Husband Diagnosed with Kidney Cancer, Stage 4

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  • alice124
    alice124 Member Posts: 896 Member
    #42
    jjf25 said:

    Kidney cancer and bone mets

    I WAS ASKED TO LOOK AT YOUR MAIL. Please help. Read my mail of january as i do not want to keep writing. it all over again. You have  been very strong and have moved forward despite being told about. like expectancy.

    I have a decision to make  i have paralysis in my legs. This happened after a dose of Radiation.

      I want to go on the drugs Avastin and tarceva but afraid the side effects will make my quality of life unbearible.  Do i stop taking all drugs as the oncologist has said a matter of months or defeat him and take the drugs to survive longer than his predictions. Who can tell ypu how long you have.

    I need news from someone who can give me that power to make the correct decision I pray and know that the Blessed Lord will help me.

    I am 35

    Please give me the information of the drugs you were on .MDX 1106. What are they and will i be able to get them in the uk. We do not seem to have a system like you people in America

    A quick reply with useful information will be truly appreciated.

    Thank you

    Kidney Cancer and Bone Mets

    JJ - this is a duplicate response to make sure you get it.

    _____________________________________

    JJ,

    Tex's advice about joining the ACOR site is good advice. There is more expertise and experience there. I don't recall anyone on this Board sharing experience recently regarding immobility issues, but there are a lot less people on this Board than on ACOR. And, if my memory is correct, one of the moderators on the ACOR Board is from the UK. So she may be able to answer questions more specifically about the UK.

    As far as searching for Fox's experience on this Board I'd suggest you use the CSN search box (at the top of Kidney Cancer discussion board) and enter FOXHD or MDX-1106. You'll likely have to read through the different sites but he has a lot of information out there, so you won't be bored. You'll find his writing inspirational; you'll find him inspirational. He was given a very dire diagnosis in the beginning (believe it was in 2011) but he continues to beat the odds and--like you mention--"continues to live a normal life." (If you call what he does normal Laughing.) I wish I could be more helpful but I know you are looking for a quick turnaround in responding.

    So--for now--join the ACOR site following Tex's instruction in post and read Fox's history.

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