
    #10
    allmost60 said:

    Stress...

    Hi,

    Your stress level is so high right now that I think you might be overthinking everything. I'm in favor of a second opinion at a clinic that is NOT afilliated with the multiple doctors you have already seen. Are you on medication for anxiety? If not, you might want to ask about getting on a low dose to give your brain a little rest. Hang in there.

    Best wishes...Sue  (FNHL-2-3A-6/10-age62)

    Agree with Sue

    I agree with Sue, Tank.  I'll be here at the cancer center for probably another 2-3 hours.

    Hang in there! - Jim

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #11
    jimwins said:

    I'm having "fun" (eyes rolling)

    Thanks, Sue!  Just had my "margaritas" about 20 minutes ago.  Should do the CT scan in about another 20-30 minutes.

    Hugs

     

    Don't forget...

    Hey Jim...

     Every time I get my CT scan I always forget about that crazy "warm" sensation that goes through my body from the contrast. First time I had it done I yelled out.."Uh oh, I'm going to pee my pants" Surprised...the radiologist calmly said.."no..it just feels like your going to". ha! Smile Just thought I'd remind you...Sue

  • Tanker2360
    Tanker2360 Member Posts: 20
    #12
    allmost60 said:

    Don't forget...

    Hey Jim...

     Every time I get my CT scan I always forget about that crazy "warm" sensation that goes through my body from the contrast. First time I had it done I yelled out.."Uh oh, I'm going to pee my pants" Surprised...the radiologist calmly said.."no..it just feels like your going to". ha! Smile Just thought I'd remind you...Sue

    good luck Jim!!! heres hoping

    good luck Jim!!! heres hoping all clear!!!  

    i can't go anywhere else nhs is very limited to loctions usually only doctors office or accident and emergency :/

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #13
    Tanker2360 said:

    good luck Jim!!! heres hoping

    good luck Jim!!! heres hoping all clear!!!  

    i can't go anywhere else nhs is very limited to loctions usually only doctors office or accident and emergency :/

    Well...

    If thats the case, then I would be persistant as hell and not let long lengths of time lapse between voicing your concerns to every doctor working on your case. You have to be your own advocate, so let your voice be heard until you get some answers. The squeeky wheel gets fixed first. In the meantime you need to get a grip on your emotions to bring your stress level down. Meds, counseling, clergy, local support group...whatever it takes... but do something to lessen the stress. Sorry buddy...I just don't know what else to offer in the form of advice. Keeping you in my prayers and good thoughts. Best wishes....Sue  (FNHL-2-3A-6/10-age62)

  • Tanker2360
    Tanker2360 Member Posts: 20
    #14
    allmost60 said:

    Well...

    If thats the case, then I would be persistant as hell and not let long lengths of time lapse between voicing your concerns to every doctor working on your case. You have to be your own advocate, so let your voice be heard until you get some answers. The squeeky wheel gets fixed first. In the meantime you need to get a grip on your emotions to bring your stress level down. Meds, counseling, clergy, local support group...whatever it takes... but do something to lessen the stress. Sorry buddy...I just don't know what else to offer in the form of advice. Keeping you in my prayers and good thoughts. Best wishes....Sue  (FNHL-2-3A-6/10-age62)

    Agreed

    Agreed and i can't thank you all enough for your advice it reallly does make me feel better knowing people care =[

     

    P.s Urine is now cloudy? any thoughts? =/

  • Unknown
    Unknown
    #15
    Tanker2360 said:

    Agreed

    Agreed and i can't thank you all enough for your advice it reallly does make me feel better knowing people care =[

     

    P.s Urine is now cloudy? any thoughts? =/

    Wonderiing

    Have you traveled to the tropics recently? Have you been around sheep, deer or goats?

  • epicc
    epicc Member Posts: 137
    #16
    jimwins said:

    I'm having "fun" (eyes rolling)

    Thanks, Sue!  Just had my "margaritas" about 20 minutes ago.  Should do the CT scan in about another 20-30 minutes.

    Hugs

     

    Good Luck Jim

    Hi Jim,

     

    Good Luck with your scan.  Please let us know as soon as you hear something.  I'm sure all is good!!  Go and drink real Margaritas when you get home..LOL  Love, Emily

  • Tanker2360
    Tanker2360 Member Posts: 20
    #17
    unknown said:

    Wonderiing

    Have you traveled to the tropics recently? Have you been around sheep, deer or goats?

    nope no contct with any farm

    nope no contct with any farm animals going back to doctors in morning original neck glands feel smaller but new one popped up just to left under chin :/ going to ask for referal to ent its small and i can move it but is kind of rubbery feeling 

  • NANCYL1
    NANCYL1 Member Posts: 289
    #18
    Tanker2360 said:

    I have decided to wait for

    I have decided to wait for the blood results to come back to see what they say my neck glands seem to be going up and down in size everyday =/ and the groin glands feel slightly smaller and more " rubbery " then hard...... i don't know anymore =/ 

     

    all these different diagnosis e.t.c none of my doctors i have talked to seem to worried about Lymphoma 

    x3 Doctors at the doctors office

    x3 Surgeons at A&E

    x3 Medical doctors at A&E

     

    out of all them doctors one of them should of been worried about lymphoma if it was right? =/ so many different doctors...

     

    has anyone heard of stress causing swollen glands? =/

     

    DOCTORS

    Have you seen yet an Oncologist/Hematologist??

    I had a number of tests, the final one was a Bone Marrow Biopsy.

    I would  get another opinion from an Oncologist.

     

    Nancy

     

  • NANCYL1
    NANCYL1 Member Posts: 289
    #19
    allmost60 said:

    Don't forget...

    Hey Jim...

     Every time I get my CT scan I always forget about that crazy "warm" sensation that goes through my body from the contrast. First time I had it done I yelled out.."Uh oh, I'm going to pee my pants" Surprised...the radiologist calmly said.."no..it just feels like your going to". ha! Smile Just thought I'd remind you...Sue

    SCAN

    Sue:

    When I had a Scan last year the technician actually handed me a note giving me information about the scan.  The note added that the warm sensation might cause you to think that you might "pee in your pants."  It went on to tell you not to worry; that would not happen!

    Nancy

     

  • NANCYL1
    NANCYL1 Member Posts: 289
    #20
    allmost60 said:

    Don't forget...

    Hey Jim...

     Every time I get my CT scan I always forget about that crazy "warm" sensation that goes through my body from the contrast. First time I had it done I yelled out.."Uh oh, I'm going to pee my pants" Surprised...the radiologist calmly said.."no..it just feels like your going to". ha! Smile Just thought I'd remind you...Sue

    SCAN

    Sue:

    When I had a Scan last year the technician actually handed me a note giving me information about the scan.  The note added that the warm sensation might cause you to think that you might "pee in your pants."  It went on to tell you not to worry; that would not happen!

    Nancy

     

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