Going for third opinion

Vickilg
Vickilg Member Posts: 281 Member
in Colorectal Cancer #1

Thank you everyone for replying to my last post.  Next Tuesday I'm going to get a third opinion from the University of Miami cancer institute.  They are suppose to be very aggressive in their treatment.   Decided I would rather live sick and hurting but still be here for my husband and daughter than to just give up.  Thank you everyone for your words of encouragement to my last post. 

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Comments

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #2
    So glad to hear this Vicki!
    So glad to hear this Vicki! Lots of prayers good thoughts and hugs coming your way.

    Good luck!
  • wawaju04976
    wawaju04976 Member Posts: 316 Member
    #3
    I, too, feel that way. I'm

    I, too, feel that way. I'm new to this,  but my son (24 yrs old) was very adament that I fight this. He figures he'll have grandbabies for me (someday in the future)!

  • manwithnoname
    manwithnoname Member Posts: 402
    #4
    Maybe this is

    an option;

    The study will use a unique combination drug therapy of Capecitabine (a chemotherapy drug) and Celecoxib (an FDA approved arthritis medication) to “wake up” and to “kill” colon cancer stem cells. The treatment works by activating cancer stem cells that hibernate during chemotherapy—a chief cause of treatment failure—so they can be destroyed. The proper sequence is necessary to consistently kill the dormant cells. The ADAPT concept was proposed by Drs. Lin and Linheng Li, a prominent stem cell biologist.

    It is a very powerful drug combination with good preliminary results. Pilot studies have shown significantly increased survival rates compared with conventional therapy. Of 124 treated patients, 40% of those treated with this protocol achieved complete remission or near remission with a median survival of 93.7 months and only 1/3 of the patients had surgical removal of the metastasis. The average length of survival for stage IV colorectal cancer patients on conventional treatment is about 20-24 months and 46 months for complete responders.

  • KathiM
    KathiM Member Posts: 8,028 Member
    #5
    Sorry, I missed your last topic....

    But, you GO, girl!!!  We have your back!!!

    Hugs, Kathi

  • luvinlife2
    luvinlife2 Member Posts: 172 Member
    #6
    YAY Vicki!!!

    So glad to hear this  Smile

  • luvinlife2
    luvinlife2 Member Posts: 172 Member
    #7
    manwithnoname said:

    Maybe this is

    an option;

    The study will use a unique combination drug therapy of Capecitabine (a chemotherapy drug) and Celecoxib (an FDA approved arthritis medication) to “wake up” and to “kill” colon cancer stem cells. The treatment works by activating cancer stem cells that hibernate during chemotherapy—a chief cause of treatment failure—so they can be destroyed. The proper sequence is necessary to consistently kill the dormant cells. The ADAPT concept was proposed by Drs. Lin and Linheng Li, a prominent stem cell biologist.

    It is a very powerful drug combination with good preliminary results. Pilot studies have shown significantly increased survival rates compared with conventional therapy. Of 124 treated patients, 40% of those treated with this protocol achieved complete remission or near remission with a median survival of 93.7 months and only 1/3 of the patients had surgical removal of the metastasis. The average length of survival for stage IV colorectal cancer patients on conventional treatment is about 20-24 months and 46 months for complete responders.

    Doing this combo...

    My nat onc started me on celebrex in addition to the can-arrest cox-2 inhibitor about 1 1/2 years ago.   I'm a total believer in the connection between inflammation and cancer.  This is just one of the number of things that I believe keep my cells responding to the same chemo I started with 4 1/2 years ago.

  • jasminsaba
    jasminsaba Member Posts: 157 Member
    #8
    I will be thinking of you ...

    next Tuesday. Good luck! Wishing you a positive visit ... and an uplifting plan of action. My wish for you is a long life - without hurting and being sick all the time. My prayers are with you.

  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #9
    jasminsaba said:

    I will be thinking of you ...

    next Tuesday. Good luck! Wishing you a positive visit ... and an uplifting plan of action. My wish for you is a long life - without hurting and being sick all the time. My prayers are with you.

    Vicki I don't know if you've

    Vicki I don't know if you've checked out the thread on colon club they have going about clinical trials.....maybe you could check that out and see if a similar trial is in your area.   Good luck  with your appointment, hope they come up with somethingmore  tolerable and effective  for you. 

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #10
    Keep us posted, Vicki-

    hoping very much for good news for you!  AA

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #11
    So happy to hear that you are
    So happy to hear that you are not giving up. Good luck and please let us know how it's going.

    Chelsea
  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
    #12
    Vicki
    Good luck with 3rd opinion, so glad you are fighting. Remember, there are a lot of people that were told to get their affairs in order, and years later they are in remission. Vicki, that can be you too. Best of luck. Big, big HUGS. I will be thinking about you.
    Sandy :)
  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #13
    Good luck to you!! You are a

    Good luck to you!! You are a fighter, clearly.  I am hopeful you will find the right treatment for you to live more comfortably. You are truly an inspiration ...

  • Varmint5
    Varmint5 Member Posts: 384 Member
    #14
    Vicki...

    I just didn't know what to say before. I am the mom to my 33 year old daughter who has stage IV colon cancer and I live in fear of this conversation with my only child. I have to tell you, my heart went pitty-pat when I read this post and I wanted to cheer for you! I know there are times you need to vent and, for many facing colon cancer, the time to make this decision does come. And I know the good folks here will be there for you 100% with whatever you decide to do. But I am just so happy and thankful that you are going to get another opinion, and I am hoping that you will find a workable plan. 

    Sandy

  • SharonVegas
    SharonVegas Member Posts: 189
    #15
    The third time is a charm :-)

    The third time is a charm :-)

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #16
    SharonVegas said:

    The third time is a charm :-)

    The third time is a charm :-)

    Life Is an Echo...

    And sometimes when we cast our voices upon the wind...we simply hope to hear the other voices from the other side of the canyon...voices that break the silence...voices that surround us and fill us with validation...while quelling our trepidation...

    Voices, whose echoes wrap us up in a blanket of comfort when we feel the need to be nurtured...and voices that help light the way through the haze of darkness...when we find ourselves meandering off the chosen path we've been on. 

    I'm glad you're back on track, Vici...and I hope you can hear 'the voices.'

    Wink

    Hugs/Craig  

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #17
    That is great news. Keep
    That is great news. Keep fighting.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #18
    Opinion

    Glad that you are going for another opinion and hoping that this one can give you another option, but you need to do what you can especially if you want to continue on with treatment.  Just wishing and praying for the best for you.  You show much courage and strength.  May God be with you through all your decisions.  I'm glad that you are seeking more knowledge.  Let us know.

    Kim

  • Dyanclark
    Dyanclark Member Posts: 296
    #19
    Goodie

    Happy you are hanging in there we will be your cheerleaders.

  • wolfen
    wolfen Member Posts: 1,324 Member
    #20
    Dyanclark said:

    Goodie

    Happy you are hanging in there we will be your cheerleaders.

    Vickie

    I'm so relieved that you'll be getting that third opinion. This could be the one!  I just didn't know what to reply to your other thread. I know it takes a lot of courage and determination to continue fighting, but you have the spirit.

    Keep the faith,

    Luv,

    Wolfen

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #21
    Dear Vicki

    I am so glad to hear you are looking into another opinion.  My prayers are that you will find a new team who can give you a treatment plan which gives you a very long future.

    The dark moments, hours, days come upon all of us.  I am so thankful that we have this site and that you were brave enough to ask the question, and we had the opportunity encourage you.

    I think it is important for us all to make a list of all the things that we can do, even on our worst days, to add to the lives of those we love and those who need our presence.  Start that list with giving love, caring, understanding and gratitude to those we love.  Those things have worth beyond calculating.

    Hugs,

    Marie who loves kitties

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