I have Uterine cancer but they also found Lymphoma

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  • GJS
    GJS Member Posts: 5
    #22
    jimwins said:

    Hi Chris
    Hi Chris !

    I'm glad things went well with the surgery and thanks for updating
    So glad to hear you'll be sedated for the bone marrow biopsy as well.

    Keeping positive thoughts for you on Oct. 16th and that you also
    get good results on the BMB.


    Hugs,

    Jim

    Im new here- Primary mediastinal DLBL
    Just decided to finally join this site 4 rounds into treatment and it is getting hard. I have read alot of posts out here and I just want to tell you that you have made me glad i joined. I can't believe the ongoing support here from those who are FREE from their cancer and yet they are still out here supporting others.... ALOT. Amazing and I hopethat I will be able to do the same in the weeks, months and years ahead. Congratulations to you on your remission!!!!!
  • Uncle Lar
    Uncle Lar Member Posts: 2
    #23
    1st post

    Hi Chris! I don't know if I'm even supposed to be on this site. I'm not a Cancer Survivor, but I want to be one indirectly. My wife was just diagnosed, after all the tests that you describe on your profile, with both Uterine Cancer & Lymphoma. I found out about you through an Internet Search. I guess I just wanted to see what they may do to her. They cancelled her hysdirectomy which was scheduled on February 4th after finding the lymphoma from the Pet Scan. Her spleen was enlarged, and several of her lymph nodes lit up. The Radilogist and her doctor say that she is in an early stage. Our next step will be another consultation. This one will be with an ONC and a Hematologist. The only thing that they have mentioned is that they may possibly use an IUD to treat the Uterine Cancer. We hate the waiting, but I guess you get used to it. WE JUST WANT TO KNOW WHAT THEY ARE GOING TO DO. I like the suggestion I saw about the BMB being done at the same time as the surgery (if they even do surgery). Will they treat the Uterine Cancer first? Have you recovered from your operation? What are they doing now? Do you work? My wife is a nurse. I don't think she will be able to work around sick people if radiation & chemo are necessary. I just have so many questions. We both want to prepare ourselves for the trip ahead of us. We both have God in our life and FAITH to stand on. She shows no signs of the symptoms of either cancer, other than bloating. Be my first contact and let us know how you are doing. Thank You

  • illead
    illead Member Posts: 884 Member
    #24
    Uncle Lar said:

    1st post

    Hi Chris! I don't know if I'm even supposed to be on this site. I'm not a Cancer Survivor, but I want to be one indirectly. My wife was just diagnosed, after all the tests that you describe on your profile, with both Uterine Cancer & Lymphoma. I found out about you through an Internet Search. I guess I just wanted to see what they may do to her. They cancelled her hysdirectomy which was scheduled on February 4th after finding the lymphoma from the Pet Scan. Her spleen was enlarged, and several of her lymph nodes lit up. The Radilogist and her doctor say that she is in an early stage. Our next step will be another consultation. This one will be with an ONC and a Hematologist. The only thing that they have mentioned is that they may possibly use an IUD to treat the Uterine Cancer. We hate the waiting, but I guess you get used to it. WE JUST WANT TO KNOW WHAT THEY ARE GOING TO DO. I like the suggestion I saw about the BMB being done at the same time as the surgery (if they even do surgery). Will they treat the Uterine Cancer first? Have you recovered from your operation? What are they doing now? Do you work? My wife is a nurse. I don't think she will be able to work around sick people if radiation & chemo are necessary. I just have so many questions. We both want to prepare ourselves for the trip ahead of us. We both have God in our life and FAITH to stand on. She shows no signs of the symptoms of either cancer, other than bloating. Be my first contact and let us know how you are doing. Thank You

    Hi Uncle Lar

    We are so sorry for your news, it's always such a shock at first and hard to wrap your head around.  This site has had some problems in the past and they have been making adjustments so sometimes what seems like new posts are actually older ones as in the case of Chris.  Don't worry tho, many of us have done the same thing.  You can still reach Chris tho, just click on her picture and it will take you to her page.  On the bottom left in blue letters will say something like "send a message to this person."  You can write to her directly and privately without revealing either's email address.  It will appear in her personal email as a message from someone from CSN and she will have a choice whether to click on it.  In the meantime tho feel free to communicate here too.  You will find wonderful comfort and support.  I don't have cancer either, it's my husband but I'm the "designated" communicator.  There's lots of us spouses and family.  Take care both of you and we hope all goes well.  Bill and Becky 

  • po18guy
    po18guy Member Posts: 1,508 Member
    #25
    Absolutely sure of the diagnosis?

    Good news that they appear to have gotten all of the uterine cancer. As to the lymphoma, the follicular variety is a very treatable and manageable malignancy. It gives you the blessing of time - time to wait for treatment while you deal with other things, time for new and less toxic treatments to appear, and time to decide if it even needs to be treated. Many slow growing lymphomas are not treated at all, until and unless they become a problem. Then, you just knock them back and get on with life. Sending some prayers heavenward on your behalf.

  • Uncle Lar
    Uncle Lar Member Posts: 2
    #26
    illead said:

    Hi Uncle Lar

    We are so sorry for your news, it's always such a shock at first and hard to wrap your head around.  This site has had some problems in the past and they have been making adjustments so sometimes what seems like new posts are actually older ones as in the case of Chris.  Don't worry tho, many of us have done the same thing.  You can still reach Chris tho, just click on her picture and it will take you to her page.  On the bottom left in blue letters will say something like "send a message to this person."  You can write to her directly and privately without revealing either's email address.  It will appear in her personal email as a message from someone from CSN and she will have a choice whether to click on it.  In the meantime tho feel free to communicate here too.  You will find wonderful comfort and support.  I don't have cancer either, it's my husband but I'm the "designated" communicator.  There's lots of us spouses and family.  Take care both of you and we hope all goes well.  Bill and Becky 

    Post #2 - Update

    Thank you for your comments. I have an update on the lymphoma. She was diagnosed with Non Hodgkins Phase 3 (Lymph nodes below the Diaphram) Level 1. They are going to use the "Wait & Watch" approach. It's the first time in our lives that we were actually kind of happy to hear a Cancer Dignosis. She will go back for checkups every 6 months and a C Scan every year. The Endometrial Cancer Operation can finally take place after the diagnosis and is scheduled for March 1st. We will know more then as far as what stage it is in and if treatment is necessary. Thank you for your prayers. We will be watching for more from you with your status and praying for both of you. Rose & Larry

  • chrismc
    chrismc Member Posts: 53 Member
    #27
    Uncle Lar said:

    Post #2 - Update

    Thank you for your comments. I have an update on the lymphoma. She was diagnosed with Non Hodgkins Phase 3 (Lymph nodes below the Diaphram) Level 1. They are going to use the "Wait & Watch" approach. It's the first time in our lives that we were actually kind of happy to hear a Cancer Dignosis. She will go back for checkups every 6 months and a C Scan every year. The Endometrial Cancer Operation can finally take place after the diagnosis and is scheduled for March 1st. We will know more then as far as what stage it is in and if treatment is necessary. Thank you for your prayers. We will be watching for more from you with your status and praying for both of you. Rose & Larry

    Sorry to hear of your wife's

    Sorry to hear of your wife's diagnosis. This sounds so similar to what I went through and I will tell you it was a very scary time for me, so I know what she must be going through. My surgery for the endometrial cancer was Robotic-Assisted Laparoscopic and recovery was very quick. The type of Lymphoma I have is Non Hodgkins Follicular B small cell grade one located in the mesentery which is between the intestines. It was also found in the bone marrow during the biopsy so that took it to grade 4. I had no symptoms of this disease.  Mr doctor gave me the option of watch and wait or rituxan infusions. I went with the Rituxan infusions, once a week for 4 weeks. Rituxan is a biological therpy not chemo. Lucky me I had no side effects from this drug. I started the infusions in November and finished up in early Dec. I had a pet scan in mid Jan. and the lymph nodes have shrunk more tha 50%, and the drug will still be working for awhile yet. I am really feeling wonderful. I started an exercise program at a local cancer wellness center and through the diet and exercise have lost 50 pounds. I have also made many new friends there.   I look at life differently now because of the cancer, but it is for the best. I can truly say I am a happier person now  and I am so appreciative of the life I have.    I wish your wife the best with her upcoming surgery and will say a prayer for her. If you have any other questions, please feel free to ask. I am sorry it took so long to get back to you.

     

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