"Is it Kind? Is it True? Is it Necessary?"

I guess I can see everyone's

I guess I can see everyone's perspective (assuming that you are referring to Winter's post). It does bother me when I see someone boasting about their latest treatment and quite honestly at a price that I will never be able to afford, it just seems a little insensitive to me I guess.

I know that we all want to survive this and we are doing as much as we can to make that happen but I start to wonder... what kind of life is getting saved if you spend every penny and moment on thinking about cancer and grasping at every straw that comes our way. I can only answer for myself (Care taker btw), I wouldn't want to use up everything that my spouse and I have in this life on trying to survive, it would break my heart to sell my families home to chase more treatments knowing that there are no garuantees that any of them will work. I wouldn't want to end up leaving this stage of life and leave my family with out a home. I believe that our homes can be of comfort to us when we lose someone, there are so many memories that live in those houses. If the patient doesn't make it he or she goes on to glorious things (I believe) so do we really want to think of leaving them here with nothing but the memories of cancer and no comfort of a familiar home? I am not speaking of grand mansions or beautiful estates, I am speaking of our homes, the little barn where my horse sleeps at night (or should I give up the horse that has carried me in more ways than one since all this started)? Won't I need her even more if my best friend has to leave me? BTW there is a ton of rejection feelings when being left behind, I know my Dennis doesn't want to die but it still feels like I will be abandoned. It could very well come down to cancer tearing us apart against our will? Death ripping my husband away form me and then suddenly the man that I rely on emotionally and physically everyday of my life is suddenly gone. I can't call him, I can't have him hold me ever again. He is just gone and I will be here by myself; how do you process that!?

How can we ever begrudge anyone using chemo, radiation, or surgery for those of us in the US? That is what we have deemed acceptable by our insurances, the only resources available to us if we can't come up with large sums of money for the treatments that may or not be the cure. So I guess if someone wants to down us for doing the best we can then go on and do it. When my husband was doing chemo, I juiced everything I got my hands on and he couldn't turn around without me making him drink something (not  even asking, just telling him to drink). Maybe that is part of the reason he did so well with the chemo and surgeries.

I just think that we should not forget that we are all here at this forum for the same reasons. We should try to respect each others ways. I support you all for how ever you choose to fight this and I ask that you all repect and support me in my beliefs, even if they aren't your the same as yours.

If someone is talking about something that we don't under stand then maybe we could be tolerent and know that there has to be room for everyones belief's and needs here. I know I would never intentionally hurt any of you, if I ever did I would make it right as fast as I can type an apology.

Let's love each other... we are very much like a family so there will be times when we don't all agree but we can get passed all the bumps if we have the will to not hurt anyone.

Sorry for spilling my guts on you guys... I guess I need a release; thanks for being here.

Brenda

pete43lost_at_sea said:

lovelly post aa

 

brenda i dont intend to boost, you see i shared all my  alt therapies, then the germans. now the results are positive, am i boosting.

i am sorry you are unable to afford these therapies.

the lady i was helping last night, who i gave the  gcmaf yogurt to, has raised funds from everywhere to get these treatments.

money is restricting her care. she found a way.

the better my results, the unfairer the situation becomes.

did you see lisa a new comer to the forum, she is doing german vaccines, i will offer her encouragement and support.

if she does well, i will congratulate her, not criticise or call her post a boost.

i cannot  help our individual situations, other than say i am committed to getting these therapies available, i will help anyone trying to change there world, we all deserve access to these therapies asap.

besides healing myself, thats all i can do.

if i could i would all  here over but i cannot, i asked doctors for a freeby for a csn friend. the answer no. i am looking into german corporate sponsorship.

at least its a dream, i have not critised chemo, but now i see these therapies are mutually exclusive to some extents.

hugs,

pete

ps peoples personal treatment choices should not be criticised, not yours, inever have

 

Brenda
I know that you have had and still are having an extremely hard time with this awful disease. It does that for sure. I hate what it does.

Yes, Pete has thrown around the fees to his therapies. But you see, he is trying to help so many people. I don't expect to go to Germany, but what I am grateful for is that he is "drawing huge attention to this disease". At some point, many people WILL be helped by what he is doing, directly and indirectly. To that I am grateful, even if I am not the one who lasts long enough to get that help. I care beyond myself. People are dying every day. People much younger than myself, people with children, children themselves.

And, Pete is not selling the family home. I read all of the posts (not so much lately, though), so that I can remember each person's story and what is going on with them......where they've been, what they hope for. And, a post several months ago, Pete actually said what his net worth is. He has ample money. His children and wife will have plenty of money in case something happens to him. He is not robbing them. If they couldn't live comfortably on that amount, then there is something seriously wrong. And, Pete was not a trust fund baby, meaning he made his own fortune. He put a lot of blood, sweat, and I'm sure tears.... into his work. He is trying to help himself obviously....who wouldn't......but his generosity is humbling.....to me...that is.

Brenda, I am so happy Dennis is NED. I wish that we all were. I will never be unless I try things. You see, after a while chemo stops working....that is a fact.
That is why people live 2, 3, 4, maybe 5 years. Yes, there are exceptions to the rule, if you add in ALL of the VARIABLES........but for the MAJORITY......people die. That is why some people see this much sooner than others and they start to get pro-active.

Chemo doesn't work for me, but my doctor wants me to keep using it (and yes, this is at the #1 U.S. top institution), because they don't want to admit there isn't a lot of hope. Also, I don't even know if my liver can recover from the effects of chemo. Surgery is not an option. I already had a failed liver surgery. The doctor didn't even tell me, had to find out myself by getting a copy of the pathology report. I am a nurse, so I can understand a pathology report pretty well. Of course, the docs probably think I am a stupid idiot.

You see, this is why sometimes, we have to help ourselves, FIGHT for ourselves. If anything, this is what I have learned from Pete.

I may be able to get into an immunotherapy trial, if it isn't too late. It may, or may not help. I pray that I get in and that it does buy some time. I'm running out of time....FAST. I have elderly parents and inlaws who I want so badly to take care of. I don't want to have fun and travel and spend a lot of money.....i want to help those who no longer can help themselves.......i believe that is what we are here to do. Just my opinion.

I pray for everyone here. I just don't have time to separate into lists who I will pray for, and who isn't worthy.

Brenda Bricco said:

My post was general or

My post was general or atleast meant to be. I didn't say any names other than Winter's because honestly I just can't remember who is doing what for treatment. I was just being very honest about my feelings, I wasn't trying to lay judgement on any one person.

Pete, it was very nice of you to ask for help for the other CSN member. I don't believe you are trying to hurt anyone and you are trying to help your situation which will in turn help someone else one day.

Trust me when I say that I am most thankful that Dennis is NED and I wish the same for eveyyone here.

I posted what I was feeling at the moment; sorry if it seem rude.

Brenda

Brenda
You weren't rude at all. Cancer is hard. I just wanted to explain why people do what they do....they want to stay alive, and help others.

Pete and others (myself included) have taken a lot of flack over the months (mostly Pete and another man trying to save the life of his son).

I'm always glad to see you, Brenda. I know that you hurt and are almost paralyzed with fear.....i thoroughly get it. I always hope that you are enjoying some of the time. Dennis is NED and hopefully will always be. But you know, there's new stuff on the horizon for this monster....it's looking good. That's what keeps me motivated. Hopefully that helps a little. Please, please try to enjoy. I know.....easier said than done.

(( HUG ))

annalexandria said:

I think I would like to add

that this was NOT aimed at any one person.  I just thought it was a good reminder for all of us (me included) that it's important to try and remember that there are real, live people on the other "side" of that computer screen.  I know I'm guilty of forgetting that at times.

Queen of the Internet Universe

I just LOVE that title!

tachilders said:

Agree with the "THINK" before

Agree with the "THINK" before posting, but take issue with folks criticizing others for doing what they can to try and beat this disease.  I will likely never get to NED (unless I try some unconventional stuff like Pete in Germany), but does that mean I should take issue with others posting here that are NED?  My outlook is also not very good for long term survival on standard chemo, but should I take issue with those who have lived for 8, 10, more years and that post about it here?  Newsflash, life isn't fair, and neither is cancer.  Let's support and encourage everyone in their fight, regardless of whether or not we have the same opportunities or successes.  There are times when I do feel a little jealous of the folks on here that are NED or that have survived a long time with this disease, but I try not to let those feelings get into my posts.  We all have our blessings, and mine has been that I have tolerated chemo very well and have so far led a pretty normal life.  That could all change very quickly if my chemo stops working.  I also have a good job and good insurance, and a great support system at home that not everyone here has.  The tough part is that I have very advanced stage 4 disease, am not a candidate for surgery, and have 6 young kids and a wife that will likely have to get by w/out a dad in the not so diatant future.  Let's try to help and support each other as much as possible, and leave the pettiness out of our posts.  Best of luck to all with their disease and treatment.

Tedd

There are people on here that

There are people on here that do not have insurance or financial help. They are not saying negative things to those of us using the conventional treatments covered by insurance...

And sometimes

You just have to call a duck a duck.  For instance Pete claims this and that cure, no one is sure which is the correct cure that he claims to have cured him.  In the end I'd say it was the CHEMO he did in Germany and Australia, not the numorous and often unbelieveable stuff that he put his poor body through.

And when people come on here just touting their supplements and their often expensive supplements, then they need called out as to the unbelievability of their claims.  And their are some mighty fine unbelievable claims, some purple juice of some sort being one of them that was touted to a newbie. 

Sometimes people are plain scared and vunerable and gullible, and if others want to tip toe around unbelieveable claims in order to be nice, sweet and whatever, that's up to you, but since the death of LISA42, whom was eventually convinced that she failed to live past the cancer because she didn't start doing those crazy supplements first, that it was her fault.  I will always feel anger at the people that convinced her to go for the supplements and attempts to convince her juicing alone was going to cure her.  She didn't have the money for it, she had guilt because she purchased an expensive juicer.  She said something to the point of she had these expensive supplements and she worried about what she was taking away from her family.  She wanted a dang piece of cake, but others here had convinced her it was wrong, how dare they!!  That whole thing hurt, it hurt bad.

So when someone comes on and claims his liver was healed by a supplement alone and etc., I'm going to call it as I see it.  I'm not going to tip toe around the issue in case I hurt their feelings.  Far better to hurt their feelings then have them hurt others on this board with bogus claims.

Winter Marie

herdizziness said:

And sometimes

You just have to call a duck a duck.  For instance Pete claims this and that cure, no one is sure which is the correct cure that he claims to have cured him.  In the end I'd say it was the CHEMO he did in Germany and Australia, not the numorous and often unbelieveable stuff that he put his poor body through.

And when people come on here just touting their supplements and their often expensive supplements, then they need called out as to the unbelievability of their claims.  And their are some mighty fine unbelievable claims, some purple juice of some sort being one of them that was touted to a newbie. 

Sometimes people are plain scared and vunerable and gullible, and if others want to tip toe around unbelieveable claims in order to be nice, sweet and whatever, that's up to you, but since the death of LISA42, whom was eventually convinced that she failed to live past the cancer because she didn't start doing those crazy supplements first, that it was her fault.  I will always feel anger at the people that convinced her to go for the supplements and attempts to convince her juicing alone was going to cure her.  She didn't have the money for it, she had guilt because she purchased an expensive juicer.  She said something to the point of she had these expensive supplements and she worried about what she was taking away from her family.  She wanted a dang piece of cake, but others here had convinced her it was wrong, how dare they!!  That whole thing hurt, it hurt bad.

So when someone comes on and claims his liver was healed by a supplement alone and etc., I'm going to call it as I see it.  I'm not going to tip toe around the issue in case I hurt their feelings.  Far better to hurt their feelings then have them hurt others on this board with bogus claims.

Winter Marie

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