Being an activist, starting with a media release! what do you think ?

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
edited January 2013 in Colorectal Cancer #1

I got no real idea what I am doing, but it was fun on the radio tonight. Not knowing what I am doing has never stopped me before.

I don't think this will go anywhere, but at least I have had a go. I emailed it to a few large sydney newspapers, and spoke on radio tonight. off to sleep.

As a co-incidence i got the full medical report on the german treatments tonight, if anyones interested have a read.

In a way if this goes  nowhere then I can relax in my last week in sydney, if the story gets some coverage, then I am up for it.

hugs,

Pete

 

http://petertrayhurn.blogspot.com.au/2013/01/media-release-and-taking-journalist-and.html

I SURVIVED PART 2  OVERCOMING INCURABLE COLORECTAL CANCER MY WAY

Maybe I am really lucky or unlucky it depends if you are an optimist or a pessimist. Me I am a realist, really lucky thats all. Really lucky to be an australian with all that implies.

I SURVIVED PART 1 MY MOST FAMOUS SURVIVAL STORY LOST AT SEA this was on I survived the program.

I have decided to try and find a documentary maker and or journalist to write my story over the first 4 weeks in germany where the doctors who made my tumours disappear now have to keep them away.  This health maintenance plan will be developed between three clinics.

I have also decided I will pursue the media a little, its australia day, its my duty to share my success. I may be ignored by conventional doctors and mainstream media but it won't be for lack of trying and willingness to share my hope and success and provide some encouragement for other cancer patients and provide a simple real life example that the german clinics work. they may work for you.

So my wife listens to 2gb at night, so I called up and they will talk to me, I will if this gets things going.
I am heading off to germany next saturday night, so its now or never. Its a good Australia day story I think, a little hope and adventure, and yes the Australian spirit of being a larikin and saving my butt. I should not make butt jokes when I had colorectal cancer, then again maybe I am allowed.

The lack of interest in my well documented miracle disappoints me, I wanted to be studied, poked and prodded in an effort to find the reason for my success, or at least some factors. these could have been based on blood tests, more scans etc etc. Alas I am leaving for germany 7 days, my body comes with me, in it the keys to the cure for colorectal cancer, or a least some pretty big clues, but no scientists or researchers are interested, alas. no wonder the cure will never happen and the drug companies will make healthy profits, while us cancer patients make unhealthy  losses.

To come home for a much needed 6 week therapy break and spend Xmas with my wife and two childen has been wonderful. I am feeling good and looking much better. I am however eager to continue my therapies.

I had a 12 month prognosis in July2012, now I have no evidence of disease and maybe headed for cure, see the details below. Call me 0425318681 if you got any queries.

my recurrence started about 14 months ago around 21nov2011 with a cea of 5.9, it climbed slowly and consistently to 81 17sept2012 when my third pet 7sep2012 finally showed peritoneal disease, liver disease and lung disease. so from NED to the works and an offer of palliative chemo. yuk!

my life insurance paid out in 7 days, i immediately went to hallwangen clinic germany and did removab, infusions ( lots 12 hours most days, 7 days a week for 2 months ) i also did 3 chemo embolisations with professor vogel of peritoneal , then liver mets, then lymph nodes and liver. using irenotecan, mitomycin and avastin as the occulysing agent. to top this off i did a dentritic cell vaccine using a new colorectal peptide to trigger apoptosis with newcastle virus disease. along the way i used gcmaf map314 probiotic yogurt. i am making a batch right now. i have meditated, sauna'd, exercised, detoxed, prayed, discussed, colluded and smiled.

my recent scan is considered ned by onc, but the surgeon is worried about one 1 cm spot with an suv1.1 thats been stable 6 months they consider it is treated disease. my cea came in at 3.8.

this is a personal miracle, an achievement and therapy success i am proud of. I have had so much support medically, emotionally etc etc etc. i have thanked everyone in the last few days, especially my god. life is grand and my faith in all that i have tried and my 3500 post on the cancer survivors network regarding non conventional therapies and the research and time behind each of them well has been rewarded by my miracle.

I am back to germany 4th feb for as long as it takes to get my platinum ( I hate my folfox 12 full cycles ), mercury detoxed. to boost my immune system, to continue monthly vaccinations until i am sure this illness is no longer present. lots of more detailed tests beyond cea, ca199 that check for any remaining sign of malignancy inside the biochemical components inside macropages. this test is only in germany, its about $300, but the blood has to get to the lab in 5 hours. 

conventional medicine in australia fills me with a certain fear, i have come this far not to risk my survival to this system. I spent invested a large fortune in my survival, its all documented in my posts on cancer survivors network and for the last 14 months my blog. just goggled peter trayhurn. I hope this helps and gives some hope.

I firmly believe I have found some therapies that are reproducable, read my story. sorry about the mess, the spelling, the grammar. my dream , and i am sure its shared by all of us is to find a workable cure fast. I suspect it exists in germany.
its a combination of therapies at three clinics. I hope other gamblers, risk takers, lovers will take an enjoyable european vacation and have lots of fun, visit these clinics, hopefully achieve substantial improvement if not cure. Its the sort of clincial trial only us as a few communities can put together.

the therapies work, for me and for others.

a huge caveat, my success is about a good as the clinics have seen in 3 months, my chemo free ( in recurrence phase ) , my ultra detoxed, ultra healthy body ( lost 57kiloggrams ), organic, juicing, supplements etc etc etc a factor in my immune systems response. at least thats what i suspect. a friend on xeloda with a lunbg met, did removab and his cea increased a little. so be prepared to invest $120,000 for say 10 weeks therapy and you may not get my results, then again you might. noone can say, but what you get is highly personalised oncology using any and all chemos, naturals, on and off label drugs ever imagined. fede's list is pretty impressive. i am on most of it, or was besides some dodgy questionable things.

its a beautiful world, we are beautiful people, my kids gave me the motivation find my cure, i am almost their. if the cure was on the moon, i would get there somehow. everything i have tried has been shared for free, for what it is. good luck and have fun. Hope and faith are the keys to my success and so much support.

I realise few of us have the funds to invest in health that I was lucky to have, my blogging and posting is my way of sharing at least what i can. When I am clear and finished treatments i dream of setting up a charity to allow disadvantaged to access these clinics, its a dream. in the meantime elements of the therapies can be done cheaply. I hope my non convnetional success boosts morals and does not cause distress to those recently diagnosed or those following convnetional therapies.

I believe my success so far, I won't use "cure" shows the value of a non conventional approach. My me, based on my research the conventional offerings were just to risky. My remission is fragile, i am trying not to prejuidice it, I am trying to not change to much of my current health style, which is my life style. so I really limit my computer time now. exercise, saunas, yoga, qigong and my family are far more important. I will update my blog when i can, with important updates.

Terminal diagnosis from oncologist

German clinic medical report

My joy filled BLOG my great miracle, remarkable therapy success quoting my oncologist and surgeon.

 

Comments

  • Coppercent
    Coppercent Member Posts: 158
    #2
    Pete if anyone can get the

    Pete if anyone can get the word out you can!  Good luck!

  • tachilders
    tachilders Member Posts: 313
    #3
    I'm interested in how you got

    I'm interested in how you got your life insurance to pay out prior to your death so that you had the money to get these treatments.  That must be an Australian thing, because I'm pretty sure they don't do that here in the US.  If I could do it, I might actually be able to consider going to Germany for treatment.

     

    Tedd

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #4
    tachilders said:

    I'm interested in how you got

    I'm interested in how you got your life insurance to pay out prior to your death so that you had the money to get these treatments.  That must be an Australian thing, because I'm pretty sure they don't do that here in the US.  If I could do it, I might actually be able to consider going to Germany for treatment.

     

    Tedd

    Tedd...look into your
    Tedd...look into your insurance. I do think many US policies will pay out a portion if a doctor says you only have X amount of time.
  • jen2012
    jen2012 Member Posts: 1,607 Member
    #5
    Good job Pete! I think its
    Good job Pete! I think its awesome..not only the lengths youve gone to but also your willingness to share your treatments and results.
  • Coppercent
    Coppercent Member Posts: 158
    #6
    tachilders said:

    I'm interested in how you got

    I'm interested in how you got your life insurance to pay out prior to your death so that you had the money to get these treatments.  That must be an Australian thing, because I'm pretty sure they don't do that here in the US.  If I could do it, I might actually be able to consider going to Germany for treatment.

     

    Tedd

    Depends on your policy

    I used to work for an insurance company here in the US and depending on your policy it will pay out early.  If you have insurance, check your policy.

  • coloCan
    coloCan Member Posts: 1,944 Member
    #7
    jen2012 said:

    Good job Pete! I think its
    Good job Pete! I think its awesome..not only the lengths youve gone to but also your willingness to share your treatments and results.

    Nice to "meet" you in person, Pete

    I recall checking out some of your sea-going adventure when you first started posting . The finding of your camera was rather amazing but not as much as your recent expedition to Germany.Hope you continue to have great success .....steve

  • dmj101
    dmj101 Member Posts: 527 Member
    #8
    tachilders said:

    I'm interested in how you got

    I'm interested in how you got your life insurance to pay out prior to your death so that you had the money to get these treatments.  That must be an Australian thing, because I'm pretty sure they don't do that here in the US.  If I could do it, I might actually be able to consider going to Germany for treatment.

     

    Tedd

    Ted, You are looking for a

    Ted, You are looking for a Viatical payout of your insurance.  I only know this from having worked in HR and helped employees get this benefit. It is not easy to get for everyone.. but if you want it start by calling the insurance company to see if your policy has any terms that might block this. I will tell you that it is was only done for people who were totally incompacitated by their disease in the cases I worked. and they all had an advocate or lawyer work for this.The payouts didn't go directly to the person but to a trustee. This was about 8 years ago so the rules may have changed.. We used to recieve afidavits from drs stating the patient only had x amount of time and then a financial statement stating only X dollars to live on ... so it is actually alot of work to get to that money.. but if you are aware of that going into the process.. it can make your life rather comfortable..

    I have thought about it myself.. but it scares me that I might blow it all and then be cured and have nothing left... but you know Lif if much more valuable than money..

    Donna

  • tachilders
    tachilders Member Posts: 313
    #9
    dmj101 said:

    Ted, You are looking for a

    Ted, You are looking for a Viatical payout of your insurance.  I only know this from having worked in HR and helped employees get this benefit. It is not easy to get for everyone.. but if you want it start by calling the insurance company to see if your policy has any terms that might block this. I will tell you that it is was only done for people who were totally incompacitated by their disease in the cases I worked. and they all had an advocate or lawyer work for this.The payouts didn't go directly to the person but to a trustee. This was about 8 years ago so the rules may have changed.. We used to recieve afidavits from drs stating the patient only had x amount of time and then a financial statement stating only X dollars to live on ... so it is actually alot of work to get to that money.. but if you are aware of that going into the process.. it can make your life rather comfortable..

    I have thought about it myself.. but it scares me that I might blow it all and then be cured and have nothing left... but you know Lif if much more valuable than money..

    Donna

    Thank you all for the

    Thank you all for the information!  I will check into this ASAP. 

     

    Tedd

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #10
    Thank you so much for the
    Thank you so much for the time you invest in sharing what you've learned with all of us at CSN. Hope you enjoy your time at home. Good luck with round 2 in Germany. Hope you'll continue to share your experience.

    Chelsea
  • janie1
    janie1 Member Posts: 753 Member
    #11
    Chelsea71 said:

    Thank you so much for the
    Thank you so much for the time you invest in sharing what you've learned with all of us at CSN. Hope you enjoy your time at home. Good luck with round 2 in Germany. Hope you'll continue to share your experience.

    Chelsea

    Pete,
    Really, really
    Pete,
    Really, really appreciate your willingness to bring attention to this horror of a disease. The horror CAN'T continue. It breaks my heart to see the constant bad news.
    I HATE this disease. I met with a doctor yesterday about a clinical trial (immunotherapy). His last words were chemo can't cure.
    Pete, do whatever you can. It's time for a change for the insane way this disease is treated.
    I love your persistance. It takes movers and shakers for a monster like cancer.

    Glad you were able to get back to Australia and be with your family. May the next phase of treatment bring you back to them permanently.....cured and healthier than ever.

    Not many people can do what you do, but that you fight for all of us, is so much appreciated.
    ((HUG))
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #12
    thanks everyone

    if i were a fake, this would be easier. I am giving conventional enough rope to hang themselves, they are doing a good job alas.

    my conventional doctors are not interested.

    just think about it, i am, i am crying for the kind words and the challenge before us all.

    this illness is hard enough, some help, some real help.

    at least my friends here know the story, probably way to much of it.

    sorry about the enemas in the surf. 

    the things we do!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    its australia day, i am off celebrating with kids, wife is working our business is a disaster, i have tried to help.

    the amount we are loosing is equal chewing up the life insurance, but i am not worried, i am grateful.

    no place for stress, just love.

    checkout the german report from hallwangen clinic, its all documented, even the tace.

    smile friends, we will win, even a peaceful passing is victor, as much as a day filled with love and care

    hugs,

    Pete

    ps a nice science journalist is doing a story, she is from canada, its a start.

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #13
    pete43lost_at_sea said:

    thanks everyone

    if i were a fake, this would be easier. I am giving conventional enough rope to hang themselves, they are doing a good job alas.

    my conventional doctors are not interested.

    just think about it, i am, i am crying for the kind words and the challenge before us all.

    this illness is hard enough, some help, some real help.

    at least my friends here know the story, probably way to much of it.

    sorry about the enemas in the surf. 

    the things we do!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    its australia day, i am off celebrating with kids, wife is working our business is a disaster, i have tried to help.

    the amount we are loosing is equal chewing up the life insurance, but i am not worried, i am grateful.

    no place for stress, just love.

    checkout the german report from hallwangen clinic, its all documented, even the tace.

    smile friends, we will win, even a peaceful passing is victor, as much as a day filled with love and care

    hugs,

    Pete

    ps a nice science journalist is doing a story, she is from canada, its a start.

    Hi Pete,
    I still feel bad for

    Hi Pete,

    I still feel bad for the poor sharks (you know what I mean).  ;)

    Best wishes for continued success in Germany.   I'm pulling for you!   :)

    Take care,

    Cynthia

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #14
    LivinginNH said:

    Hi Pete,
    I still feel bad for

    Hi Pete,

    I still feel bad for the poor sharks (you know what I mean).  ;)

    Best wishes for continued success in Germany.   I'm pulling for you!   :)

    Take care,

    Cynthia

    thanks cynthia

    me too.

    hugs,

    peter

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #15
    you tube

    there's always you tube. Upload some podcasts and see how many hits you get.  Doing yourself will get your message out, and is of course free!  Never met you, but have no doubt you'd make it interesting!!

     

    - Karin

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #16
    you tube

    there's always you tube. Upload some podcasts and see how many hits you get.  Doing it yourself will get your message out, and is of course free!  Never met you, but have no doubt you'd make it interesting!!

     

    - Karin

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #17
    I think the Youtube idea is a good one...

    but I wouldn't be surprised if you found a journalist who is interested in your story.  It's pretty compelling!  AA

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #18
    pete43lost_at_sea said:

    thanks everyone

    if i were a fake, this would be easier. I am giving conventional enough rope to hang themselves, they are doing a good job alas.

    my conventional doctors are not interested.

    just think about it, i am, i am crying for the kind words and the challenge before us all.

    this illness is hard enough, some help, some real help.

    at least my friends here know the story, probably way to much of it.

    sorry about the enemas in the surf. 

    the things we do!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    its australia day, i am off celebrating with kids, wife is working our business is a disaster, i have tried to help.

    the amount we are loosing is equal chewing up the life insurance, but i am not worried, i am grateful.

    no place for stress, just love.

    checkout the german report from hallwangen clinic, its all documented, even the tace.

    smile friends, we will win, even a peaceful passing is victor, as much as a day filled with love and care

    hugs,

    Pete

    ps a nice science journalist is doing a story, she is from canada, its a start.

    We are very wise here in
    We are very wise here in Canada. We recognize a good story. Good luck with it all. Anxious to read it.

    Chelsea
  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #19
    tachilders said:

    I'm interested in how you got

    I'm interested in how you got your life insurance to pay out prior to your death so that you had the money to get these treatments.  That must be an Australian thing, because I'm pretty sure they don't do that here in the US.  If I could do it, I might actually be able to consider going to Germany for treatment.

     

    Tedd

    Thinking those same

    Thinking those same thoughts!! Would be nice to have that opportunity.

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #20
    Go for it!!!  Good luck to

    Go for it!!!  Good luck to you...  The more information out there on this the better!! Getting this option available to others would be an awesome outcome of your efforts as well!

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