An Update on PinkKari09

pinkkari09
pinkkari09 Member Posts: 877
edited December 2012 in Breast Cancer #1

Hello everyone. This is KarLee, Kari's daughter. Mom made it very clear that when she was no longer able to post, she wanted me to keep you all informed of her status. 

Mom went into hospice the 2nd week of December for pain control with a plan of staying there for a few days to get her pain under control. Most of her issues revolved around an agonizing headache and generalized pain and weakness. Much to Mom's dismay, she ended up staying in hospice for a week until she insisted on leaving, even though her pain was not controlled. 

That was December 19th. For about a week, Mom was nothing short of an energizer bunny. She spent her birthday with friends and family. Went shopping A LOT. Went out to the casino and gambled a bit. She did many many things that she wanted to do. However, she just wasn't herself that week. She was very angry and aggressive and easily upset by little things. Her headaches continued to get worse and she became more weak.

On Christmas day, Mom's headaches, nausea, and weakness were too much for her and the Palliative care doctor instructed her to go the ER for a head CT. Mom was scheduled to get a CT done on the 26th to evaluate the possibility of radiation, but the doctor wanted to her go in that day because of her symptoms. We went in to the ER, had a CT and MRI of the brain and it showed significant involvement in her temporal lobe with multiple masses. This explained all of Mom's symptoms including her behaviors. Mom was too weak to go home, and we transferred from the ER to hospice. 

Over the last week, the staff has been adjusting her pain and anxiety medication. She is on a couple of continuous IV drips (thank goodness for ports). There are times when she is anxious and in pain, and when that happens we increase her meds. She has not really talked since the day she was admitted. She will ask for her Mom (who has passed) sometimes and will say "owey" when she is uncomfortable. But despite all of this, when she is resting, she looks so peaceful. It has taken everything in me to make sure that I am making the right decisions for her and being her advocate. 

As far as all of you readers and bloggers who have supported her throughout the last three years: She loves you guys and you are all very near and dear to her heart. You helped her get through the toughest of times at the end of her life with all of your kind words, cards, gifts (especially the beautiful ornaments), and support.

That is all for now, I will try to continue to update you as I know you all care so much for her. 

Again, Thank you. 

KarLee

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Comments

  • New Flower
    New Flower Member Posts: 4,294
    #2
    Karlee

    I am very sorry. bless your heart you are a wonderful daughter .

     Please give Kari a hug from me. 

    No words just tears she is a dear friend 

    olga

  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
    #3
    New Flower said:

    Karlee

    I am very sorry. bless your heart you are a wonderful daughter .

     Please give Kari a hug from me. 

    No words just tears she is a dear friend 

    olga

    Thank you Karlee~♥

    I was just thinking about your mom last night, and wondering how things were going. It saddens my heart to hear how things have progressed. I watched my mom go through hospice for renal cell carcinoma, and their care is wonderful and supportive to family. As a daughter tho, it was challenging to face. Inner strength and a deep love got me through it. I am praying for your family~♥

    ~Hugs, Melanie

  • susie09
    susie09 Member Posts: 2,930
    #4
    GreeneyedGirl said:

    Thank you Karlee~♥

    I was just thinking about your mom last night, and wondering how things were going. It saddens my heart to hear how things have progressed. I watched my mom go through hospice for renal cell carcinoma, and their care is wonderful and supportive to family. As a daughter tho, it was challenging to face. Inner strength and a deep love got me through it. I am praying for your family~♥

    ~Hugs, Melanie

    double post

    Sorry..just upset

  • susie09
    susie09 Member Posts: 2,930
    #5
    GreeneyedGirl said:

    Thank you Karlee~♥

    I was just thinking about your mom last night, and wondering how things were going. It saddens my heart to hear how things have progressed. I watched my mom go through hospice for renal cell carcinoma, and their care is wonderful and supportive to family. As a daughter tho, it was challenging to face. Inner strength and a deep love got me through it. I am praying for your family~♥

    ~Hugs, Melanie

    Thank you Karlee!

    This isn't the news I had prayed to read about Kari, but, I am so thankful to know something about her.  We've all been worried and thinking of her a LOT.  

    You are a brave and wonderful daughter and once again, I thank you for posting this for us. We all love your Mom!

    Please keep us updated when you can Karlee.

     

    Miles of Love to you and Kari!

  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #6
    Thank you, Karlee, for the

    Thank you, Karlee, for the update on your mom.  I have also been thinking about her and hoping she was not in pain and at peace.  You are a very special daughter and please let your mom know we are thinking of her.  Also, please give her a hug for me. 

    We are here for you, too!

  • sbmly53
    sbmly53 Member Posts: 1,522
    #7
    KarLee,

    I am so sorry for all that our sweet Kari has had to endure.  The 'miles of love' she has sent to us all have meant so much. Now, I want to send miles of love and strength to her and to you.

    You are in my prayers. I have thought of your Mom every day. Thank you so much for the post.

     

    Sue

  • KathiM
    KathiM Member Posts: 8,028 Member
    #8
    Thank you, darling, for the update....

    I am putting my arms around you both...

    I share the role of being the 'caregiver daughter' with my mom.  I can tell you that your mom is very grateful, even if she doesn't say it.  

     

    My mom had slipped farther away from me, and then focused, and said "I love you, too, darling" when I said "I love you"....it was the BEST!

     

    Hugs from one daughter to another.....Kathi

  • Clementine_P
    Clementine_P Member Posts: 518 Member
    #9
    So sorry

    to hear of this turn of events with your mother.  You are a wonderful daughter (just like Kari told us!) and are doing all the right things for your mother.  I am glad to hear that you are there for her and doing everything to help her to be comfortable.  I wish you and your family (and especially Kari) peace during this heart wrenching situation.

     

    Be well, 

    Clementine

  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #10
    Sweet Daughter

    I'm so sorry you and your family are dealing with this at this time.

    Thank you so much for taking the time to update us about your mama. She was one of the very first people I prayed for (and continue to) when I was dx last year. I always think of her. We were all worried about her since we haven't seen her post. Your mom is an inspiration to all of us and we love her.

    You and your family will be in my prayers. And I will pray for our dear sweet pink sister Kari not to suffer. To feel at peace.

    Sending you and Kari all my love.

     

  • Aortus
    Aortus Member Posts: 967
    #11
    KarLee, you are awesome

    Thanks for keeping us all up to date when I know from sad experience how your heart has to be breaking every waking minute. You have been fighting right alongside your Mom this entire time and you must be tired beyond all belief. My hope and prayer is that your Mom knows comfort and peace as she passes, and that you and all your family will also find all the comfort and peace you can in the times to come.

    Love,
    Joe

  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #12
    Thank you KarLee!

    We all love your Mom very much and she is a special sister to all of us.  Thank you for being there for her and for the update.  I know this is so hard for you too.

     

    xoxo,

    Jean

     

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #13
    LoveBabyJesus said:

    Sweet Daughter

    I'm so sorry you and your family are dealing with this at this time.

    Thank you so much for taking the time to update us about your mama. She was one of the very first people I prayed for (and continue to) when I was dx last year. I always think of her. We were all worried about her since we haven't seen her post. Your mom is an inspiration to all of us and we love her.

    You and your family will be in my prayers. And I will pray for our dear sweet pink sister Kari not to suffer. To feel at peace.

    Sending you and Kari all my love.

     

    Love to you both

    as well as the rest of your family.  We have loved Kari and will continue to.  Thank you for letting us know the latest.  It sounds like you're the best daughter a mom could have.  Thank you for all you do for her.

    Love,

    Suzanne

  • ladyg
    ladyg Member Posts: 1,577
    #14
    Thank you for the update.

    I am sorry the news is not better. Please know that you and your mom are in my thoughts. Thank you for being there for her.

    Hugs,

    Georgia

  • lintx
    lintx Member Posts: 697
    #15
    ladyg said:

    Thank you for the update.

    I am sorry the news is not better. Please know that you and your mom are in my thoughts. Thank you for being there for her.

    Hugs,

    Georgia

    KarLee, you are a wonderful daughter

    Thank you so much for the contact.  Everyone here prays for your Mom continuously, and you are certainly making the right decisions.  Much love and comfort to you and your family.  Linda

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #16
    lintx said:

    KarLee, you are a wonderful daughter

    Thank you so much for the contact.  Everyone here prays for your Mom continuously, and you are certainly making the right decisions.  Much love and comfort to you and your family.  Linda

    Sending love

    You're all in my prayers.

    xoxo

    Victoria

  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    #17
    aisling8 said:

    Sending love

    You're all in my prayers.

    xoxo

    Victoria

    Thank You

    Thank You for the update on how your mom is doing.We all wondered about her recently when she hadn't posted.Glad she's comfortable but really wish things would be different.She is a brave Lady.

    Thinking of your mom and the family. Has to be hard around the holidays.

    Lynn Smith

  • fauxma
    fauxma Member Posts: 3,577 Member
    #18
    aisling8 said:

    Sending love

    You're all in my prayers.

    xoxo

    Victoria

    My kind thoughts and prayers

    My kind thoughts and prayers for you, your mom and the entire family.  This is such a hard thing to go through and my heart goes out to you.  Your mom is a very special women who raised an exceptional child.

     

  • tommaseena
    tommaseena Member Posts: 1,769
    #19
    fauxma said:

    My kind thoughts and prayers

    My kind thoughts and prayers for you, your mom and the entire family.  This is such a hard thing to go through and my heart goes out to you.  Your mom is a very special women who raised an exceptional child.

     

    Thank you

    Thank you Karlee for the update of your mom.  Prayers and comfort for you and your family at this time.  Your mom is one very special woman for sure.  Hugs for all of you.  Margo

  • linpsu
    linpsu Member Posts: 747
    #20
    Kari

    KarLee -

    My heart is breaking for you and your famlily.  Kari is so important to all of us and we pray for her comfort at this time.

    Hugs,

    Linda

  • linpsu
    linpsu Member Posts: 747
    #21
    Kari

    KarLee -

    My heart is breaking for you and your famlily.  Kari is so important to all of us and we pray for her comfort at this time.

    Hugs,

    Linda

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