Strange chemo side effect or vit b6 overdose?

Annabelle41415 said:

B6

My oncologist recommended B6 for me throughout my chemo so that just doesn't seem right.  I'd think more chemo related than vitamin.  Glad he is doing better.

Kim

They tell you take b6 to fight the neuropathy from the oxycaliplatin chemo.

5fu can cause Hand and Foot Syndrome and that will cause the hands and feet to discolor.

Neuropathy is usually in hands and feet..

However the hot and cold alert they advise may have some connection... possibly... I know

As for te reshape of the body and where weight seems to deposit.. I cannot comment on..

I hope you solve the mystery...

Chelsea71 said:

I spoke too soon.  The

I spoke too soon.  The situation worsened.  Face got more purple and swollen and he started having shortness of breath.  We are at the ER in Ottawa now.  They say he has a blood lot in his neck. They are meeting as a team to rewiew his history and try to figure out what to do.  They are concerned about the lack of blood flow to his brain.  The problem may be related to the port.  

 

It's really nice to have all you guys to share this with.  

 

Chelsea

I am sure the docs will find away to attend to the problem. Wish you both all the best.

Sander

Geez Chelsea - that sounds scary!  I'm glad things look good on the scan, but sorry Steve has to deal with these clots now.  Hang in there and don't let the resident scare you.   We met a lady in chemo last week with colon cancer - they gave her 6 mos to live over 2 yrs ago and she's still hanging in there - she's in her 70s.  She said "they don't know what they are talking about 1/2 the time!"  Hey, not cancer related, but my mother was given months to live - over 30 yrs ago and she's still around to tell the story! 

Chelsea71 said:

Yeah, it has been kind of

Yeah, it has been kind of scary.  He's been admitted and I think he will be here for a while.  Tomorrow is the app. with the liver surgeon and I don't think we are going to make it.  I'm looking at him now.  His face is red and purple and blue and his head is big and swollen looking.  Veins in his neck are very pronounced.  He's started the needles but in the meantime they seem to be worried about a stroke.

 

Several things are on my mind.  You really can't trust doctors to look after you.  It's crazy that the Cornwall er doc thought this could be caused by vitamin b6.  We all have to be very strong self advocates.  Cornwall was happy to send him home with a purple, swollen face.  I learned this lesson 20 months ago.  I guess I forgot.

 

The other thing that's jumped out at me is just how used to this new cancer life we've become.  Steve is so used to hospitals that he seems as comfortable as if he is in his own living room.  He is on the same floor as where he was first diagnosed.  I remember the shock and devastation I felt at that time.  I walk the same halls and I don't feel that same upset.  I sure as hell don't feel happiness.  I guess I feel like we've conformed to this new life that revolves so much around his medical needs.  I wonder if this is a good thing or a bad thing?  

 

As you can probably tell, I have some time on my hands.  I think I should go buy a book. Lol

 

Thanks,

Chelsea2013-01-07

It's a good thing, Chelse...you're in a firefight right now...all of your senses are geared to fighting...at handling one situation...and then moving over to the next fire to try and put it out...while diligantly looking over your shoulder to see the other fire smoldering, while hoping it doesn't catch blaze again.

Once you figure out the routine as you have, it becomes sort of second nature, to have a feel and a way around the hospital...after all, you know the drill by now.  So, it's good that Steve is calm...and you too.

It's the constant evolution of going from one state of the fight to the next....from scared at first...now to more active approach...and the realization that one must remain vigilant as often as possible...because mistakes do happen.

I'm always real good about looking at the gauges and understanding the numbers on medical equipment...so you begin to know what's right and what isn't.

One evening, I was by myself after my wife had left for the night...I had a twisted bowel that put me in the ER one evening...was tossing up bile and the like...diarrhea too...couldn't hold down a sip of water...so I got really dehydrated quickly.

So, they ramped up the saline when I got there...for 24 hours that was a good idea...but then my tissues got full...they had the pumps turned up to 75% capacity...I was being drowned by saline fluid...I was urinating every 6-minutes per hour...for 10-hours!

Pretty close to 100 pi$$es that night...that's all I did...every 6-minutes.  I filled up nearly two 2-litre bottles of fluid.

I called the nurse in and said the numbers on the pump are too high and need adjusted....I'm being flooded.  They stared at the meter...made a couple of calls...doctor never called back....so they made the decision themself...at my urging of course:)

But, with no one there to watch me...and if I had not been my own self-advocate, I could have been in serious trouble before medical personnel could have or would have intervened.

You don't always have to know...but pay attention to your surroundings when you can...watch for patterns...the live you save may just be your own.

I'm so sorry that Steven is going through all of this...I'm worried for him from what you are telling us...hoping for a turnaround for the both of you.

-Craig

smokeyjoe said:

Sorry you're both going

Sorry you're both going through this....just to let you know I've been doing the lovenox shots for two years now.   They may combine the shots with warfarin to get his INR to where they want it  then to the lovenox shots alone.   My oncologist compared it to someone with diabetes getting a daily injection.     Good other than the blood clots that the scan was stable. 

Thinking of you both......this is such tough stuff.  Hope things can get resolved soon.  One step at a time.....how often do we hear that?

Keep us updated ( a lot).  Everyone is pulling for you two.

HUGS

Chelsea71 said:

Thanks everybody. Steve is

Thanks everybody. Steve is getting lovenox injections here at hospital butsheen he gets home he will take Fragmin.  Apparently it works well with cancer.  Doc said the injections don't shrink the clot.  Just prevents it from growing, then the body breaks it up.  It is not a fast process so he may have these symptoms for a while.  He's been granted an LOA for tomorrow so that he can go to his app with the liver surgeon.  Not sure what to expect from that one.

 

Thanks for the support

 

Chelsea

Hi Chelsea!

Just read all these threads.....wow. Here's a hug to start with.

A good--scratch that---GREAT doctor is also a superb detective. Slow to dismiss anomalies, and willing to dig a little deeper into what is causing a problem.

Very glad to hear your hubby is in the hospital---a good place to be until things settle down.

Hugs from California~

Tommycat