Could I use your other shoulder?
My onc just called with my latest CA 125 and it went up again from 40 to 72. She is offering me another drug, I can't remember the name right now. I thought she said samara but when I googled I found Synarel. That might be it. She said if the numbers get too uncomfortable for me or if I start to feel anything, I can choose to start chemo. I told her I would prefer to try another drug. She thinks that is the best since the Tamoxifen lowered my CA 125 for three months so it did work. She said maybe a second-line drug will work for me. She also said it has more side effects than Tamoxifen such as joint pain or accelerating osteoporosis. She does not feel a petscan is necessary at this time which is fine with me.
What fun! I am taking it well, what else can I do?
Karen
Comments
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Karen IAm so sorry your #is
Karen IAm so sorry your #is on the rise. I don't know what else to say please know you are in my prayers my mud run buddy. I am so tired of this disease haunting the people I care about.
Eileen
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Karen IAm so sorry your #is
Karen IAm so sorry your #is on the rise. I don't know what else to say please know you are in my prayers my mud run buddy. I am so tired of this disease haunting the people I care about.
Eileen
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Dear KarenGlad to be done said:Karen IAm so sorry your #is
Karen IAm so sorry your #is on the rise. I don't know what else to say please know you are in my prayers my mud run buddy. I am so tired of this disease haunting the people I care about.
Eileen
Damn this cancer! I know how discouraging it must be to learn that your CA 125 has risen again. However, I am very hopeful for you that the new, second-line drug will do the job, with minimal side effects. I'm rooting for you and you know that you can always use my shoulder!
Hugs,
Kelly
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Ca rising
Karen
im with you. My number at beginning of January was 73. Onc said we could start chemo whenever I wanted. Well, that would be never but I wanna live a little while longer. So since I feel good I'm delaying chemo for a bit.
Yeah, it stinks but what can we do. Worry doesn't seem to work so I try hard to refocus my thoughts.
Also some women have went for months with a rising ca before starting chemo. So enjoy your self before chemo.
praying you and me
Shawnna
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So sorry your numbers are climbing
I agree with your decision to postpone second line chemo for as long as possible to preserve quality of life. I would have done the same thing.
I think your doctor was talking about Femara ( letrozole), an aromatase inhibitor.
Stay strong Karen
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You're right, AlexandraAlexandra said:So sorry your numbers are climbing
I agree with your decision to postpone second line chemo for as long as possible to preserve quality of life. I would have done the same thing.
I think your doctor was talking about Femara ( letrozole), an aromatase inhibitor.
Stay strong Karen
I just looked up my prescriptions and it lists Letrozole.
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No..not again! I pray cancerlulu1010 said:So sorry, Karen
I know how discouraging it all is but I think it is good that it is caught early and maybe wipe it out now before it has time to cause trouble. Maybe it wont take long. Prayers!
No..not again! I pray cancer is not back........Val
B
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Karen
Sorry this post is late, I have been moving and not been on the site. I don't know what I would do in your situation ,I don't like the doctor giving me the choice she is the expert I want her to tell me what she would do. She did do that to me when a biopsy came back negative and she still thought it was positive and she was right a second biopsy 3 months later came back positive. But the wait was not a bad choice so go with your gut feeling.
I think we get to a place where we accept that we have this (horrible) disease and just do what we have to . I wish you the best and hope you are feeling well.
Colleen
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Hi Karen - Just wanted toCafewoman53 said:Karen
Sorry this post is late, I have been moving and not been on the site. I don't know what I would do in your situation ,I don't like the doctor giving me the choice she is the expert I want her to tell me what she would do. She did do that to me when a biopsy came back negative and she still thought it was positive and she was right a second biopsy 3 months later came back positive. But the wait was not a bad choice so go with your gut feeling.
I think we get to a place where we accept that we have this (horrible) disease and just do what we have to . I wish you the best and hope you are feeling well.
Colleen
Hi Karen - Just wanted to say hi and see how you are doing?
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Hi Karen - Just wanted toCafewoman53 said:Karen
Sorry this post is late, I have been moving and not been on the site. I don't know what I would do in your situation ,I don't like the doctor giving me the choice she is the expert I want her to tell me what she would do. She did do that to me when a biopsy came back negative and she still thought it was positive and she was right a second biopsy 3 months later came back positive. But the wait was not a bad choice so go with your gut feeling.
I think we get to a place where we accept that we have this (horrible) disease and just do what we have to . I wish you the best and hope you are feeling well.
Colleen
Hi Karen - Just wanted to say hi and see how you are doing?
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I am doing well.Glad to be done said:Hi Karen - Just wanted to
Hi Karen - Just wanted to say hi and see how you are doing?
I do find I am not my usual upbeat self but I know I'll bounce back. I have to quit relying on this %&*# disease to man up and leave me alone. I haven't received my new meds yet, I get them by mail. It's been a week but with the weekend and holiday I guess it was delayed.
I am getting ready to leave for Weight Watcher's. I don't expect good results since I had a couple of days of "emotional" eating. It doesn't matter, I always feel so much better when I attend the meeting. I have met some great people there and always leave with a smile on my face.
I am planning my birthday lunch. I am turning 65 which is so hard to believe. I can't possibly be this old! My birthday falls on a Tuesday so I am having my retired friends over. It will be a smaller group than I normally have which is good since my nerves are kind of frazzled right now.
Thanks for asking about me. Just knowing you are all here when I need you makes all the difference.
Karen
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Happy birthday Karen! Many happy returns!kikz said:I am doing well.
I do find I am not my usual upbeat self but I know I'll bounce back. I have to quit relying on this %&*# disease to man up and leave me alone. I haven't received my new meds yet, I get them by mail. It's been a week but with the weekend and holiday I guess it was delayed.
I am getting ready to leave for Weight Watcher's. I don't expect good results since I had a couple of days of "emotional" eating. It doesn't matter, I always feel so much better when I attend the meeting. I have met some great people there and always leave with a smile on my face.
I am planning my birthday lunch. I am turning 65 which is so hard to believe. I can't possibly be this old! My birthday falls on a Tuesday so I am having my retired friends over. It will be a smaller group than I normally have which is good since my nerves are kind of frazzled right now.
Thanks for asking about me. Just knowing you are all here when I need you makes all the difference.
Karen
0
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