Can You All Come Along On The Pink Bus With Me Monday Please?

ladyg said:

You know I'll be there!

I think I'll bring some "special" brownies. Hope all goes as well for you as it did for me last month.

Hugs,

Georgia

I am sitting next to Georgia!  LOL  Crossing fingers and saying prayers that you will get good results!  What should I bring?

I know, Subway sandwiches!  I love those and I bet all of you do too!

Hugs, Angie

sea60 said:

I'll bring wine

to go with those brownies  :P

 

Prayers ALL will be well!

 

Hugs,

 

Sylvia

I would not miss going to support you Kylez.  I will be waiting to celebrate NED with you!

Hugs, Megan

muffingranma said:

Pink bus

Thank you it does explain it, and yes I will need it this Friday I had breast cancer in 2006 they did a lumpectomy then it followed up with radiation treatments. In August  2012 I seen bruising which turned out to be radiation cancer from the treatments in 2006. They took a large part of my breast off in August,  it came back agajn last of Oct. surgery followed in Nov 5th 2012 they did a mastectomy put drains in and have drained every week and still are draing it the last two times the drainage was very bloody  I want to find out if the bloody drainage and pain are from where I hurt myself when I lifted my arm and felt something pull or tear and then it hurt and still does. I will have an ex ray this Friday to see if I did hurt myself   My doctor said the bloody drainage came back no cancer. The other area they biopsy ed came back positive for Angiosarcoma cancer.  I will have surgery the 15th of Feb. He said he may have to go wider and deeper because it looks like it has spread in three weeks time. . That my skin was pulled so tight now and he doesn't know how he will do it if he has to go deeper. He is going to talk to a plastic surgeon  I know this cancer will keep coming back. They haven't found anything that works against it. But the radiation treatments I will take may prolong it for a while. I have had it four times from AUG.2012 till now I pray this surgery is the last for a while.  radiation too prolong radiation cancer lol. I just hope soon no more draing the area to.

What time are you going Kylez as I don't want to be late?  I've got to get my hair trimmed in the morning, but, will be free after that.  Ofcourse, I will cancel if I have to just to support you!

Hugs

CypressCynthia said:

I am all aboard!  Cafe au

I am all aboard!  Cafe au lait and beignets coming right up!!!  Big hugs and prayers!

Yum on the beignets!

Ritzy said:

They aren't really hard to

They aren't really hard to make, but, they do take some time.  Well worth it though!  Want my recipe and directions?

Can you email me the recipe also Ritzy?  We love those with steaks!

Thanks, Angie

Yes, will be on that bus with you.  You are doing the right thing with followup, 

VickiSam said:

Okay ... I will be there .. sporting my pink velvet

jogging suit -- , racing gloves, and a few thermos of 'sour apple tini's' ---  I guess it may be a long trip, need to figure out what type of food I need to prepare for this trip .. hummmmmm,

maybe a chile relleno casserole -- along with a dozen or so enchilada's --- 

 

Positive thoughts, and prayer dear Kylez -- 

 

Vicki Sam

I will be bringing the pink slime and pink confetti to celebrate NED with you Kylez.  With all of us there with you, you know it will all be positive good news!

With you in party and prayer!!

SIROD said:

History of the Pink Bus for Muffingranma

Hi Muffingranma,

Back in 2011, I wrote a "The Pink Bus, History, sort of"  

http://csn.cancer.org/node/231611

No one has come back to dispute my recollection, that the Pink Bus was taken from an early one.  Here is the story.

Doris

 

The “Pink Bus” is used by many online breast cancer support groups to help those who need buoying up in a virtual sense on their journey. I “google” the words “breast cancer “pink bus” and could not find any history.  There were many busses painted pink for awareness.

There are many groups I am certain that will claim the “Pink Bus” as their own. One site on the internet claimed introduction to the “Pink Bus” went back to the Sept/Oct 2005 article in WebMD magazine.

In my original online breast cancer support group, it was Nancy who introduced it back in 2001 for one of our members. The “Pink Bus” was to accompany Lynne for her first treatment of Herceptin probably in early 2001.

Nancy listed all the items to comfort Lynne from a cashmere afghan to an Elvis cap to go around her shoulder. Sixty-one plus women traveled ... “will be right there with you in spirit. We hope this magical bus had made you smile, and give you something to think about as you start this new road. We love you so much, and I KNOW for sure that each and every one of us would be there in person if at all possible”. Love & hugs, Nancy

This group published a small booklet titled: “Breast Cancer Online: In Our Own Words”. On page 41 “Sharing with Other Survivors” The Bus to Lynne’s Appointment” post is mentioned.  It is available to download if you want to read it. The booklet was originally published in 1999. Reprinted in 2001, the bus trip was not in the original booklet as Lynne’s recurred in April of 2000.

http://www.bcans.ca/booklets/inourown.pdf

I don’t remember where Nancy picked up the idea of a virtual "Pink Bus" perhaps another online support group or her own vibrant imagination. The bus travelled for years, helping so many women in the support group. When I first saw a mention of the “Pink Bus” last spring on this board, my heart stopped for a second. I was totally in shock to read that the “Pink Bus” was continuing it’s journey.

BCANS was a grass root operation, conceived by women with breast cancer who attended a support group. The internet was new when they began the support forum in 1996. I logged on in the fall of 1997, posed a question that was never answered. It was not active at all. I went back in February of ‘98 as a lurker and noticed that activity had considerably picked up. My first post was a month later. We were a small group for a long time when the internet was new. All the women became good friends, small enough of a group to know each lady’s story. Lynne was the leader of the group, much in the way that Chenheart/Claudia is to ACS BC group. By the summer of 2000, Lynne’s prognosis was not good but, she kept her Pollyanna attitude until the end. She died in January of 2005 and the next few years, so many women on the forum dealing with stage IV succumb to this disease. Those who had been there from the start and continue to do well began to post less and less.

The BCANS lost their funding and voted to close in the fall of 2010. Many of us are on Facebook, a closed group for old members of BCANS to keep in touch. When someone had mentioned the “Pink Bus” last spring. I mentioned to the group that it was still around on another support board.

The “Pink Bus” brought back memories of my old forum and outlasted it. The “Pink Bus” continues it’s purpose to help women with breast cancer issues who have a need of virtual support.

Won’t it be a grand day when the “Pink Bus” is rusty from lack of usage and repairs, gathering cobwebs in some forgotten bus junkyard of a time long past? There won’t be a need, for they will have found a cure. There won’t be any woman or man, young or old who will ever need to know what it is like to request virtual support to accompany them on where they never wanted to go in the first place. A rusty, old bus with a few flakes of pink, won’t that be a grand sight!

Best,

Doris

And beautifully told!