About to begin the Journey

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Comments

  • wrhbounds
    wrhbounds Member Posts: 39
    Good Luck
    I was much like you

    Good Luck

    I was much like you 13 years ago its a long journey but never lose your positive attitude 

  • fishmanpa
    fishmanpa Member Posts: 1,225 Member
    wrhbounds said:

    Good Luck
    I was much like you

    Good Luck

    I was much like you 13 years ago its a long journey but never lose your positive attitude 

    13 is not such an unlucky number...

    Wow! 13 years? That's awesome!

    There's a quote by Charles Swindoll that I take to heart.

    "Life is 10% what happens to us and 90% how we handle it." If I wasn't a glass half full kind of person, I would have given in years ago ;)~

    Thanks for the note!

    Best....

    "T"

  • fisrpotpe
    fisrpotpe Member Posts: 1,349
    wrhbounds said:

    Good Luck
    I was much like you

    Good Luck

    I was much like you 13 years ago its a long journey but never lose your positive attitude 

    welcome

    welcome to the site and conrats on your double digit survival. 13 years great job!  Smile

    john 

  • Skiffin16
    Skiffin16 Member Posts: 8,303 Member
    Percentages...
    Here's one that I like to use with your percentages... 10% of all fishermen catch 90% of the fish.... "I like to think I'm a 10%er..., LOL"

    But yours is sooo true.

    Hey T, I'm going out on a limb here...

    Seeing you are holding a guitar, and you referenced the music industry...,

    Does the FishmanPA actually refer to a musical instrument or equipment...?

    I have a buddy on here that you might like to know if so..., or at least check out his guitar collection.

    PhillieG

    Awesome guy fighting his own battle with the beast....

    BTW, smack old Jack upside the head for me please...

    Best,
    John
  • fishmanpa
    fishmanpa Member Posts: 1,225 Member
    Skiffin16 said:

    Percentages...
    Here's one that I like to use with your percentages... 10% of all fishermen catch 90% of the fish.... "I like to think I'm a 10%er..., LOL"

    But yours is sooo true.

    Hey T, I'm going out on a limb here...

    Seeing you are holding a guitar, and you referenced the music industry...,

    Does the FishmanPA actually refer to a musical instrument or equipment...?

    I have a buddy on here that you might like to know if so..., or at least check out his guitar collection.

    PhillieG

    Awesome guy fighting his own battle with the beast....

    BTW, smack old Jack upside the head for me please...

    Best,
    John

    Couldn't be more true...

    Hi John,

    That is a true statement! I've always been one that just has the "it" factor when fishing. Nobody is catching anything and I can walk up and "fish on!" ~lol~ I have a buddy who is in the 90% 

    Concerning the music?... While my Martin has the Fishman Prefix pickup system in it, "fishmanpa" is a screen name I've used since 1995. I love to fish and I used to live in Pennsylvania.

    I'll check out your friend and say hi.... I have quite a few nice instruments and always like to admire a nice collection.   

    "T"

  • phrannie51
    phrannie51 Member Posts: 4,716
    fishmanpa said:

    Thanks Guys!

    I don't know if I'll be getting Amifostine. They didn't mention it. I know I'll be getting anti nausea drugs at infusion and to take afterwards and to help with breakthrough nausea. You're right P, in that I'm getting lower doses of Cisplatin over a longer period of time, most likely due to my heart condition.

    I know it all remains to be seen how my body and psyche will react to all of this. I have my moments but for the most part I'm Ok with it. Like I mentioned in previous posts, I'm pissed more than anything else. How dare Jack come along and mess things up! I'll use that as a motivating force to defy that SOB and kick his tush to the ground ;)~ (I know... big talk from someone who hasn't been in the ring yet ~lol~) I do however like the idea of working from a comfy chair. In fact, my partner and I were out looking at recliners over the weekend. When I had the PET scan done, they put me in a really nice recliner and covered me with a warm blanket while the injection was working. It was quite comfy and I promptly passed out.

    Hopefully, they'll have music in the rad and chemo rooms. I know they did when I had the stents put in. Most of the stuff I listen to is much like what I play. I call it "eclectic acoustic ear candy". Classic stuff mostly from the 60's and 70's. Simon and Garfunkel, Jim Croce, acoustic Jethro Tull, Cat Stevens,songs from Scrubs etc. I'll have to burn a "chemorad mix" CD for treatments. 

     

    I do have a question for everyone...

    How long was it from the time you were diagnosed until you started treatment? I ask because it seems like this is taking forever. I was initially officially diagnosed on Nov. 30th and we're going on 8 weeks now. The tumor is growing. 3.1cm when initially seen in the CAT scan and now it's around 5cm. I'm actually starting to feel a "fullness" on the left side of my neck and the tumor is clearly visable. I just want to get going with this!

    Thanks again...

    "T"

    I joined this site a day or so after I was

    diagnosed with a FNA....so like the first week of March, 2012.....I was chomping at the bit wanting to get into treatment and get this "thing" out of me.  Everybody told me that the waiting was the hardest part of everything, and they were right....and getting everything together with the Dr.'s takes time.....I got my port in, and they nicked my lung so I lost a week waiting for that to heal....I finally got my first rad and my first chemo April 27th. 

    My little node on my neck was just fine till the biopsy.....after that it went town growing....scaring hell out of me on a daily basis.....I thought "sure, tick off all those little cancer cells, then leave them to proliferate for 6 weeks.....while I watch the node grow!"....

    p

  • denistd
    denistd Member Posts: 597
    fishmanpa said:

    Couldn't be more true...

    Hi John,

    That is a true statement! I've always been one that just has the "it" factor when fishing. Nobody is catching anything and I can walk up and "fish on!" ~lol~ I have a buddy who is in the 90% 

    Concerning the music?... While my Martin has the Fishman Prefix pickup system in it, "fishmanpa" is a screen name I've used since 1995. I love to fish and I used to live in Pennsylvania.

    I'll check out your friend and say hi.... I have quite a few nice instruments and always like to admire a nice collection.   

    "T"

    HI T.

    Lots of good stuffe here, I am a laryngeal cancer survivor (close to 4 years now). Nothing to do with cancer. I too am a musician, or was, retired from that a long time ago. Am from England and moved to the states in my early thirties. Like your taste in music, There are several old musos on the board, ot would be great to talk more about this. We should get together some other way and maybe I could send you copies of some of the records I made. Denis

  • fishmanpa
    fishmanpa Member Posts: 1,225 Member
    denistd said:

    HI T.

    Lots of good stuffe here, I am a laryngeal cancer survivor (close to 4 years now). Nothing to do with cancer. I too am a musician, or was, retired from that a long time ago. Am from England and moved to the states in my early thirties. Like your taste in music, There are several old musos on the board, ot would be great to talk more about this. We should get together some other way and maybe I could send you copies of some of the records I made. Denis

    Once a musician, always a musician

    Hi Denis,

    Thanks for the note. Congrats on 4 years! So a bass player I see. yes, it would be cool to chat about music and exchange war stories. I'll shoot you a PM with some contact info.

    A side note: Where do I find the "friend" button. In other words, how do i ask someone to be a friend on here. I've gotten a couple of requests but I can't find where to do that myself.

    "T"

  • Skiffin16
    Skiffin16 Member Posts: 8,303 Member
    fishmanpa said:

    Once a musician, always a musician

    Hi Denis,

    Thanks for the note. Congrats on 4 years! So a bass player I see. yes, it would be cool to chat about music and exchange war stories. I'll shoot you a PM with some contact info.

    A side note: Where do I find the "friend" button. In other words, how do i ask someone to be a friend on here. I've gotten a couple of requests but I can't find where to do that myself.

    "T"

    Search CSN members..

    Top right of all pages..., click it.

    It brings this page up;

     

    Member Search



    You may search members by entering their username in the box below.



    Type in a name you want to add, like Skiffin16 for example, LOL...and hit return.

    It'll bring up my name (linked to my profile), but also to the right it will say Add friend.

    Click that and it'll send that person a request...

    Don't do it in the box I inserted though...,  it'll kick you out of this thread to a blank page.

    You can go to My CSN Space, My Friends, it'll list your friends, and if any are online, a green dot will show up beside their name.

    John

     


  • cureitall66
    cureitall66 Member Posts: 913
    wrhbounds said:

    Good Luck
    I was much like you

    Good Luck

    I was much like you 13 years ago its a long journey but never lose your positive attitude 

    Welcome wrhbounds!

    What an inspiration you are to the rest of us here that are new! Thanks for coming to the forum. Feel free to tell us your story. We consider ourselves the big H & N family here and love to get to know one another and offer advice and help when we can.

    ~Cureitall~ Cris