Strange chemo side effect or vit b6 overdose?

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  • jen2012
    jen2012 Member Posts: 1,607 Member
    #22
    Chelsea71 said:

    Thanks for the concern Jen
    Thanks for the concern Jen and Tommycat. He is alright. The symptoms are still there and have not improved. The thrombosis doctor said he will have to be on the blood thinners for two weeks before the symptoms start to dissipate. They are doing an ultrasound of both sides of his neck tomorrow or Thursday. We are hoping he will be able to go home by the weekend. He has given himself his first needle. It was a very dramatic event. He said it was easier than he thought it would be. (He breezes through surgeries and chemo etc, but very stressed at the thought of giving himself a needle. Go figure.). Anyhow, thanks again for your support. Hope all is well with you guys and all CSN members.

    Thanks

    Chelsea

    Thanks for the update Chelsea

    Thanks for the update Chelsea - been thinking of you guys all day.  Needles freak me out too - I was kind of glad when my son decided he wants to do his own insulin shots.  I was so worried about hurting him.  He says he can't even feel them anymore and it hasn't even been 2 months.  

    I hope he feels better soon and that he can get home this weekend.

  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
    #23
    Chelsea71 said:

    Thanks for the concern Jen
    Thanks for the concern Jen and Tommycat. He is alright. The symptoms are still there and have not improved. The thrombosis doctor said he will have to be on the blood thinners for two weeks before the symptoms start to dissipate. They are doing an ultrasound of both sides of his neck tomorrow or Thursday. We are hoping he will be able to go home by the weekend. He has given himself his first needle. It was a very dramatic event. He said it was easier than he thought it would be. (He breezes through surgeries and chemo etc, but very stressed at the thought of giving himself a needle. Go figure.). Anyhow, thanks again for your support. Hope all is well with you guys and all CSN members.

    Thanks

    Chelsea

    Chelsea
    I have been doing Lovenox injections for 7 months now. My belly is so black and blue. It was so much easier to give them to patients when I was a nurse, it didn't hurt then. I got a blood clot from a picc line and It just doesn't want to totally dissolve. I had 2 ultrasounds and going to have another in March, hopefully it will be gone.
    Good luck, I hope Steve feels better.
    Sandy :)
  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #24
    Momof2plusteentwins said:

    Chelsea
    I have been doing Lovenox injections for 7 months now. My belly is so black and blue. It was so much easier to give them to patients when I was a nurse, it didn't hurt then. I got a blood clot from a picc line and It just doesn't want to totally dissolve. I had 2 ultrasounds and going to have another in March, hopefully it will be gone.
    Good luck, I hope Steve feels better.
    Sandy :)

    Interesting. They think one
    Interesting. They think one of Steve's clots is related to his port. It is in the same vein. This is why his face turned blue and etc etc...Cancer..... This gift that keeps on giving. LOL

    Thanks
    Chelsea
  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #25
    Chelsea71 said:

    Interesting. They think one
    Interesting. They think one of Steve's clots is related to his port. It is in the same vein. This is why his face turned blue and etc etc...Cancer..... This gift that keeps on giving. LOL

    Thanks
    Chelsea

    Steve has been discharged
    Steve has been discharged from the hospital. The ultrasound showed a blood clot in his vena cava. Quite large. May never entirely dissolve. Thrombosis doctor hopes the symptoms (blue face and ears, shortness of breath, puffy face etc.) might diminish over time. Portocath did not have to be removed. The good new is that they are sure that it's the blood clots (several in lung and vena cava) causing the symptoms and not a new tumor or swollen lymph node putting pressure on the vein. There was also mention of possible brain mets causing these symptoms and that was ruled out. Overall, I am relieved but a bit concerned for his quality of life due to these unpleasant symptoms. Really hoping the blood thinners cause the symptoms to subside. He refers to himself as "pumpkin head". ( A bit of an exaggeration). So, hopefully this is the end of this unpleasant little chapter. Thanks everybody.

    Chelsea

    Oh, and he's back on the vitamin b6!
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #26
    Chelsea71 said:

    Steve has been discharged
    Steve has been discharged from the hospital. The ultrasound showed a blood clot in his vena cava. Quite large. May never entirely dissolve. Thrombosis doctor hopes the symptoms (blue face and ears, shortness of breath, puffy face etc.) might diminish over time. Portocath did not have to be removed. The good new is that they are sure that it's the blood clots (several in lung and vena cava) causing the symptoms and not a new tumor or swollen lymph node putting pressure on the vein. There was also mention of possible brain mets causing these symptoms and that was ruled out. Overall, I am relieved but a bit concerned for his quality of life due to these unpleasant symptoms. Really hoping the blood thinners cause the symptoms to subside. He refers to himself as "pumpkin head". ( A bit of an exaggeration). So, hopefully this is the end of this unpleasant little chapter. Thanks everybody.

    Chelsea

    Oh, and he's back on the vitamin b6!

    Chelsea

    Glad to hear Steve is on the mend.  Here's to the symptoms subsiding soon.  My goodness what he's been through. 

    Winter Marie

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #27
    Chelsea71 said:

    Steve has been discharged
    Steve has been discharged from the hospital. The ultrasound showed a blood clot in his vena cava. Quite large. May never entirely dissolve. Thrombosis doctor hopes the symptoms (blue face and ears, shortness of breath, puffy face etc.) might diminish over time. Portocath did not have to be removed. The good new is that they are sure that it's the blood clots (several in lung and vena cava) causing the symptoms and not a new tumor or swollen lymph node putting pressure on the vein. There was also mention of possible brain mets causing these symptoms and that was ruled out. Overall, I am relieved but a bit concerned for his quality of life due to these unpleasant symptoms. Really hoping the blood thinners cause the symptoms to subside. He refers to himself as "pumpkin head". ( A bit of an exaggeration). So, hopefully this is the end of this unpleasant little chapter. Thanks everybody.

    Chelsea

    Oh, and he's back on the vitamin b6!

    Glad to hear hes home...but
    Glad to hear hes home...but sorry hes still experiencing symptoms. I hope they resolve quickly.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #28
    jen2012 said:

    Glad to hear hes home...but
    Glad to hear hes home...but sorry hes still experiencing symptoms. I hope they resolve quickly.

    He's taken a real

    He's taken a real whippin'...that's some hard news there. I really feel for Steve about now. That must be some kind of misery he is in...aches just reading it.  I hope they can get this swelling down and give him some relief.  Very scary to hear of those clots. It's just awful that folks have to suffer so much with all of this.

    Just one helpless feeling watching from afar...hugs to you both...glad he is home now...and hoping for a turn.

     

  • Nana b
    Nana b Member Posts: 3,030 Member
    #29
    I have the hand foot

    I have the hand foot syndrome.  I'm told XELODA thins your skin so we are seeing the redness that we all have but can see it when your hands are thin skinned.  My cuticles are real thin and the skin peels back ouch!  My toes are purple too..

     

    Google hand foot syndrome

     

    I know this is an old post but fyi.  

     

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