Any news from hiccup?

DadysGirl
DadysGirl Member Posts: 346
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Emailed him but did not get a response, he is quick in responding...

Wishing his sct is going well...

Please let us know if you read thisMSG...

«13

Comments

  • lianadw
    lianadw Member Posts: 72
    #2
    I've been thinking of him too

    I hope he is doing well and that we hear from him soon. I know the treatment is intense, as I will be going through it in April. Keeping up prayers and postive thougths for him!

  • jimwins
    jimwins Member Posts: 2,107
    #3
    Been awhile

    I haven't heard from him via email in about 2 weeks but I think he posted here since then.  I just sent him an email and hopefully we will hear from him soon.  I think he said he had family coning in.  Sending him positive thoughts and wishes.

    Jim 

  • DadysGirl
    DadysGirl Member Posts: 346
    #4
    lianadw said:

    I've been thinking of him too

    I hope he is doing well and that we hear from him soon. I know the treatment is intense, as I will be going through it in April. Keeping up prayers and postive thougths for him!

    Wishing you the best ...

    Wishing you the best ... Sorry I don't have great words to say today, we lost another great friend....

    Thanks Jim if you hear from him please share...

    Take care both

  • anliperez915
    anliperez915 Member Posts: 770
    #5
    jimwins said:

    Been awhile

    I haven't heard from him via email in about 2 weeks but I think he posted here since then.  I just sent him an email and hopefully we will hear from him soon.  I think he said he had family coning in.  Sending him positive thoughts and wishes.

    Jim 

    Hi Hiccup!

    Hi Hiccup,

    I also wanted to let you know that we are thinking of you! Please let us know how you're doing when you get a chance. Take care

    Sincerely,

    Liz

  • Unknown
    Unknown
    #6
    I'm still kicking it

    Thanks so much for remembering lil 'ol me!!! I am on my fifth day of inpatient chemo right now... for those of you who enjoy details for comparison to their own auto SCTs, past or future, I'll let you know how it's been:

     

    Day 1 - Carmusine -- If I remember correctly, it took about four hours for the giant bottle to finish. I felt pretty dogged afterwards and nauseated. Shortly after, they gave me a little BADCAD pump with Benadryl, Ativan and Dexamethasone that I can push on demand. That thing is a lifesaver!

     

    Days 2-5 - Etoposide (4 hours) and ARA-C (~1 hour). These I am tolerating fairly well... once again, I think due to my little pump friend.

     

    Tomorrow is my last day of chemo (hopefully forever!)-- Melphalan.. and I have no idea what to expect there. I'll keep you posted as I can!

    Reinfusion is set to take place on Tuesday... any well wishes, thoughts, or dance is well appreciated! Love all you guys

     

    -Nathan

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #7
    unknown said:

    I'm still kicking it

    Thanks so much for remembering lil 'ol me!!! I am on my fifth day of inpatient chemo right now... for those of you who enjoy details for comparison to their own auto SCTs, past or future, I'll let you know how it's been:

     

    Day 1 - Carmusine -- If I remember correctly, it took about four hours for the giant bottle to finish. I felt pretty dogged afterwards and nauseated. Shortly after, they gave me a little BADCAD pump with Benadryl, Ativan and Dexamethasone that I can push on demand. That thing is a lifesaver!

     

    Days 2-5 - Etoposide (4 hours) and ARA-C (~1 hour). These I am tolerating fairly well... once again, I think due to my little pump friend.

     

    Tomorrow is my last day of chemo (hopefully forever!)-- Melphalan.. and I have no idea what to expect there. I'll keep you posted as I can!

    Reinfusion is set to take place on Tuesday... any well wishes, thoughts, or dance is well appreciated! Love all you guys

     

    -Nathan

    Hi..

    Hi Nathan,

     I think I'll leave the dancing to others, but you definetely have prayers, good vibes, and positive thoughts coming your way from me! Hang in there buddy....your attitude is just fantastic. Much love...Sue (FNHL-2-3A-6/10)

  • jimwins
    jimwins Member Posts: 2,107
    #8
    unknown said:

    I'm still kicking it

    Thanks so much for remembering lil 'ol me!!! I am on my fifth day of inpatient chemo right now... for those of you who enjoy details for comparison to their own auto SCTs, past or future, I'll let you know how it's been:

     

    Day 1 - Carmusine -- If I remember correctly, it took about four hours for the giant bottle to finish. I felt pretty dogged afterwards and nauseated. Shortly after, they gave me a little BADCAD pump with Benadryl, Ativan and Dexamethasone that I can push on demand. That thing is a lifesaver!

     

    Days 2-5 - Etoposide (4 hours) and ARA-C (~1 hour). These I am tolerating fairly well... once again, I think due to my little pump friend.

     

    Tomorrow is my last day of chemo (hopefully forever!)-- Melphalan.. and I have no idea what to expect there. I'll keep you posted as I can!

    Reinfusion is set to take place on Tuesday... any well wishes, thoughts, or dance is well appreciated! Love all you guys

     

    -Nathan

    There you are :)

    There you are!  So good to hear from you. Those pumps are cool.  I had one during recovery from surgery for pain.  I used it a lot the first day or two.  Hang in there and plenty of positive thoughts and energy are "dancing" across the Internet to you.

    Jim

  • lianadw
    lianadw Member Posts: 72
    #9
    unknown said:

    I'm still kicking it

    Thanks so much for remembering lil 'ol me!!! I am on my fifth day of inpatient chemo right now... for those of you who enjoy details for comparison to their own auto SCTs, past or future, I'll let you know how it's been:

     

    Day 1 - Carmusine -- If I remember correctly, it took about four hours for the giant bottle to finish. I felt pretty dogged afterwards and nauseated. Shortly after, they gave me a little BADCAD pump with Benadryl, Ativan and Dexamethasone that I can push on demand. That thing is a lifesaver!

     

    Days 2-5 - Etoposide (4 hours) and ARA-C (~1 hour). These I am tolerating fairly well... once again, I think due to my little pump friend.

     

    Tomorrow is my last day of chemo (hopefully forever!)-- Melphalan.. and I have no idea what to expect there. I'll keep you posted as I can!

    Reinfusion is set to take place on Tuesday... any well wishes, thoughts, or dance is well appreciated! Love all you guys

     

    -Nathan

    Kick it's butt!

    Hi Nathan,

    Hooray to your last day of chemo tomorrow, and I will find the energy by Tuesday to do a dance for you!

    I found the RICE tolerable in the hospital, but have been wiped out since I've been home.

    It's good to hear your experiences. Keep us posted as you can.

    Continuing to send good thoughts and healing energy your way.

    Cheers,

    Liana

     

  • DadysGirl
    DadysGirl Member Posts: 346
    #10
    unknown said:

    I'm still kicking it

    Thanks so much for remembering lil 'ol me!!! I am on my fifth day of inpatient chemo right now... for those of you who enjoy details for comparison to their own auto SCTs, past or future, I'll let you know how it's been:

     

    Day 1 - Carmusine -- If I remember correctly, it took about four hours for the giant bottle to finish. I felt pretty dogged afterwards and nauseated. Shortly after, they gave me a little BADCAD pump with Benadryl, Ativan and Dexamethasone that I can push on demand. That thing is a lifesaver!

     

    Days 2-5 - Etoposide (4 hours) and ARA-C (~1 hour). These I am tolerating fairly well... once again, I think due to my little pump friend.

     

    Tomorrow is my last day of chemo (hopefully forever!)-- Melphalan.. and I have no idea what to expect there. I'll keep you posted as I can!

    Reinfusion is set to take place on Tuesday... any well wishes, thoughts, or dance is well appreciated! Love all you guys

     

    -Nathan

    Chew on ice ~ 15 mins b4 and

    Chew on ice ~ 15 mins b4 and during and after.. It will help you not get sores ... I've read about it a s well as I believe mike coachmike had suggested it as well,, can't write morejust extremely sad lately... I hope you'll read it b4 tomorrow. Take care and thanks for letting us know how you are doing...

  • forme
    forme Member Posts: 1,161 Member
    #11
    unknown said:

    I'm still kicking it

    Thanks so much for remembering lil 'ol me!!! I am on my fifth day of inpatient chemo right now... for those of you who enjoy details for comparison to their own auto SCTs, past or future, I'll let you know how it's been:

     

    Day 1 - Carmusine -- If I remember correctly, it took about four hours for the giant bottle to finish. I felt pretty dogged afterwards and nauseated. Shortly after, they gave me a little BADCAD pump with Benadryl, Ativan and Dexamethasone that I can push on demand. That thing is a lifesaver!

     

    Days 2-5 - Etoposide (4 hours) and ARA-C (~1 hour). These I am tolerating fairly well... once again, I think due to my little pump friend.

     

    Tomorrow is my last day of chemo (hopefully forever!)-- Melphalan.. and I have no idea what to expect there. I'll keep you posted as I can!

    Reinfusion is set to take place on Tuesday... any well wishes, thoughts, or dance is well appreciated! Love all you guys

     

    -Nathan

    Best positive thoughts

    Hi Nathan,

    I just wanted to say that I am thinking of you and sending you positive healing thoughts.

    You have my vote for this being your last chemo ever!

    Tuesday is your day, hopefully not to long and textbook easy. I'll keep you in my thoughts and know that I'm sending the very best wishes and positive thoughts for your recovery and new beginning...

     

    Huge hugs

    Lisha

  • Unknown
    Unknown
    #12
    Loving life today!

    A quick update... Today is day -1.. my day of rest. Tomorrow is reinfusion day!

     

    Yesterday's Melphalan infusion wasn't bad. Run of the mill, really. However a few hours later I just slept and slept.

     

    The best news yet... since I've been such a good trooper, I get to go home for four hours to visit my lovely kittens! I sure hope every fine person who visits this message board (meaning: YOU) has a great day! I can't tell you how great an honor it has been to walk this path with such great survivors like yourself.

     

    -Nathan Laughing

  • jimwins
    jimwins Member Posts: 2,107
    #13
    unknown said:

    Loving life today!

    A quick update... Today is day -1.. my day of rest. Tomorrow is reinfusion day!

     

    Yesterday's Melphalan infusion wasn't bad. Run of the mill, really. However a few hours later I just slept and slept.

     

    The best news yet... since I've been such a good trooper, I get to go home for four hours to visit my lovely kittens! I sure hope every fine person who visits this message board (meaning: YOU) has a great day! I can't tell you how great an honor it has been to walk this path with such great survivors like yourself.

     

    -Nathan Laughing

    Hey Nathan!

    Enjoy yourself for the brief getaway!  You sound great and I'm glad.  I just got back from a first visit to the orthopaedic doctor.  I've been having intermittent problems with my right shoulder and some other things.  He told me I should lay of the "flying" Wink. I guess I won't get to France under my own power - LOL.  He thinks it's at least an inflammation and probably at worst, could be a partially torn tendon in the shoulder area. No big deal - just over the counter anti-inflammatory meds for 3-4 weeks and scheduled some physical therapy.  He did agree it could be a side effect from chemo but no way to know for sure.

    You have a great day too!

    Jim

     

  • lianadw
    lianadw Member Posts: 72
    #14
    unknown said:

    Loving life today!

    A quick update... Today is day -1.. my day of rest. Tomorrow is reinfusion day!

     

    Yesterday's Melphalan infusion wasn't bad. Run of the mill, really. However a few hours later I just slept and slept.

     

    The best news yet... since I've been such a good trooper, I get to go home for four hours to visit my lovely kittens! I sure hope every fine person who visits this message board (meaning: YOU) has a great day! I can't tell you how great an honor it has been to walk this path with such great survivors like yourself.

     

    -Nathan Laughing

    Doing a dance for you!

    So glad you got to see your kittens yesterday and that the treatment has been so doable for you. Wishing you the best today, the day of reinfusion.

    Thanks for the update and very happy to hear how well your doing!

    Continuing to send good thoughts your way for healing and recovery,

    Liana

  • lianadw
    lianadw Member Posts: 72
    #15
    jimwins said:

    Hey Nathan!

    Enjoy yourself for the brief getaway!  You sound great and I'm glad.  I just got back from a first visit to the orthopaedic doctor.  I've been having intermittent problems with my right shoulder and some other things.  He told me I should lay of the "flying" Wink. I guess I won't get to France under my own power - LOL.  He thinks it's at least an inflammation and probably at worst, could be a partially torn tendon in the shoulder area. No big deal - just over the counter anti-inflammatory meds for 3-4 weeks and scheduled some physical therapy.  He did agree it could be a side effect from chemo but no way to know for sure.

    You have a great day too!

    Jim

     

    Flying a side effect of chemo?

    So is this the side effect that they don't tell us about, that we may have the power of flight? I'll take it. Tee hee.

    Hope your shoulder is feeling better soon!

    Liana

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #16
    lianadw said:

    Flying a side effect of chemo?

    So is this the side effect that they don't tell us about, that we may have the power of flight? I'll take it. Tee hee.

    Hope your shoulder is feeling better soon!

    Liana

    Flight...

    Hi Liana,

      When I had my first line chemo R-CVP I swear I could fly during the 5 days when I had to take the high dose prednisone...never tried, but there were many nights when I couldn't sleep when I just wanted to jump out the window and take flight! ha! Tongue Out!  The side effects from that nasty drug will never be forgotten! Have a good day sweetie. Love...Sue (FNHL-2-3A-6/10-age62)

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #17
    unknown said:

    Loving life today!

    A quick update... Today is day -1.. my day of rest. Tomorrow is reinfusion day!

     

    Yesterday's Melphalan infusion wasn't bad. Run of the mill, really. However a few hours later I just slept and slept.

     

    The best news yet... since I've been such a good trooper, I get to go home for four hours to visit my lovely kittens! I sure hope every fine person who visits this message board (meaning: YOU) has a great day! I can't tell you how great an honor it has been to walk this path with such great survivors like yourself.

     

    -Nathan Laughing

    Enjoy!

    Hi Nathan,

      Man...you sound great! I'm so glad to hear how well you are doing! Enjoy your short trip home. Life is good! Best wishes...Sue  (FNHL-2-3A-6/10-age62)

  • illead
    illead Member Posts: 884 Member
    #18
    unknown said:

    Loving life today!

    A quick update... Today is day -1.. my day of rest. Tomorrow is reinfusion day!

     

    Yesterday's Melphalan infusion wasn't bad. Run of the mill, really. However a few hours later I just slept and slept.

     

    The best news yet... since I've been such a good trooper, I get to go home for four hours to visit my lovely kittens! I sure hope every fine person who visits this message board (meaning: YOU) has a great day! I can't tell you how great an honor it has been to walk this path with such great survivors like yourself.

     

    -Nathan Laughing

    Good news

    It's always good to hear positive news.  Congrats Nathan, it makes our day.

    Hey Jim, we flew to Mexico yesterday and are our arms tired!  Busy today unpacking and getting the condo in shape.  Hope to see some whales, they are in Baja now.  Sorry you won't get to fly to France.  Maybe when you win the lottery you can afford a real plane, ha ha. Bill and Becky

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #19
    illead said:

    Good news

    It's always good to hear positive news.  Congrats Nathan, it makes our day.

    Hey Jim, we flew to Mexico yesterday and are our arms tired!  Busy today unpacking and getting the condo in shape.  Hope to see some whales, they are in Baja now.  Sorry you won't get to fly to France.  Maybe when you win the lottery you can afford a real plane, ha ha. Bill and Becky

    Have fun!

    Hi Becky and Bill,

     Have FUN in Mexico! Rest, relax and totally chill out! Getting away is so important! Much love....Sue (FNHL-2-3A-6/10)

  • epicc
    epicc Member Posts: 137
    #20
    allmost60 said:

    Have fun!

    Hi Becky and Bill,

     Have FUN in Mexico! Rest, relax and totally chill out! Getting away is so important! Much love....Sue (FNHL-2-3A-6/10)

    Hope you have a wonder vacation

    Hi Becky and Bill,

     

    Have a wonderful time in Mexico.  I'm so happy you both get to have this time together.  Post pictures when you can.  Love, Emily

  • jimwins
    jimwins Member Posts: 2,107
    #21
    illead said:

    Good news

    It's always good to hear positive news.  Congrats Nathan, it makes our day.

    Hey Jim, we flew to Mexico yesterday and are our arms tired!  Busy today unpacking and getting the condo in shape.  Hope to see some whales, they are in Baja now.  Sorry you won't get to fly to France.  Maybe when you win the lottery you can afford a real plane, ha ha. Bill and Becky

    Enjoy

    LOL - Enjoy your trip and hopefully your arms aren't too tired to lift the margarita glasses!  The whales sound cool!

    Have a great trip - Jim

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