Good News Today

BBdogs
BBdogs Member Posts: 39 Member
in Anal Cancer #1

Last weeks ct showed a spot on my right lung, and lymphatic involvement.  Had a petscan today, lung is good YEA!  Only 1 lymph node involved (inguinal).  Still IIIB which was a little disappointing but better than it could have been for sure. 

Colonoscopy tomorrow, port next week and then full steam ahead to kick this dude's axx! 

Comments

  • Marynb
    Marynb Member Posts: 1,118
    #2
    BB
    I hope you do well with your treatment! Hang in there.
  • mp327
    mp327 Member Posts: 4,440 Member
    #3
    BBdogs

    That's very good news about your lung.  PET scans can be very good for ruling out questionable findings on a CT scan.   Do not be discouraged by the 3B staging.  I have known many with 3B who are thriving!  Good luck on the colonoscopy and port placement.  Let us know how everything goes.   I wish you all the best!

  • SisterPretty
    SisterPretty Member Posts: 32
    #4
    Good Luck
    Wishing you all the success with your treatment. You kick that axx !
    God Bless,
    Sister Pretty
  • eihtak
    eihtak Member Posts: 1,473 Member
    #5
    Good news...

    Thats great news on the lung concern. Remember I was 3b with pelvic node two years ago, doing GREAT today! You will too!!!

  • BBdogs
    BBdogs Member Posts: 39 Member
    #6
    eihtak said:

    Good news...

    Thats great news on the lung concern. Remember I was 3b with pelvic node two years ago, doing GREAT today! You will too!!!

    Thanks

    Thanks everyone.  

    Colonoscopy was fine (as far as I know I was asleep:) removed a polyp and sent it off to be observed and discected by thousands no doubt!  Wanted to do an MRI to look further at the lymphnode but can't do that as I have 2 rods, 2 plates and 6 skrews in my back, so will biopsy instead.  

    It felt good to think that next Tuesday's port placement was my only appt next week but now they are piling up.  

    Did learn that I will have to have a rectal exam every week to check for burns, is that the norm?  Made me want to screamFrown 

    Wishing you all wellness!

     

  • mp327
    mp327 Member Posts: 4,440 Member
    #7
    BBdogs said:

    Thanks

    Thanks everyone.  

    Colonoscopy was fine (as far as I know I was asleep:) removed a polyp and sent it off to be observed and discected by thousands no doubt!  Wanted to do an MRI to look further at the lymphnode but can't do that as I have 2 rods, 2 plates and 6 skrews in my back, so will biopsy instead.  

    It felt good to think that next Tuesday's port placement was my only appt next week but now they are piling up.  

    Did learn that I will have to have a rectal exam every week to check for burns, is that the norm?  Made me want to screamFrown 

    Wishing you all wellness!

     

    Hi BB--

    I hope the polyp biopsy will come back clean.  As for appts. piling up, you are in our club now--that's pretty normal.  Cry  As for rectal exams during treatment, my doctors did not do that and I can't imagine having to go through that.  I don't understand why they would do those on you during that time.  I would definitely ask if that's necessary.  My first rectal exam after my diagnosis didn't take place until a few weeks after treatment ended.  At that time, I tolerated it well.  Please keep us posted.  I wish you all the best!

  • BBdogs
    BBdogs Member Posts: 39 Member
    #8
    mp327 said:

    Hi BB--

    I hope the polyp biopsy will come back clean.  As for appts. piling up, you are in our club now--that's pretty normal.  Cry  As for rectal exams during treatment, my doctors did not do that and I can't imagine having to go through that.  I don't understand why they would do those on you during that time.  I would definitely ask if that's necessary.  My first rectal exam after my diagnosis didn't take place until a few weeks after treatment ended.  At that time, I tolerated it well.  Please keep us posted.  I wish you all the best!

    Great

    I will definately question it, they are pretty miserable right now can't imagine how much worse they would be if I were to be burned.

  • mxperry220
    mxperry220 Member Posts: 496 Member
    #9
    BBdogs said:

    Thanks

    Thanks everyone.  

    Colonoscopy was fine (as far as I know I was asleep:) removed a polyp and sent it off to be observed and discected by thousands no doubt!  Wanted to do an MRI to look further at the lymphnode but can't do that as I have 2 rods, 2 plates and 6 skrews in my back, so will biopsy instead.  

    It felt good to think that next Tuesday's port placement was my only appt next week but now they are piling up.  

    Did learn that I will have to have a rectal exam every week to check for burns, is that the norm?  Made me want to screamFrown 

    Wishing you all wellness!

     

    Agree With Martha

    I had DRE(Digital rectal Exam) a few weeks after final treatments and it even hurt then.  I cannot imagine having DREs particularily in weeks 4-6.  I would question why the doctor needs to perform a DRE weekly.  The doctor should be able to examine your external burns rather than performing the invasive DRE during this time.

    Mike

  • BBdogs
    BBdogs Member Posts: 39 Member
    #10
    mxperry220 said:

    Agree With Martha

    I had DRE(Digital rectal Exam) a few weeks after final treatments and it even hurt then.  I cannot imagine having DREs particularily in weeks 4-6.  I would question why the doctor needs to perform a DRE weekly.  The doctor should be able to examine your external burns rather than performing the invasive DRE during this time.

    Mike

    Martha & Mike

    thanks, I definately am going to question/object to his reasons.  When the surgeon did it on day 1 it was painful but since the biopsy spot is still raw the recent exams have been ungodly.  Thank goodness for this board and somewhere to pose questions like this because it just didn't seem right and now I know, it isn't! 

  • mp327
    mp327 Member Posts: 4,440 Member
    #11
    BBdogs said:

    Martha & Mike

    thanks, I definately am going to question/object to his reasons.  When the surgeon did it on day 1 it was painful but since the biopsy spot is still raw the recent exams have been ungodly.  Thank goodness for this board and somewhere to pose questions like this because it just didn't seem right and now I know, it isn't! 

    BB

    It doesn't make any sense to do a rectal exam on someone while they are receiving this type of treatment to check for burns.  I would say there is probably a 99% chance that you are going to get somewhat burned on the inside and I see no reason for causing more irritation to that area.  The degree to which you will burn, of course, is unknown--everyone is different.  I would object to such an exam.

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