Anyone heard of

Isign4Him
Isign4Him Member Posts: 36
in Head and Neck Cancer #1

 

hey all I was wondering if any of you have any experience with Saligon .. Not sure of the spelling , it's medication to help with saliva

In Christ, Kevin

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    I've heard of it....

    but haven't tried it.  There are a couple other prescription meds out there for dry mouth....I figure they probably work differently for each person, just like everything else seems to do here.

    p

  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #3
    salagen

    commonly tried for dry mout following radiation.  For some, it works well.  For others, not so much.  I was a complete failure.  Side effects can be a problem.  SWEATING!  Nausea, diarrhea.  But for many, worth a try.  Technically it is a cholinergic agonist, so it has effects on all of the body's cholinergic receptors.  That's why the side effects are so common.  In fact, it is said that if you don't have enhanced sweating, you won't get the salivary effect.

     

    Pat

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #4
    phrannie51 said:

    I've heard of it....

    but haven't tried it.  There are a couple other prescription meds out there for dry mouth....I figure they probably work differently for each person, just like everything else seems to do here.

    p

    Wait.. what?

    Phrannie, I LOVE the 'do'.  Looks alot like what I see when I look in the mirror. xxxooo

    Deb

  • peggylulu
    peggylulu Member Posts: 375
    #5
    longtermsurvivor said:

    salagen

    commonly tried for dry mout following radiation.  For some, it works well.  For others, not so much.  I was a complete failure.  Side effects can be a problem.  SWEATING!  Nausea, diarrhea.  But for many, worth a try.  Technically it is a cholinergic agonist, so it has effects on all of the body's cholinergic receptors.  That's why the side effects are so common.  In fact, it is said that if you don't have enhanced sweating, you won't get the salivary effect.

     

    Pat

    Salagen ?

    No one has even offered me anything for dry mouth ! I even ask my GP if there was anything that would help and he said if there was he would have given it to me !!! Help !

  • sonyk728
    sonyk728 Member Posts: 124
    #6
    yes - I take Salagen - makes me sweat but it helps with saliva

    I've been on salagen for well over a year - 3 times a day. I can surely tell when I miss a dose because my mouth gets dry and when I do take it, I do get the sweats, especially facially. Small price to pay. Part of the new normal. Good luck!

  • sonyk728
    sonyk728 Member Posts: 124
    #7
    D Lewis said:

    Wait.. what?

    Phrannie, I LOVE the 'do'.  Looks alot like what I see when I look in the mirror. xxxooo

    Deb

    Yes Phrannie - looking good

    Go girl!

  • peggylulu
    peggylulu Member Posts: 375
    #8
    sonyk728 said:

    yes - I take Salagen - makes me sweat but it helps with saliva

    I've been on salagen for well over a year - 3 times a day. I can surely tell when I miss a dose because my mouth gets dry and when I do take it, I do get the sweats, especially facially. Small price to pay. Part of the new normal. Good luck!

    Salagen

    Thank you ! I am going to ask for some tomorrow . P

  • meinken
    meinken Member Posts: 38
    #9
    Saligen(?)

    I tried saligen the first time I had radiation in 2010.  Didn't help me and I couldn't even muster up the side effects :)

    This time around (new tumors and new radiation, 12 weeks since, clean PET though) my doctor recommended Evoxac. 

    Never heard of it, but I just started with it today. 

    I'll follow up with results.  Some dry mouth relief would be nice

     

     

     

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