Any news from hiccup?
Comments
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Had a margarita for youillead said:Good news
It's always good to hear positive news. Congrats Nathan, it makes our day.
Hey Jim, we flew to Mexico yesterday and are our arms tired! Busy today unpacking and getting the condo in shape. Hope to see some whales, they are in Baja now. Sorry you won't get to fly to France. Maybe when you win the lottery you can afford a real plane, ha ha. Bill and Becky
Hope you guys are having a wonderful time. I had dinner with my brother-in-law at a Mexican restaurant this evening and I had a margarita in your honor!
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Flying on prednisoneallmost60 said:Flight...
Hi Liana,
When I had my first line chemo R-CVP I swear I could fly during the 5 days when I had to take the high dose prednisone...never tried, but there were many nights when I couldn't sleep when I just wanted to jump out the window and take flight! ha!
! The side effects from that nasty drug will never be forgotten! Have a good day sweetie. Love...Sue (FNHL-2-3A-6/10-age62)Hi Sue,
yes I think I've had some flight experience with the prednisone too.
Cheers,
Liana
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A quick update
Hello fellow Survivors,
Hiccup here, on day +2. Most of my blood counts have now dropped significantly, and I can't eat a banana without an RN washing and peeling it for me. I woke up this morning nauseated and bleeding from the nose! However, I'm not letting that get me down... minor setbacks, see. I've got all my fingers and toes crossed in hopes of re-ingraftment taking place swiftly, and popping out of this joint for the other side! (I feel like a prisoner a bit..)
Anyhow, not much extra news to say... I just wanted to give a little update, and make sure that anyone with with an SCT in the future knows it's doable and not the end of the world as we know it. Whether it be scans, chemo or what have you... I know we're all some terrific fighters, and I'm honored to fight along with you.
-Nathan
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memoriesallmost60 said:Flight...
Hi Liana,
When I had my first line chemo R-CVP I swear I could fly during the 5 days when I had to take the high dose prednisone...never tried, but there were many nights when I couldn't sleep when I just wanted to jump out the window and take flight! ha!
! The side effects from that nasty drug will never be forgotten! Have a good day sweetie. Love...Sue (FNHL-2-3A-6/10-age62)Hi Sue
I remember when you tried to wash your big front window while on the pred. Seems that you were trying to fly then...
Love ya
Lisha
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Thinking of youunknown said:A quick update
Hello fellow Survivors,
Hiccup here, on day +2. Most of my blood counts have now dropped significantly, and I can't eat a banana without an RN washing and peeling it for me. I woke up this morning nauseated and bleeding from the nose! However, I'm not letting that get me down... minor setbacks, see. I've got all my fingers and toes crossed in hopes of re-ingraftment taking place swiftly, and popping out of this joint for the other side! (I feel like a prisoner a bit..)
Anyhow, not much extra news to say... I just wanted to give a little update, and make sure that anyone with with an SCT in the future knows it's doable and not the end of the world as we know it. Whether it be scans, chemo or what have you... I know we're all some terrific fighters, and I'm honored to fight along with you.
-Nathan
Hi Nathan
Just wanted to say that I am thinking of you. You are an incredible fighter.
Hang in there, and before you know it you will be living life to the fullest.
Sending you hope and hugs
Lisha
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Hi Nathanillead said:Our thoughts
Hi Nathan,
We know this is a difficult time for you, you must feel like a wet noodle. You know we're all rooting for you to get past this part of it as soon as possible. Please keep us posted but only when you're feeling up to it. Bill and Becky
I'm sure it's not easy, but so happy you are giving us updates. You are strong and I know you will do fine. You have a great outlook!! All the best to you. Emily
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Hi Nathan!unknown said:A quick update
Hello fellow Survivors,
Hiccup here, on day +2. Most of my blood counts have now dropped significantly, and I can't eat a banana without an RN washing and peeling it for me. I woke up this morning nauseated and bleeding from the nose! However, I'm not letting that get me down... minor setbacks, see. I've got all my fingers and toes crossed in hopes of re-ingraftment taking place swiftly, and popping out of this joint for the other side! (I feel like a prisoner a bit..)
Anyhow, not much extra news to say... I just wanted to give a little update, and make sure that anyone with with an SCT in the future knows it's doable and not the end of the world as we know it. Whether it be scans, chemo or what have you... I know we're all some terrific fighters, and I'm honored to fight along with you.
-Nathan
Hi Nathan and thanks for the update. Your attitude is wonderful!.
Just think - in no time, you'll be growing hair and be peeling your own bananas
Nathan in 3 months - Hugs and laughs, buddy!
Joking aside, we're all in this together, Nathan.
Jim
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Thinking of you!unknown said:A quick update
Hello fellow Survivors,
Hiccup here, on day +2. Most of my blood counts have now dropped significantly, and I can't eat a banana without an RN washing and peeling it for me. I woke up this morning nauseated and bleeding from the nose! However, I'm not letting that get me down... minor setbacks, see. I've got all my fingers and toes crossed in hopes of re-ingraftment taking place swiftly, and popping out of this joint for the other side! (I feel like a prisoner a bit..)
Anyhow, not much extra news to say... I just wanted to give a little update, and make sure that anyone with with an SCT in the future knows it's doable and not the end of the world as we know it. Whether it be scans, chemo or what have you... I know we're all some terrific fighters, and I'm honored to fight along with you.
-Nathan
Nathan,
I've been following your posts with great interest - thank you for being so detailed with your journey! SCT is in my future -my doc has already prepped me that one day I will do that. Thank you for filling us in on the details. It will help many of us.
I am praying that all goes well without too many side effects for you. I hope that your journey is easy and your re-building is quick! You are doing great and I think that as we travel the different roads of this we find weird strength-right when we need it. I really believe that is what is happening to you. You are so srong! YOU'VE GOT THIS!! No question.
I await your future posts. God Bless.
Donna
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Windows...forme said:memories
Hi Sue
I remember when you tried to wash your big front window while on the pred. Seems that you were trying to fly then...
Love ya
Lisha
Ohhhh I do remember the window washing day! My arms and back hurt soooo bad that night. Then the next day I went out and trimmed all of our shrubs! I was a maniac while taking the prednisone! You and John kept me company more than one night in the wee hours of the morning, posting messages to each other! Soooo glad those days are over! Love you...Sue
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OH YEA !!!!!!!!!!!!!!!!!!
HELL YES......I remember those nights. I danced on the ceiling sometimes all night long. I watched the sun come up many times. I could not sleep and was not even tired. I kept jumping on the computer looking for somebody to talk too. I didn't want anybody going thru what I was going thru. All the What Ifs or Maybe this or Maybe that thoughts.The first round of Pred wasn't so bad, but as the treatments progressed to the second or third cycle it started working on me. When it was 2am on the West coast it was 5am on the East coast where I live and I was still going wide open. I remember 1 night about 2 1/2 years ago around 3am Eastern time a person named Sue posted and I responded to her right away. She sounded a little distressed and I knew the feeling all to well. It is not a good feeling when you are up alone late at night. I am sure most of you can relate to that. Yes, I am glad those days are over, but I still miss talking to Sue late at night. I wonder what become of her. She went by the name of...Almost60 John
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Ha!COBRA666 said:OH YEA !!!!!!!!!!!!!!!!!!
HELL YES......I remember those nights. I danced on the ceiling sometimes all night long. I watched the sun come up many times. I could not sleep and was not even tired. I kept jumping on the computer looking for somebody to talk too. I didn't want anybody going thru what I was going thru. All the What Ifs or Maybe this or Maybe that thoughts.The first round of Pred wasn't so bad, but as the treatments progressed to the second or third cycle it started working on me. When it was 2am on the West coast it was 5am on the East coast where I live and I was still going wide open. I remember 1 night about 2 1/2 years ago around 3am Eastern time a person named Sue posted and I responded to her right away. She sounded a little distressed and I knew the feeling all to well. It is not a good feeling when you are up alone late at night. I am sure most of you can relate to that. Yes, I am glad those days are over, but I still miss talking to Sue late at night. I wonder what become of her. She went by the name of...Almost60 John
She's waiting for sunny weather and spring to get here! Your so silly! 0 -
I'm still laughing
When Bill was on prednisone, we were at Sam's Club and we had the cart totally loaded (mostly with food he wanted) and here he comes, looking like a 3 yr old with pleading eyes and a giant box of corn dogs "Can we get these?" I felt like an abusive mom telling him no. It was pitiful!
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MEMORIES !!!!illead said:I'm still laughing
When Bill was on prednisone, we were at Sam's Club and we had the cart totally loaded (mostly with food he wanted) and here he comes, looking like a 3 yr old with pleading eyes and a giant box of corn dogs "Can we get these?" I felt like an abusive mom telling him no. It was pitiful!
I can certainly relate to that. I got plenty of exercise walking to the refridgerator. The CRAZY
thought even crossed my mind to move it to the bedroom. A lot of food had a bad taste, but it did not stop me from eating all the time. LOL John0 -
I'm getting a kick outta these replies
You guys are something else. I'm not sure I'm really flying, it feels closer to floating like a low hanging balloon missing half its helium.
These have been some strange days, and sometimes the hardest part is just giving up your privacy and letting the hospital just do its thing. Today my ANC hit 0 and WBCs are at .1. So, they have brought on the big guns.. Cipro, Ketokonazole, and all of these other long-winded pharmaceuticals to keep me from turing inside out (ha!)
Tomorrow, they're going to start Neupogen shots again to see if my re-ingrafting cells can get shaken into action! Oh please let this do the trick!!!! I just can't wait to spring from this joint
Hugs all around!!
-Nathan
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LOW BLOOD COUNTSunknown said:I'm getting a kick outta these replies
You guys are something else. I'm not sure I'm really flying, it feels closer to floating like a low hanging balloon missing half its helium.
These have been some strange days, and sometimes the hardest part is just giving up your privacy and letting the hospital just do its thing. Today my ANC hit 0 and WBCs are at .1. So, they have brought on the big guns.. Cipro, Ketokonazole, and all of these other long-winded pharmaceuticals to keep me from turing inside out (ha!)
Tomorrow, they're going to start Neupogen shots again to see if my re-ingrafting cells can get shaken into action! Oh please let this do the trick!!!! I just can't wait to spring from this joint
Hugs all around!!
-Nathan
Nathan,
There is another member on here by the name of Vinny that had some really low counts as well. He was down to zero at one time. This was a couple of years ago. It took a while but he did finally get them up. I do not know what his counts are today. He hasn't posted in a while. Maybe he will jump in the next time he gets on. Sometimes it takes a while to get them to come back up. I got a white cell booster(neulasta) after every set of treatments. My counts never went down. Some members said it caused them arm pain. I was lucky in that respect. No pain at all. John
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Hey Nathanunknown said:I'm getting a kick outta these replies
You guys are something else. I'm not sure I'm really flying, it feels closer to floating like a low hanging balloon missing half its helium.
These have been some strange days, and sometimes the hardest part is just giving up your privacy and letting the hospital just do its thing. Today my ANC hit 0 and WBCs are at .1. So, they have brought on the big guns.. Cipro, Ketokonazole, and all of these other long-winded pharmaceuticals to keep me from turing inside out (ha!)
Tomorrow, they're going to start Neupogen shots again to see if my re-ingrafting cells can get shaken into action! Oh please let this do the trick!!!! I just can't wait to spring from this joint
Hugs all around!!
-Nathan
Hi Nathan. I think I've been missing half my helium most of life or it was replaced with methane
. You'll be outta there in no time and you got us here to cheer you on! You are handling this so well, buddy. Thanks for the updates and I hope the neupogen kick starts those cells into action. Big hugs back to you! - Jim0 -
LOL !!!jimwins said:Hey Nathan
Hi Nathan. I think I've been missing half my helium most of life or it was replaced with methane
. You'll be outta there in no time and you got us here to cheer you on! You are handling this so well, buddy. Thanks for the updates and I hope the neupogen kick starts those cells into action. Big hugs back to you! - JimI am sure it is Methane. As a matter of fact I can down right gaurantee it. !!!!!!!!!!!!!!!!!!
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Nah !!!jimwins said:LOL
Hee Hee - Hi John! I thought I lost that target on my back with the hair during chemo. Nice to have you picking on me again
.Jim,
I'm not pickin' on ya'. I'm just funnin' with ya'. We lose our sense of humor,Well thats when we will lose. I think that goes for every human being out there. John
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