An interesting article on mets, research, and funding.

Linda,

You should read their web page and all the wonderful articles, stories and etc. 

http://www.metavivor.org.  

They are wonderful and the ONLY organization working for a cure for breast cancer.  Stage IV is the only stage that kills and it's, us, the 30%.  

This C.J. (Dian) M. Corneliussen-James posts on the several mets sites I go on.  When my 3rd recurrence happen in 2008, I posted on one of these web sites and she responded to me, giving me the hope I needed at the time.  One doesn't forget that first person, who extends a hand offering hope, do we?

Some of the blog writing is very interesting.  

They have a Facebook page I read also:

 http://www.facebook.com/metavivor?ref=ts

I do wish you the best with this new chemo.

Doris

CypressCynthia said:

I love it: "30% for 30%." 

I love it: "30% for 30%."  Thanks so much for this!  Many of us with mets are dismayed by the lack of research, but maybe the tide is turning?  I pray it is so!  Hope you are doing ok with your new treatment.  One day, we will meet! Maybe we can have a mets meeting?  Big (((hugs))).

Mets meeting sounds very exclusive

New Flower said:

New York Mets?

Mets meeting sounds very exclusive

Aren't the NY Mets a baseball team or something like that.  Not much into sports, I hope they aren't a football team.

Doris

camul said:

This has been my fight since being diagnosed
stage iv. I kept hearing about all the monies donated but not getting much info on advanced cancer research. Then I found the Metavivor site and was appalled that only 2% was going to adv research. I have written letters to authors (reporters) who have written articles stating all the research being done on adv cancer and given the link to Metavivors.

We are an exclusive club, but one where the membership keeps growing when we want it to decrease. The media seems to sweep over the real facts and this scares me. I think it is this reporting, like how bc is 100% cureable when caught early, yet we all know tht 30% will develop stage iv.

Unfortunately this has given so many the feeling that breast cancer is no longer such a threat an so many do not get the support because people think bc is no longer a big deal. I have heard from so many that I have nothing to worry about, yet I know I am terminal.

To everything said here.  This should be our focus.  Afterall, it's what we worry about, don't we?   I do  think early detection and prevention (not sure about that) has made a huge difference.  Thank you, thank you.  My bc was diagnosed on a mammogram, something I have been very good about getting since I was 40ish.  Because I got the pink message loud and clear.  I also had health insurance, but not all women do.  Anyway, let's do keep up the hype about early detection so most diagnoses are made at an early stage because the odds are better.  What all of us fear, no matter what stage we were at diagnosis, however, is metastasis.  It is very encouraging to hear about a Stage IV person who is doing well, and some are even NED.  Amongst our little group of friends here, we have seen too many succumb. 

So, yep, I thank you for the links and the reminder.  I will find a way to support this.

Suzanne

jamiegww said:

General public has no idea.

I have often wondered if it could somehow be mentioned on the news whenever someone dies of cancer (any form of cancer) if maybe people would get a more realistic idea of how cancer is still killing so many of us.  But then, maybe they would get so used to hearing it that they would just ignore it? 

skin crawl ...

I am in awe of all you stage IV Sisters in PINK ... and pray everyday for a miracle for all.

Vicki Sam