Jerry's January 2013 update

It is good to hear from you Jerry, although I wish the news were better. We have heard so much negative feedback about stents. It seems very few people have good results from them. But when you are struggling to eat, and your doctor suggests it as the best option for you, what are you going to do? I hope hospice is providing some support and relief and improving your quality of life.

 You are in my prayers daily.

 Best Regards,

 Paul Adams

McCormick, South Carolina

DX 10/2009 T2N1M0  Stage IIB

Ivor Lewis Surgery  12/3/2009

Post Surgery Chemotherapy 2/2009 – 6/2009

Cisplatin, Epirubicin, 5 FU

It is good to hear from you even if the new is not good.  Sorry to hear you had to stop teaching.  I remember you saying how much you enjoyed teaching.  So many have said such good things about hospice, I hope they are giving you the care and respect you deserve and are able to make you comfortable although the stent did not. 

I'm so disappointed we have lost so many from this board (thru banning) as I know Sherri whould be telling you hospice is not giving up.   

Take care and keep intouch when you can

Lee Ann

Jerry,

I have wondered often how you were doing.  Like the others, I'm saddened to hear that your students no longer have you as a teacher.  It's hard to see a passionate teacher step aside.

I'm glad that you have enlisted hospice.  They are such a wonderful and caring resource.  I hope you are finding that to be true for you!

Please know that you are in our prayers for comfort, peace and miracles.

Terry
PROUD wife to Nick, age 49
lost battle to FEC, June 19, 2012

TerryV said:

Duplicate

new forum software - same old issue

It is good to hear from you,Jerry, even tho I hate it that the news is not better.  We've heard such wonderful things about Hospice here ever since we both joined this group.  I hope you find that to be true.  You are one feisty guy and I can see you enjoying the comforts that Hospice can provide while still pursuing some non-conventional treatment options.   Good luck And keep us posted!

Angie

sorry to hear you are not doing good jerry.  i have about the same things going on as you do. my esophagus is open enough for me to eat. i do have bone mets and now some musle mets in my back.  i was on folfox chemo and now they are trying some other chemo.   i am also trying some eastern medicine as well   i take black rasaberry pills every day and i also take b-17 from aproicot pits. the docs dont think it does any good, but i think it helps. maybe it could help you. take care jerry    ray

jgwright said:

Staying focussed

Well, the biggest problem I have with the stent is that it SOOOOOO easily gets clogged.  I've been fortunate in that I discovered that if the clog isn't TOOO bad I can foam it out with Coke.  Also the Coke helps keep the stent clean.  I've had it clog maybe 9 or 10 times, but only needed to visit the hospital twice to be roto-rootered, as my wife says.

Hospice?  They are GREAT.  And my meds are now free and even though we are in a new year, I don't have to worry about the co-pay or anything else from a monetary standpoint.  Hospice is billing Medicare, not my insurance.  Very cool.  The nurse comes out twice a week, and we work very well to keep my pain under great control.

I also discovered that ibuprofen and oxycodone work extremely well together, and that morphine turns me into a zombie.  And I hate it.  However, it's there if I need it.

Well my love to you all, and as the Bible says, "Keep on persevering in prayer,"

==Jerry

Hi I'm not sure who I'm sending this to or who is going to veiw it but I need to say something about what's going on with myself  ,I don't even know if anyone one will see it ,,well my name is Kriss and I'm not the kind of fella that's good at pen to paper and having a chat about this stuff,,,,

anyway whoever,,, 

where to begin. Well I started of with a sore throat about 6mnths ago and became worse with the hoarseness well a little time after my tongue started showing up different colours which my wife thought was thrush of the mouth anyway the quack put me on amoxicillin and I completed the course. ,

well this went on for a couple of months and it never went away and I just got on with it as that's what blokes do ' they just get on with it' .

so now 5 months have passed and insisted literally dragged me up the quacks office and they made me a appointment at the hospital,,after seeing throat  mouth specialist he had a look inside the old trap and decided to to have a more poke about with a telescope  right up the hooter. Now over 20years I have put some crap up my nose so this was  a new one ,,he he ,,,,

well he had a gander at the old vocale and found some swelling there on the box he said. And further investigations was required. ,,criest I thought I got Sherlock bloody Holmes here  what's he think thiscenes crime scene.?

so this was on a Monday. come Tuesday the old blower goes and it's the hospital to book me in on a Friday for a poke about again so I agree as its best to keep her indoors happy as I want to go out the weekend for a few jars,,so now here iam in the hospital a place that only exists to me in dyer emergencys.If ever. 

So here iam on the bed misis sitting to one side and the doc walks in and tells me that if they don't find anything they will not take any of my tissue away. ,,yeah I'm thinking that's cool, now 2hours later I'm living on a bed with wheels getting pushed down a corridor towards a bright room with half a dozen people in  nurses everywhere and thers me on a bed with nothing on except a gown.

Now the old ticker is starting to beat a little bit faster now,,whether its the 4 nurses fiddling about around my bed putting wires on me. .? Or it's the thought I'm getting put to sleep  by an injection. ,,I try and amuse myself and crack a joke to the specialist. That came to see me and stay to him accuse me doc.  If ya find any money down there let me know and ill split it with ya ,,I got a couple of chuckles out the zombies but not much to shout about.

so now I'm out cold woke up 1 hour 10 min later to someone calling my name ,,I came round pretty quick as I want to be with it ,,literally a few min go by and iam able to talk  and ask the doctor if he found any dollar down the old tunnel so sorry he replies not a penny. ,,lying git I quickly pipe up ya bloody stole it aint ya,,,ha ha ha the nurses go.  Now that's promising I'm thinking I got a laugh this time so maybe all aint to bad.

so now I'm back in my corner with the wife concerned as she is bless her waiting for someone to let me know when I can go home as I'm not the best. Patient one can be,

well an hour an half flies by and I'm now changed into my clobber and still waiting to go.... I'm felling fine and just want to go when  the curtain opens up and the quack. Pops in and tells me that unfortantly he found white paches on both vocale chords and they are very badly swollen,, he had to take 3 samples and is going to rush through the results as he's concernend. Ok I go   What's that mean ,,well I have to go back for the results in a week or so,,ok I go so I leave,

well I'm now thinking what's going on my wife in in the medicale industry and is telling me I need to prepare myself for some harsh results. ,,now what the hell am I supposed to think,, does anyone any idea what they think and if it is cancer after a sore throat and this going on for seven months what they reacon on ,,,I'm not sure how I'm supposed to fill yet I mean should I worry shouldn't I worry  I just don't know,,all I know is I have smoked 3 cig gis as I've wrote this and seem to be smoking more as the week where's on,,

well that's about it really I don't even know if there's anyone out there that will see this  but I bet it makes good reading,,by for now world,,,krissi from London england

Kriss40old said:

A throat biopsy who to talk to or what to say ??????

Hi I'm not sure who I'm sending this to or who is going to veiw it but I need to say something about what's going on with myself  ,I don't even know if anyone one will see it ,,well my name is Kriss and I'm not the kind of fella that's good at pen to paper and having a chat about this stuff,,,,

anyway whoever,,, 

where to begin. Well I started of with a sore throat about 6mnths ago and became worse with the hoarseness well a little time after my tongue started showing up different colours which my wife thought was thrush of the mouth anyway the quack put me on amoxicillin and I completed the course. ,

well this went on for a couple of months and it never went away and I just got on with it as that's what blokes do ' they just get on with it' .

so now 5 months have passed and insisted literally dragged me up the quacks office and they made me a appointment at the hospital,,after seeing throat  mouth specialist he had a look inside the old trap and decided to to have a more poke about with a telescope  right up the hooter. Now over 20years I have put some crap up my nose so this was  a new one ,,he he ,,,,

well he had a gander at the old vocale and found some swelling there on the box he said. And further investigations was required. ,,criest I thought I got Sherlock bloody Holmes here  what's he think thiscenes crime scene.?

so this was on a Monday. come Tuesday the old blower goes and it's the hospital to book me in on a Friday for a poke about again so I agree as its best to keep her indoors happy as I want to go out the weekend for a few jars,,so now here iam in the hospital a place that only exists to me in dyer emergencys.If ever. 

So here iam on the bed misis sitting to one side and the doc walks in and tells me that if they don't find anything they will not take any of my tissue away. ,,yeah I'm thinking that's cool, now 2hours later I'm living on a bed with wheels getting pushed down a corridor towards a bright room with half a dozen people in  nurses everywhere and thers me on a bed with nothing on except a gown.

Now the old ticker is starting to beat a little bit faster now,,whether its the 4 nurses fiddling about around my bed putting wires on me. .? Or it's the thought I'm getting put to sleep  by an injection. ,,I try and amuse myself and crack a joke to the specialist. That came to see me and stay to him accuse me doc.  If ya find any money down there let me know and ill split it with ya ,,I got a couple of chuckles out the zombies but not much to shout about.

so now I'm out cold woke up 1 hour 10 min later to someone calling my name ,,I came round pretty quick as I want to be with it ,,literally a few min go by and iam able to talk  and ask the doctor if he found any dollar down the old tunnel so sorry he replies not a penny. ,,lying git I quickly pipe up ya bloody stole it aint ya,,,ha ha ha the nurses go.  Now that's promising I'm thinking I got a laugh this time so maybe all aint to bad.

so now I'm back in my corner with the wife concerned as she is bless her waiting for someone to let me know when I can go home as I'm not the best. Patient one can be,

 

well an hour an half flies by and I'm now changed into my clobber and still waiting to go.... I'm felling fine and just want to go when  the curtain opens up and the quack. Pops in and tells me that unfortantly he found white paches on both vocale chords and they are very badly swollen,, he had to take 3 samples and is going to rush through the results as he's concernend. Ok I go   What's that mean ,,well I have to go back for the results in a week or so,,ok I go so I leave,

well I'm now thinking what's going on my wife in in the medicale industry and is telling me I need to prepare myself for some harsh results. ,,now what the hell am I supposed to think,, does anyone any idea what they think and if it is cancer after a sore throat and this going on for seven months what they reacon on ,,,I'm not sure how I'm supposed to fill yet I mean should I worry shouldn't I worry  I just don't know,,all I know is I have smoked 3 cig gis as I've wrote this and seem to be smoking more as the week where's on,,

 

well that's about it really I don't even know if there's anyone out there that will see this  but I bet it makes good reading,,by for now world,,,krissi from London england

 

You did a great job wriitng and even got a chuckle out of me while reading parts of it.  I think I waited about a week from the time they took a biopsy of my esophagus to when the Doc called me in to tell me the news.  I was a little anxious but like you I continued living like I always had been.  Worrying about it will not change whatever the results may be.  I would tell you to google the symptoms you have but I found googling things like this is sometimes much worse than the actual diagnosis.  WE hope for the best for you.

jgwright said:

Staying focussed

Well, the biggest problem I have with the stent is that it SOOOOOO easily gets clogged.  I've been fortunate in that I discovered that if the clog isn't TOOO bad I can foam it out with Coke.  Also the Coke helps keep the stent clean.  I've had it clog maybe 9 or 10 times, but only needed to visit the hospital twice to be roto-rootered, as my wife says.

Hospice?  They are GREAT.  And my meds are now free and even though we are in a new year, I don't have to worry about the co-pay or anything else from a monetary standpoint.  Hospice is billing Medicare, not my insurance.  Very cool.  The nurse comes out twice a week, and we work very well to keep my pain under great control.

I also discovered that ibuprofen and oxycodone work extremely well together, and that morphine turns me into a zombie.  And I hate it.  However, it's there if I need it.

Well my love to you all, and as the Bible says, "Keep on persevering in prayer,"

==Jerry

Jerry,

I wish I could reach through the computers and give you a hug. So sending you a warm hug from across the lines.

Also wish your news was different. You have been so kind across your journey to share with others and give out support . I thank you for that, and anything that can be done from a distance please don't hestitate to mention.  

There are dissovlables for under your tongue forms of your medicine, if you find the pills uncomfortable. Hy husband found them helpful. he also did not like the morphine.

Our prayers are with you.