Had PET scan this afternoon.

jamiegww
jamiegww Member Posts: 384
in Breast Cancer #1

I don't know why I was so stressed over this one.  It's my third one now so I should be used to it.  I really hate the 24 hours without carbs and the 6 hours without eating anything.  I also hate the IV to check the blood sugar and inject the radioactive glucose solution, the "relaxing" wait for it to travel wherever it needs to and then I hate the CT they do before the PET.  I stress too much over holding my breath when it says to.  I won't get the results until the 15th because I insisted on seeing the onc instead of the NP.  Hopefully it will say that I am in remission and I don't need chemo,  for awhile anyway.  I am soooooooooo tired of chemo!  I hope the rest of you are having a great start to the new year!

HUGS!!!

Jamie 

Comments

  • McMarty
    McMarty Member Posts: 212 Member
    #2
    PET Scans

    Hey!  PET scans aren't my favoite thing either! YUK!  I am sending you all my best wishes and prayers for a good report from that thing!

  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #3
    I don't like them either, but

    I don't like them either, but get through them. Praying for good results for yours. Sorry for the stress it put you through. Good luck.

  • Megan M
    Megan M Member Posts: 3,000
    #4
    McMarty said:

    PET Scans

    Hey!  PET scans aren't my favoite thing either! YUK!  I am sending you all my best wishes and prayers for a good report from that thing!

    Praying you get good news

    Praying you get good news

  • Angie2U
    Angie2U Member Posts: 2,991
    #5
    smalldoggroomer said:

    I don't like them either, but

    I don't like them either, but get through them. Praying for good results for yours. Sorry for the stress it put you through. Good luck.

    Jamie, I hope your onco tells

    Jamie, I hope your onco tells you are in remission too! 

    Good luck, Angie

  • jamiegww
    jamiegww Member Posts: 384
    #6
    Got the results today.

    I got a call from the chemo nurse Tuesday telling me that she scheduled me for chemo on Thursday so I went in this morning.  The NP gave me my PET scan results and said I would not be getting chemo today because I have new cancer growths.  It looks like I have at least 4 new sites that weren't on previous scans and one of them has a maximum SUV of 10.3.  She told me to start back on the Xeloda pills I got back in July and August.  I will see the onc on the 15th.  In the meantime I will try not to think about it too much because when I do, I start to fall apart.

     

    HUGS!!!

    Jamie

  • missrenee
    missrenee Member Posts: 2,136 Member
    #7
    jamiegww said:

    Got the results today.

    I got a call from the chemo nurse Tuesday telling me that she scheduled me for chemo on Thursday so I went in this morning.  The NP gave me my PET scan results and said I would not be getting chemo today because I have new cancer growths.  It looks like I have at least 4 new sites that weren't on previous scans and one of them has a maximum SUV of 10.3.  She told me to start back on the Xeloda pills I got back in July and August.  I will see the onc on the 15th.  In the meantime I will try not to think about it too much because when I do, I start to fall apart.

     

    HUGS!!!

    Jamie

    So, sorry, Jamie

    I hated hearing this, Jamie.  This was not what we wanted.  Hopefully, on the 15th your onc. will be able to better explain everything that is going on and will put you on a treatment that is kind and very effective.

     

    Prayers and positive energy coming your way, sweetheart. 

     

    Hugs, Renee

  • MsGebby
    MsGebby Member Posts: 659
    #8
    So not right

    I am so sorry the news was not good.  OMG ... cancer sucks.  Please keep us update.  Positive thoughts and prayers going your way.

    xoxo

    Mary

  • New Flower
    New Flower Member Posts: 4,294
    #9
    MsGebby said:

    So not right

    I am so sorry the news was not good.  OMG ... cancer sucks.  Please keep us update.  Positive thoughts and prayers going your way.

    xoxo

    Mary

    I am very sorry Jamie

    Jamie

     I am very sorry, still please do not fall a part and hope until you talk to your oncologist. I really hope Xeloda will work for you. It has been working for me. It is a reasonable drug with manageble side effects. Please do not loose hope. excuse my spelling. I wish CSN along with ACS could fix this site, it is almost impossible to support each other. You are always in my thoughts

    hugs

    Olga

  • camul
    camul Member Posts: 2,537
    #10
    jamiegww said:

    Got the results today.

    I got a call from the chemo nurse Tuesday telling me that she scheduled me for chemo on Thursday so I went in this morning.  The NP gave me my PET scan results and said I would not be getting chemo today because I have new cancer growths.  It looks like I have at least 4 new sites that weren't on previous scans and one of them has a maximum SUV of 10.3.  She told me to start back on the Xeloda pills I got back in July and August.  I will see the onc on the 15th.  In the meantime I will try not to think about it too much because when I do, I start to fall apart.

     

    HUGS!!!

    Jamie

    I too am sorry Jamie

    I was so hoping it would be good results.  Hang in there, as hard as the chemo is, we have to believe it helps!  I am assuming from your results that the sites are on your bones?  Will keep you in my prayers,

    Carol

     

  • SIROD
    SIROD Member Posts: 2,194 Member
    #11
    jamiegww said:

    Got the results today.

    I got a call from the chemo nurse Tuesday telling me that she scheduled me for chemo on Thursday so I went in this morning.  The NP gave me my PET scan results and said I would not be getting chemo today because I have new cancer growths.  It looks like I have at least 4 new sites that weren't on previous scans and one of them has a maximum SUV of 10.3.  She told me to start back on the Xeloda pills I got back in July and August.  I will see the onc on the 15th.  In the meantime I will try not to think about it too much because when I do, I start to fall apart.

     

    HUGS!!!

    Jamie

    So Sorry, Jamie

    I am so very sorry to read about the new sites showing up.  Do everything to distract yourself until you see the oncologist and hear an explanation.  You just haven't hit the right drug to kick these invaders out.  

     

    Sending positive thoughts your way.

     

    Doris

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #12
    New Flower said:

    I am very sorry Jamie

    Jamie

     I am very sorry, still please do not fall a part and hope until you talk to your oncologist. I really hope Xeloda will work for you. It has been working for me. It is a reasonable drug with manageble side effects. Please do not loose hope. excuse my spelling. I wish CSN along with ACS could fix this site, it is almost impossible to support each other. You are always in my thoughts

    hugs

    Olga

    so .. so .. so very sorry, Jamie

    cancer is like the gift, that keeps on giving --- a gift, non of us WARRIORS wanted to receive.  My thoughts, and prayers are with you dear Sister in Pink.

    Strength, Courage and HOPE for a Cure in 2013.

    Vicki Sam

  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #13
    camul said:

    I too am sorry Jamie

    I was so hoping it would be good results.  Hang in there, as hard as the chemo is, we have to believe it helps!  I am assuming from your results that the sites are on your bones?  Will keep you in my prayers,

    Carol

     

    Hoping for good results!
    Hoping for good results!
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #14
    camul said:

    I too am sorry Jamie

    I was so hoping it would be good results.  Hang in there, as hard as the chemo is, we have to believe it helps!  I am assuming from your results that the sites are on your bones?  Will keep you in my prayers,

    Carol

     

    Hoping for good results!

    Hoping for good results!

  • jamiegww
    jamiegww Member Posts: 384
    #15
    New Flower said:

    I am very sorry Jamie

    Jamie

     I am very sorry, still please do not fall a part and hope until you talk to your oncologist. I really hope Xeloda will work for you. It has been working for me. It is a reasonable drug with manageble side effects. Please do not loose hope. excuse my spelling. I wish CSN along with ACS could fix this site, it is almost impossible to support each other. You are always in my thoughts

    hugs

    Olga

    Saw onc yesterday.

    She wants me to take the Xeloda pills at least until my next PET scan in three months.  I'm not arguing with her because so far I'm not having any side effects and I was really tired of the side effects from the Ixempra.  I am not happy with the nerve damage the Ixempra caused in my feet but I started taking Lyrica just last night and I had a better day today than I have had in months.  I hope it turns out to be my "little miracle".  I know we are all different but I wouldn't recommend Ixempra to anyone just in case it might cause the same problems for them.  There were so many other drugs "we" could have started with so I wish we hadn't started with Ixempra but I guess there was no way of knowing this would happen.  If I can stay on the Xeloda, maybe my hair will get a chance to grow back. Thank you all for taking the time to read about my problems in the midst of what you are dealing with.

    HUGS!!!

    Jamie

  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #16
    jamiegww said:

    Saw onc yesterday.

    She wants me to take the Xeloda pills at least until my next PET scan in three months.  I'm not arguing with her because so far I'm not having any side effects and I was really tired of the side effects from the Ixempra.  I am not happy with the nerve damage the Ixempra caused in my feet but I started taking Lyrica just last night and I had a better day today than I have had in months.  I hope it turns out to be my "little miracle".  I know we are all different but I wouldn't recommend Ixempra to anyone just in case it might cause the same problems for them.  There were so many other drugs "we" could have started with so I wish we hadn't started with Ixempra but I guess there was no way of knowing this would happen.  If I can stay on the Xeloda, maybe my hair will get a chance to grow back. Thank you all for taking the time to read about my problems in the midst of what you are dealing with.

    HUGS!!!

    Jamie

    Oh Jamie,
    I can't  tell you

    Oh Jamie,

    I can't  tell you how sorry I am to hear this news. My heart is breaking for you right now. I know how scared you must be. When My cancer came back in my lungs and spine I could not have been more scared. I was told that my lungs were so bad that I had 3 days to a week to live. I literally could not breath, on 6 to 8 litters oxygen per minute to keep me alive. That was back in Aug... I had at least 3 different Dr's tell me there was no hope. My new Dr, was the only one that said I can help. He put me back into chemo. It was a fight for awhile just to breath. But from that point to now 4 months later, My last scans showed there was no active cancer in lungs or spine.

    So never give up..There is always Hope. I am with you - you are in my prayers every day. I'm holding your hand darlin HUGS

    Sister in pink Kay,

  • jamiegww
    jamiegww Member Posts: 384
    #17
    smalldoggroomer said:

    Oh Jamie,
    I can't  tell you

    Oh Jamie,

    I can't  tell you how sorry I am to hear this news. My heart is breaking for you right now. I know how scared you must be. When My cancer came back in my lungs and spine I could not have been more scared. I was told that my lungs were so bad that I had 3 days to a week to live. I literally could not breath, on 6 to 8 litters oxygen per minute to keep me alive. That was back in Aug... I had at least 3 different Dr's tell me there was no hope. My new Dr, was the only one that said I can help. He put me back into chemo. It was a fight for awhile just to breath. But from that point to now 4 months later, My last scans showed there was no active cancer in lungs or spine.

    So never give up..There is always Hope. I am with you - you are in my prayers every day. I'm holding your hand darlin HUGS

    Sister in pink Kay,

    Dearest Kay!

    I am so glad to hear that you are doing better.  I don't know what I would do if I was told I had three days to a week to live.  I have trouble every time I'm told that without treatment I would only have six months.  Part of me would like to test that theory but then part of me is terrified just hearing it spoken.  I'm so glad that doctor was able to help you when nobody else would.  You too are in my prayers and I thank you for sharing your HOPE with me.

     

    HUGS!!!

    Jamie

  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #18
    jamiegww said:

    Saw onc yesterday.

    She wants me to take the Xeloda pills at least until my next PET scan in three months.  I'm not arguing with her because so far I'm not having any side effects and I was really tired of the side effects from the Ixempra.  I am not happy with the nerve damage the Ixempra caused in my feet but I started taking Lyrica just last night and I had a better day today than I have had in months.  I hope it turns out to be my "little miracle".  I know we are all different but I wouldn't recommend Ixempra to anyone just in case it might cause the same problems for them.  There were so many other drugs "we" could have started with so I wish we hadn't started with Ixempra but I guess there was no way of knowing this would happen.  If I can stay on the Xeloda, maybe my hair will get a chance to grow back. Thank you all for taking the time to read about my problems in the midst of what you are dealing with.

    HUGS!!!

    Jamie

    Positive thoughts and prayers

    Positive thoughts and prayers for you Jamie!

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