1st Taxol last Friday - Update

McMarty · January 2013

I had my first Taxol last Friday. It went pretty well. Friday was good, Saturday was OK then Sunday! EEOUCH! I couldn't move off the couch. Lots of back and neck pain, like the flu i recon. Today is about half better. YIKES!

Did I hear them right when they said these side effects ease some after the 2 treatment? This is rough!

smalldoggroomer · January 2013

It always hit me a couple of

It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

Ritzy · January 2013

smalldoggroomer said:
It always hit me a couple of
It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

I'm sorry Marty. I sure hope

I'm sorry Marty. I sure hope it gets easier and better for you.

Sue

McMarty · January 2013

smalldoggroomer said:
It always hit me a couple of
It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

Well, I hope it was a

Well, I hope it was a loading dose. Probably so. That gives me some hope! I'm supposed to do this for quite some time I SURE want it to be easier than this. And yet, I know I'm whining. It was so much harder for those who went before us.

I'm trying to keep my chin up !

Noel · January 2013

McMarty said:
Well, I hope it was a
Well, I hope it was a loading dose. Probably so. That gives me some hope! I'm supposed to do this for quite some time I SURE want it to be easier than this. And yet, I know I'm whining. It was so much harder for those who went before us.

I'm trying to keep my chin up !

Whine away! You deserve to!

Whine away! You deserve to! You are going thru chemo and that is not easy Marty! You come here and vent or whatever you want to do whenever you want.

We're on this journey with you, to support and encourage you.

Feel better,

Noel

McMarty · January 2013

Noel said:
Whine away! You deserve to!
Whine away! You deserve to! You are going thru chemo and that is not easy Marty! You come here and vent or whatever you want to do whenever you want.

We're on this journey with you, to support and encourage you.

Feel better,

Noel

Thank you! This is a great

Thank you! This is a great place!

burcu123 · January 2013

typical for pain and fatigue

Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

Ritzy · January 2013

McMarty said:
Well, I hope it was a
Well, I hope it was a loading dose. Probably so. That gives me some hope! I'm supposed to do this for quite some time I SURE want it to be easier than this. And yet, I know I'm whining. It was so much harder for those who went before us.

I'm trying to keep my chin up !

Hoping it was a loading dose

Hoping it was a loading dose too! Keep your chin up!

jessiesmom1 · January 2013

Your Taxol Journey

Hi Marty,

I am glad you posted an update about beginning your Taxol. I had 12 rounds of Taxotere which is in the same class of drugs (the taxanes) as Taxol. I don't know who told you that side effects "ease some after the 2nd treatment" but that was most definitely not my personal experience. Sorry. For me they only seemed to get worse. I hope your experience is different. On the positive side, I did not have any bone or muscle pain nor did I have any neuropathy or mouth sores. I had numerous other side effects though. I did, however, get through all 12 rounds of the Taxotere chemo without missing a single one. It was in no way an easy thing to do but I had so much to live for t hat I was determined to do everything I could.

You CAN do this.

IRENE

desertgirl947 · January 2013

Taxol and me

My taxol days were Mondays. I really didn't feel it in my joints/bones until Fridays, although I was told it was more likely the neulasta shots (which I had also taken while doing A/C). By Sunday evening, the discomfort was gone. About as much as I could do was take Ibuprofen.

Oddly, what makes me wonder if it actually was the neulasta shot, not the taxol, was that after my last taxol infusion, I did not have to return the next day for the neulasta shot. (My numbers had been good throughout chemo.) When Friday/Saturday/Sunday came, I did not have the bone/joint pain. Weird, I know.

We all seem to react differently to our chemo drugs. I think I already told you on an earlier posting, different board, what my issues were with taxol.

Hang in there. Look ahead to being done.

Alexis F · January 2013

burcu123 said:
typical for pain and fatigue
Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

Thanks for updating us as we

Thanks for updating us as we worry. I'm sorry that you're having a rough time. Be sure and let your onco know how you are doing. Hopefully, he can prescribe something to help you to get thru this.

Hugs, Lex

Rague · January 2013

We are each unique!

I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol. For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol. I had no pain or neuropathy - just complete and utter exhaustion the entire time. The 'good' thing - I started rads a week after last Taxol and felt better daily.

Winyan - The Power Within

Susan

VickiSam · January 2013

Rague said:
We are each unique!
I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol. For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol. I had no pain or neuropathy - just complete and utter exhaustion the entire time. The 'good' thing - I started rads a week after last Taxol and felt better daily.

Winyan - The Power Within

Susan

.. been there, done that .. and boy, it was not fun

I describe my pain as being hit by a tractor trailer -- and left in the street as road kill. What helped was taking claritan or benedrly that day I had my taxol chemo therapy infusion. Please .. check with your Oncologist == to see what he/she recommends for you.

I am a huge advocate in getting help with side efforts from Chemo. Please do just suffer ... this is the most difficult journey of you LIFE --- there is HELP.

Exhaustion, Insomnia, neuropathy in my hands and feet, watery eyes for months long after chemo treatments completed --- nose sores --. I lost several toe nails, and finger nails -- which took forever to regrow after chemo (appx. 8 to 10 months).

Prayers and gentle hugs for you.

Vicki Sam

Angie2U · January 2013

desertgirl947 said:
Taxol and me
My taxol days were Mondays. I really didn't feel it in my joints/bones until Fridays, although I was told it was more likely the neulasta shots (which I had also taken while doing A/C). By Sunday evening, the discomfort was gone. About as much as I could do was take Ibuprofen.

Oddly, what makes me wonder if it actually was the neulasta shot, not the taxol, was that after my last taxol infusion, I did not have to return the next day for the neulasta shot. (My numbers had been good throughout chemo.) When Friday/Saturday/Sunday came, I did not have the bone/joint pain. Weird, I know.

We all seem to react differently to our chemo drugs. I think I already told you on an earlier posting, different board, what my issues were with taxol.

Hang in there. Look ahead to being done.

I wish no one ever had to do

I wish no one ever had to do chemo. Try to think positive and remember that the chemo is killing the cancer and there will be an end to it. How many more treatments do you have?

Hugs and lots of positive thoughts,

Angie

McMarty · January 2013

Angie2U said:
I wish no one ever had to do
I wish no one ever had to do chemo. Try to think positive and remember that the chemo is killing the cancer and there will be an end to it. How many more treatments do you have?

Hugs and lots of positive thoughts,

Angie

Hi Angie!
I have asked them

Hi Angie!

I have asked them several times how many rounds of Taxol and they keep telling me 'as long as it is working, we'll keep you on it. Or until neuropathy gets too bad' Thank you for your hugs and positive thoughts! I am pushing forward It will indeed have an end even if I don't know when that is !

Marty

McMarty · January 2013

VickiSam said:
.. been there, done that .. and boy, it was not fun
I describe my pain as being hit by a tractor trailer -- and left in the street as road kill. What helped was taking claritan or benedrly that day I had my taxol chemo therapy infusion. Please .. check with your Oncologist == to see what he/she recommends for you.

I am a huge advocate in getting help with side efforts from Chemo. Please do just suffer ... this is the most difficult journey of you LIFE --- there is HELP.

Exhaustion, Insomnia, neuropathy in my hands and feet, watery eyes for months long after chemo treatments completed --- nose sores --. I lost several toe nails, and finger nails -- which took forever to regrow after chemo (appx. 8 to 10 months).

Prayers and gentle hugs for you.

Vicki Sam

Hit by a tractor and left for

Hit by a tractor and left for road kill is a perfect description! And asking for help is not my specialty so thank you for reminding me! I need to ask them about your Claritin/Benadryl idea before next time for sure!

I'm feeling almost better today and holding hope for tomorrow! Talking myself into going back for another dose on Friday will be a challenge - but you are right they can probably help if I just ask!

THANK YOU!

Marty

Alexis F · January 2013

McMarty said:
Hit by a tractor and left for
Hit by a tractor and left for road kill is a perfect description! And asking for help is not my specialty so thank you for reminding me! I need to ask them about your Claritin/Benadryl idea before next time for sure!

I'm feeling almost better today and holding hope for tomorrow! Talking myself into going back for another dose on Friday will be a challenge - but you are right they can probably help if I just ask!

THANK YOU!

Marty

Please ask for help Marty. I

Please ask for help Marty. I am so sorry for the side effects but I am really hoping that your onco can prescribe something to help you.

Let us know,

Lex

Ritzy · January 2013

Rague said:
We are each unique!
I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol. For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol. I had no pain or neuropathy - just complete and utter exhaustion the entire time. The 'good' thing - I started rads a week after last Taxol and felt better daily.

Winyan - The Power Within

Susan

I'm so hoping that you start

I'm so hoping that you start to feel better Marty.

Really gentle hugs,

Sue

Angie2U · January 2013

Ritzy said:
I'm so hoping that you start
I'm so hoping that you start to feel better Marty.

Really gentle hugs,

Sue

Thinking about you Marty and

Thinking about you Marty and hoping you are doing well.

McMarty · January 2013

Angie2U said:
Thinking about you Marty and
Thinking about you Marty and hoping you are doing well.

Thank you Angie2U

Thank you Angie2U for checking back in! I have had 3 rounds now and so far it is getting better. I had some neuropathy show up in my feet after just 2 rounds. THAT was dissapointing. Some of the people on here recommended MetaNX and I asked my Dr for some. I just got it Friday, but I think it's helping already! I sure hope so! I'd hate to flunk Taxol!

Good to hear from you!

Marty

McMarty · January 2013

burcu123 said:
typical for pain and fatigue
Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

MetaNX

My Dr finally prescribed the MetaNX yesterday! I had a little neuropathy after just the 2nd round and I was bummed! They gave me a generic, but I think my feet feel better already! Thank you for the tip!!

1st Taxol last Friday - Update

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