Food for Folfox

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  • Dyanclark
    Dyanclark Member Posts: 296
    #22
    Coloncancerblows said:

    Thank you all for the

    Thank you all for the comments/suggestions.  I start my chemo tomorrow so time will tell.  Kiss

    Eat

    I know you will have some loss of appetite for a day or so, however, just eat whatever you are hungry for.   I never let up on my husband to eat.   Stock up on ensure just in case.   I try & get my husband to get most of his nutrition thru food.   Yougurt is really good to have also Dr. says eat it 3 x a day it has natural probiotics which are so helpful for digestion.

  • renw
    renw Member Posts: 282 Member
    #23
    Fucc said:

    I agree some of what they may

    I agree some of what they may tellmyou seems wrong. However, when I met with the hospital dietitian those types of recommendations seeTed to be m,ore for people suffering from severe weight loss.  At that point it's. Ore of a desperate attempt to get some weight on to maintain the body through chemo. My dietitian went through my diet, stressed staying away from oricessed foods, eating,ots of fruits and vegetables, whole grain and somedairy, especially things like yogurt to support the gut. All makes sense and generally should be followed anyways. But to be honest, whe your on chemo sometimes your body doesn't want a spinach salad witsaid salmon, but it wants a chocolate milkshake.  So have the milkshake.  It's all about moderation in my opinion. 

    I was in the same boat. rapid

    I was in the same boat. rapid weight loss 1kg every 2-3 days. within a month I lost 16kg or 20% of my body weight, I had maybe 5 kilos left before I would not be able to function. I researched cachexia and hit the gym 5x a week with what strength I had left. The weight loss stopped, and in the past 2 months I recovered most of the muscle tissue i had lost and regained 6kg. all without the extra sugar and carbs.

     

  • coloCan
    coloCan Member Posts: 1,944 Member
    #24
    Dyanclark said:

    Eat

    I know you will have some loss of appetite for a day or so, however, just eat whatever you are hungry for.   I never let up on my husband to eat.   Stock up on ensure just in case.   I try & get my husband to get most of his nutrition thru food.   Yougurt is really good to have also Dr. says eat it 3 x a day it has natural probiotics which are so helpful for digestion.

    At my worst, i relied upon nutrition drinks like Boost,

    Ensure or CVS brand, the "Plus" version with the 100 or so more calories per container and whatever i was able to eat, if i was able to eat...Went from 178 to 125 pounds during Tx;never so weak in my life......When i got that weird feeling at the back of my jaw upon first bite when on oxi i learned to wait a second and then start chewing again...Be carefulabout cold stuff

  • Nana b
    Nana b Member Posts: 3,030 Member
    #25
    coloCan said:

    At my worst, i relied upon nutrition drinks like Boost,

    Ensure or CVS brand, the "Plus" version with the 100 or so more calories per container and whatever i was able to eat, if i was able to eat...Went from 178 to 125 pounds during Tx;never so weak in my life......When i got that weird feeling at the back of my jaw upon first bite when on oxi i learned to wait a second and then start chewing again...Be carefulabout cold stuff

    I could only eat bland food.

    I could only eat bland food.  Potato burros.  quesilldas.  Everything starts tasting awful, I didn't want to eat.  I lost 30 lbs.  (but gained them back Embarassed!

    I could drink room temp lemonade.  NOTHING COLD, NOTHING!!!!  NO HANDS IN THE FRIDGE WITHOUT GLOVES! 

     

    STAY positive!

     

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #26
    Cyn

    I really liked eating watermelon, although I couldn't eat it cold, it tasted good and was great for hydration!

    as for food I ate whatever I craved, never lost a pound (although it wouldn't have hurt me to have done so!) the small meals are a great suggestion.

    here's to few side effects for you.

    Winter Marie

  • Coloncancerblows
    Coloncancerblows Member Posts: 296 Member
    #27
    Thank you all for the

    Thank you all for the comments.  The first few days after the pack was gone, I just ate applesauce and soups, nothing sounded or tasted good.  Third day I was back to normal eating which is great.  I hate that first bite feeling with the jaw and dread the anticipation of it but at least it's just temporary.  I found out after I got the pack off on Friday, I slept for almost 17 hours straight and then next day another 16 hours straight!  Guess I was exhausted.  So far so good.  I just hope all the treatments are like this.  Hasn't been bad yet.

  • Maxiecat
    Maxiecat Member Posts: 544 Member
    #28
    Coloncancerblows said:

    Thank you all for the

    Thank you all for the comments.  The first few days after the pack was gone, I just ate applesauce and soups, nothing sounded or tasted good.  Third day I was back to normal eating which is great.  I hate that first bite feeling with the jaw and dread the anticipation of it but at least it's just temporary.  I found out after I got the pack off on Friday, I slept for almost 17 hours straight and then next day another 16 hours straight!  Guess I was exhausted.  So far so good.  I just hope all the treatments are like this.  Hasn't been bad yet.

    It sounds like you did great

    It sounds like you did great for your first treatment.   I slept a lot too.  Make sure to get that protein in... I relied on ensure for the first day or so after disconnect.   I drank it warm because I could not tolerate the cold after oxaliplatin.... It still tasted the same.   One thing to keep in mind is that your sideffects and food cravings will probably change from treatment to treatment....mine did.   By the time I got to the 12th treatment chocolate, ensure, and spicy foods were all that I wanted.  I gained and lost the same 5 pounds over and over again throughout my treatment.   Now that I am don (had last Folfox in January) ... I am starting to gain a little .... Which I don't need.   I completely eliminated beef, pork, and chicken from my diet while on Folfox...the texture and taste were horrible.   I ate a lot of fish and shrimp.

     

    Alex

  • swordranch
    swordranch Member Posts: 35
    #29
    Food from my Experience

    I found that I have gotten less sensitive as my treatments have progressed.  At the beginning my motto was never let my stomach get empty but never let it get too full either.  I have never been nauseated but did get up in the night for Tums a couple of times.  At the beginning bacon worked best for protein and I would cook a whole side and then freeze it so that I could just grab a couple of pieces out and pop them in a microwave for a few seconds and good to go.  Good old Kraft mac and cheese worked well too.  The main thing I needed was protein and to stay hydrated.  Almost done now and eat pretty much whatever I want just suffer with some pain if it is wrong.  I, too, had the jaw pain at the first bite.  Found if I help the first bite as close as possible to the middle of my tongue it helped.  Also had the throat/mouth cold sensitivity which has all stopped after they stopped giving me the oxcillie.

    Good luck,

    Laura

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