Newly Diagnosed

sdblackbu said:

Positive thoughts

Hi

I am post robotic surgery Oct 10, 2012 with first chemo Oct 18, 2012.  I thought I had a UTI which I did but that morning had noted a little pink on toliet paper.  My primary MD was out and new partner thought I should have a pelvic due to pink on toliet paper.  I had my yearly pap and pelvic in Feb 12 and everything good.  My primary MD thought my cervix looked strange and referred me to a local GYN.  Local GYN thought cervix looked ok possible endometrios but suggested a biposy (this all started on Sept 18, 2012).  I had bx on Sept 24th and MD thought all was well.  On Sept 25th I received phone call from my MD who told me he was shocked but bx was positive and I need to see surgical oncologist as soon as possible.  All I remember was rare and aggressive.

You may be in my state of mine, rare and aggressive means do what ever it takes to get this controlled.  I think the first month of my life was in total fight mode to survive.  I was staged as a III C.  I have finished my first three Taxol and Cistplantin and my CT scan came back good.  Have just finished my fourth chemo with two more to go.  Still uncertain as to whether radiation therapy will take place.  CTs are markers for me.  I know this is a journey that will continue for sometime but I am a survivor and you will be too.

I had DaVinic robotic and it is amazying surgery.  Went home within 24 hours, felt great, keep telling everyone how wonderful I felt (my gallbladder surgery was worse than this).  Surgery lasted six plus hours due to lymph nodes involvement.  My biggest problem post surgery was my left leg, after surgery I felt my left leg was weaker than right and it proved to be correct.  I have had nerve involvement which will improve but due to length of surgery, nerve was over stimulated so pain started similar to sciatica, started on Neurotin which has helped, have to be careful walking due to weakness but has gotten better daily.

I was not the healthy person at 64 when I had the surgery but I have really worked at improving that part of my life.  I try to walk 30 minutes a day and working on eating better.  Get in touch with a healing arts program with your hospital if they do not have one give your location and I will try to connect you with sometime in your area.  I am blessed with a very spiritual family and community but also massage, healing touch, tai chi, mediation, etc community which has helped me.

Stage I is good, so stay at peace and survivor mode which I believe is critical for good outcomes.

Blessing and fight hard.

SDB

 

Ladies,

Thank you all for the continued encouraging thoughts, prayers and shared experiences. I am getting ready to wind down for the night as we need to leave at 5am to get to the hospital by 6am. Surgery at 8am. I plan on beng back on the board before the end of the week reporting on my progress and sharing my experience with newcomers who have questions and concerns.

God bless!